Top Tweets for #PFCommunity
Treatment with Esbriet, a drug approved for people with idiopathic pulmonary fibrosis, was found to ease heart stiffness and rhythm issues. https://t.co/w9hbSABWFi #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
After a difficult PF diagnosis, we must educate ourselves, prepare, and stay resilient, says guest writer Kylene Henderson. https://t.co/bladUqoBMZ #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Tyvaso significantly improved a measure of lung function for IPF patients in a Phase 3 trial, which top-line data showed met its main goal. https://t.co/WikM4uQJjW #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
MNKD-201, an inhaled formulation of nintedanib for IPF, was shown to be safe and well tolerated in a clinical trial with healthy volunteers. https://t.co/TeEiJwoDNl #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Columnist Sam Kirton keeps meticulous records of his post-transplant prescriptions, and now his OTC medications as well. https://t.co/RFfOIg9u2v #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Pulmonary Fibrosis Awareness Month may be coming to a close, but it's important to keep the momentum going, columnist Sam Kirton says. https://t.co/ZfoRNgeBdT #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
A Phase 2b clinical trial is testing the safety and efficacy of AP01, inhaled pirfenidone, in people with progressive PF. https://t.co/hUqv7tClPn #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
An experimental therapy, brilaroxazine showed a treatment potential in models of idiopathic pulmonary fibrosis and pulmonary hypertension. https://t.co/eom1XMOP8b #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Columnist Sam Kirton asks his PF community to support the SOAR Act, which aims to improve patient access to supplemental oxygen. https://t.co/oC2RdPgpYU #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
What were your first signs and symptoms of PF? What prompted you to visit your GP?
Share your story in the comments below to help others recognise PF and know when to seek medical advice. Let's raise awareness together.π
#pulmonaryfibrosis #pfcommunity #pf #lungs
Despite her IPF, columnist Charlene Marshall has found these weight loss strategies to be accessible and effective. https://t.co/QoFysKugyk #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Columnist Sam Kirton explains what an acute exacerbation of IPF can look like, and why urgent action is needed. https://t.co/8nSL87usIN #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
π¨ Last call! Join us for our webinar "Pulmonary Fibrosis and Cough - Causes, Treatments, and Quality of Life" TODAY at 7-8pm CET (6-7pm GMT)! Register and secure your spot now: https://t.co/PkWcDkzw5h
#PF #webinar #PFCommunity
It's not uncommon for those with a rare disease to experience depression, columnist Sam Kirton writes. But know there are resources available. https://t.co/ODfC8tWm7V #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Researchers developed NZ-97, an inhalable drug that stimulates the growth of stem cells in the lungs, potentially repairing scarring in IPF. https://t.co/4NjtscT8RI #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Since her diagnosis of IPF, columnist Charlene Marshall has occasionally found herself fighting impostor syndrome in her daily life. https://t.co/sHqYLA0F5O #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Columnist Sam Kirton shares his experience traveling abroad to the Netherlands β his first international trip as a post-transplant patient. https://t.co/MtRkz7wtLn #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Almee, the first behavioral therapy-based app designed to ease anxiety in PF patients, has received FDA breakthrough device designation. https://t.co/7coKqxgIPI #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
Endeavor BioMedicines has completed a Phase 2a trial of its oral therapy ENV-101 (taladegib) in people with idiopathic pulmonary fibrosis. https://t.co/yLleTLXSty #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
The experimental oral IPF treatment bersiporocin has been granted orphan drug status in the EU by the European Medicines Agency (EMA). https://t.co/0c4NKHVlrT #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness
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