Top Tweets for #PHWeek18

Thank you so much to everyone who has supported this year's PH Awareness Week, which comes to an end at midnight tonight. Let's keep those conversations going!
#PHWeek18 #LetsTalkPH

PH awareness. Physicians raising awareness. @teamphhope setting the standard! #TeamPHenomenalHopeUKIreland #PHWeek18 #PHWeekchat
Massive well done to all the riders from #TeamPHenomenalHope who have been cycling to raise awareness of #PulmonaryHypertension during #PHWeek18 #PHWeekchat #LetsTalkPH.
In case you missed it, you can also listen to Dr John Wort talking about PH here: https://t.co/qZAQ36mNgY


“It is so important to discuss organ donation and share your wishes about it with your family”
In our final guest blog for PH Awareness Week, transplant recipient @KagGraham has this vital message: https://t.co/sJpW0KEimR
#LetsTalkPH #PHWeek18 #YesIDonate

To help continue the conversations about pulmonary hypertension, PHA UK member @maritess_mt has set up a new website.
https://t.co/eSUmdE8d3X enables people to share their PH stories - email [email protected] if you'd like to get involved 🙌
#PHWeek18 #LetsTalkPH

Let’s RT & see how many people have learnt something new about #pulmonaryhypertension this PH Awareness Week, UK, 2018!! Forever raising awareness for PH! 💜 @PHA_UK #LetsTalkPH #PHWeek18 #NoCureAlwaysHope #chronicillness #invisibleillness

"PH can be very difficult to diagnose too, it’s often mistaken for other conditions such as asthma, it often takes a few years for a patient to be diagnosed properly. In my own case it took nearly fifteen years!"
Read this blog as part of #PHWeekchat
Just months after his double lung transplant, Daniel Peel climbed Mount Snowdon and competed in the British Transplant Games. In this special blog for PH Awareness Week, he explains what his new lungs mean to him: https://t.co/eJZ0cSv6TH
#PHWeek18 #LetsTalkPH #YesIDonate

Asha received a heart & double lung transplant after living with pulmonary hypertension for two years. Here she talks about how the transplant has changed her life & why talking about organ donation is so important. https://t.co/1KihNd3URd
#LetsTalkPH #PHWeek18 #YesIDonate
Big thanks to @pieevents for looking after us so well. Injuries, mechanical faults, morale, hunger, thirst - all taken care of at every turn.
#PHWeek18
#TeamPHenomenalHopeUKIreland
Breathlessness is one of the main symptoms of pulmonary hypertension - how do you explain to people how it makes you feel?
#PHWeek18 #LetsTalkPH

Here was the day.
#TeamPHenomenalHopeUKIreland #PHAwarenessWeek #PHWeek18
Thanks for all the support.
@ImperialNHS @ImperialNHLI @RBandH
For some with pulmonary hypertension, transplant is their only option. In her final video to mark #PHWeek18, @maritess_mt has an important message about organ donation. Look out for more on this issue over the weekend.
#YesIDonate #PHWeek18 #LetsTalkPH https://t.co/X8vSxFmGjI
Thank you to Amanda Lucas, who accessorised her wedding dress with one of our #PHWeek18 selfie cards! 👰#LetsTalkPH

Massive well done to all the riders from #TeamPHenomenalHope who have been cycling to raise awareness of #PulmonaryHypertension during #PHWeek18 #PHWeekchat #LetsTalkPH.
In case you missed it, you can also listen to Dr John Wort talking about PH here: https://t.co/qZAQ36mNgY

#BreathlessNotVoiceless
#PHWeek18 #TeamPHenomenalHopeUKIreland
Breathlessness is satisfying when you're climbing up a hill, but frightening if it's only when you are walking along the road
Thank your for being part of our special Twitter chat to celebrate #PHWeek18. Thanks to all our experts - both patients & professionals -and to everyone who got involved. We hope you enjoyed it! #PHWeekChat 👋
@PHA_UK Members are always telling us what a huge positive impact been seen at specialist centre has had on their lives. Knowing that everyone there understands the condition and that travelling for those expertise would never be an issue. #PHWeekchat #PHWeek18
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