Top Tweets for #PIPACTIONA
Ditto for medical devices #MedicalImplants #PevicMesh #HerniaMesh #PIPActionA
Vaccines #Covid19
And procedures e.g. #InfectedBlood
TUESDAY — LISTENING IS WHERE PATIENT SAFETY BEGINS.
BUT IT CANNOT BE WHERE IT ENDS.
Yesterday we said a patient should never have to earn the right to be heard.
Today, let’s go one step further.
When a patient reports that something changed after taking a medication, listening should lead to questions:
What changed?
When did it begin?
What medication was taken?
What was the patient like before?
What happened after?
Not dismissal.
Not assumptions.
Investigation.
This is not anti-medicine.
It is how medicine becomes better.
And there are doctors, researchers, nurses, pharmacists and advocates who understand this—people willing to listen, document, investigate and learn.
They deserve our recognition too.
Because patient safety is not patients against medicine.
It is patients AND medicine working together to discover the truth.
For Henry.
For every son, daughter, husband, wife, mother, father, and friend whose life was forever changed.
For all those we have lost.
For the thousands still fighting.
For every future patient.
Truth with Compassion. Science with Humanity.
#PatientSafety #InformedConsent #PFS #PSSD #MoralMedicine #MilanoProject
#PelvicMesh #PIPActionA #Valproate #Primodos #Covid19
As a patient with multiple injuries and autoimmune disease from #PelvicMesh I fear that since the implants have been paused for years, research on the effects will stop & those of us harmed will be left on the scrap heap.
The future of medicine depends on one simple principle: listening to patients.
For decades, many patients reporting persistent adverse effects after medications such as finasteride and SSRIs were told their symptoms were unrelated, psychological, or impossible.
Today, that landscape is changing.
• Regulatory agencies have acknowledged risks, including suicidal ideation associated with finasteride.
• Researchers around the world are investigating the biological mechanisms behind persistent medication-related syndromes.
• New studies continue to explore neurosteroids, inflammation, the gut microbiome, hormones, and other pathways that may help explain these conditions.
Science advances by asking difficult questions—not by dismissing those who are suffering.
Patients deserve to be heard.
Researchers deserve support.
Medicine grows stronger when evidence and compassion work together.
For Henry.
For Conall.
For Romaine.
For Marc.
For every patient still waiting to be believed.
#MoralMedicine #PFS #PSSD #PatientSafety #InformedConsent #MedicalResearch
@pash22 @medicalmodelbri @DOckendenLtd @nottmhospitals @RoyLilley #PelvicMesh
#Primodos
#Valproate
#InfectedBlood
#PIPACTIONA
Scandals occur because mistakes are ignored, lied about, covered up, and moved on from.
For heavens' sake, just stop.
If no one's ever accountable or responsible & there's no redress, where's the motive to change?
@ArturNadol7566 @Beth78806124 Time and again, patients' reports of injuries are ignored until the number of people injured reaches scandalous proportions.
#Mesh
#SSRIs
#Valproate
#PIPACTIONA
#Vaccine
What needs to happen for this to change?
The default is gaslight, patient blame, ignore, cover-up, lie.

@SusanMorgan19 @SharonHodgsonMP Perhaps, maybe #PelvicMesh will be discussed in govt after 2ys since Hughes report? Most #MeshInjured were waiting yrs before the report.
Why aren't the MHRA & NICE being investigated? I don't care about blame. I want to know this won't recur. Scandals galore #PIPACTIONA #PSSD ++
Happy Christmas to everyone, particularly those suffering from a chronic health condition. #ValproateSurvivors #Primodos #PSSD #PIPActionA #IatrogenicallyHarmed

NHS contaminated blood was 'criminal cover-up' - Burnham https://t.co/oyTK0MbIMm by #PIPActionA via @c0nvey
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