Top Tweets for #PNHAwarenessWeek
For #PNH Awareness Week, September 20–27, we are encouraging anyone with PNH to join the PNH Patient Registry at https://t.co/Wo9cOrLtCh!
#PNHAwarenessWeek #RareDisease #PatientRegistry #BloodDisorder
Focus on PNH
#PNHAwarenessWeek
Hear firsthand perspectives on the patient journey, challenges, treatment experiences, and what matters most to those living with PNH. Register here: https://t.co/Lljxr9AkpH
#PNH #PNHPatient #hemoglobinuria
When Joe was first diagnosed with #PNH, he was overwhelmed by the prognosis. Despite this, he was determined to face it head-on. Today, he shares how his encounter with PNH has made him even more resilient to adversity when the odds are stacked against him. #PNHAwarenessWeek
It's the last day of PNH Awareness Week, but it's not too late to take action! Find all the ways that you can bring awareness of PNH bone marrow failure here: https://t.co/rFg94XYR63 @Novartis
#PNH #bonemarrowfailure #PNHAwarenessWeek
As #PNHAwarenessWeek concludes, we reflect on the progress made for the PNH community and the ongoing opportunity to advance patient care. This week, hear from one of our leaders about what motivates her every day to advance care for those impacted by this devastating disease.
It's PNH Awareness Week! Find out more about AAMDSIF Patient and Family Conferences and how we equip patients and families to deal with the rigors of PNH, Aplastic Anemia, and MDS! Info and registration here: https://t.co/C3tvCeLYBA
#PNH #PNHAwarenessWeek
For #PNHAwarenessWeek, we are encouraging anyone with paroxysmal nocturnal hemoglobinuria to join the #PNH Patient Registry at https://t.co/ZHcXJ0yg6B!
Each person’s journey is unique and helps to advance our understanding of #ParoxysmalNocturnalHemoglobinuria
This #PNHAwarenessWeek we continue to focus on our purpose, to draw inspiration from the people living with and caring for those with PNH, and to celebrate the progress that has been made. Learn more about #PNH at https://t.co/kHL4FzCRsb. #WeAreApellis
Our dedication to improving the lives of people living with a #RareDisease is unwavering. This #PNHAwarenessWeek, we stand with @aamdsif to make a meaningful difference for the paroxysmal nocturnal hemoglobinuria community. Follow along as we raise awareness of #PNH this week.
Bald ist es nun soweit: Am 16.09.2023 findet das nun 14. Patienten- und Angehörigenseminar zu #PNH und #AA in Essen statt. Wir freuen uns wieder auf einen spannenden Tag mit Ihnen! @lichterzellen @AAundPNHeV @HamatologieUk @UniklinikEssen @MedEssen #earthquake #PNHawarenessweek
#PNHAwarenessWeek may be drawing to a close, but our work never stops. We continue to support the PNH community, today and every day. Anita Hill, VP, Global Medical Affairs Leader, Haematology, Nephrology, shares how we’re working tirelessly to advance patient care.
Education around #PNH is critical to empowering patients – not just during #PNHAwarenessWeek, but all year round.
Learn more about how Chrissi, Apellis Care Educator, is making a difference for those navigating life with PNH. #WeAreApellis
Aquesta setmana és la #PNHAwarenessWeek, setmana de la #hemoglobinúria paroxística nocturna (HPN), que és un trastorn clonal de cèl·lules mare hematopoètiques que cursa amb hemòlisi intravascular amb tendència a l'anèmia i trombosi.
Bon moment per recordar el #Catlabinforma
It’s #PNHAwarenessWeek – an opportunity to proudly support people living with paroxysmal nocturnal hemoglobinuria (PNH) like Ashley.
Learn more about how Ashley has found a silver lining while navigating life with PNH.
This #PNHAwarenessWeek, and every week, we are committed to supporting people living with PNH, a rare & chronic blood disorder.
Learn more about #PNH from Leigh Clark @aamdsif and efforts to help patients live life beyond their diagnosis: https://t.co/Uh8uQ9kwad
#SupportingPNH
Experiences shared by people living with #rarediseases motivate us every day. This #PNHAwarenessWeek, Jason’s passion sparked our creativity to design our own sneaker concepts to recognize the PNH community.
We’ve recently attended some incredible events with @aamdsif in Buffalo, Detroit and Memphis. Always invigorating to connect with those living with rare blood disorders such as paroxysmal nocturnal hemoglobinuria (PNH). #PNHAwarenessWeeWe’ve recently attended some incredible events with @aamdsif in Buffalo, Detroit and Memphis. Always invigorating to connect with those living with rare blood disorders such as paroxysmal nocturnal hemoglobinuria (PNH). #PNHAwarenessWeek
It’s #PNHAwarenessWeek!
Learn more about the impact of paroxysmal nocturnal hemoglobinuria from a #PNH patient, who is “taking over” the @ ThisIsPNH Instagram page.
Check it out!
As we kick off #PNHAwarenessWeek, hear from Jason, an individual living with paroxysmal nocturnal hemoglobinuria (PNH) who creatively showcases his passion for raising awareness of his condition through custom-made sneakers.
At Apellis, we are proud to support @aamdsif's “March for Marrow” walks.
As our team gears up for #PNHAwarenessWeek, some Apellucians will be marching for #PNH in Virginia and New Jersey.
Join us in our effort to help spread awareness!
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