Top Tweets for #PPA2Deficiency
To learn more about Kathleen's nonprofit, HeartOfPPA2, visit https://t.co/EBq36m5QA1 and follow @heartofppa2
#GeneticTesting #StartGenetic #GeneticTestingActionDay #PPA2Deficiency #PPA2 #RareDiseaseCommunity
I'll forever fight for children like you, who deserve the best chance of survival, the best care and the world to know how courageous and amazing they are. Love Mummy. Xxx #ppa2deficiency #sudc #genetics
We are devastated to say that our beautiful Isabelle died in the early hours of this morning. We are absolutely broken. However, we want you all not to think of her death, but to honour her by living life as she did: fearlessly, joyously & spontaneously.
We are in hospital after another bout of vomiting. The only thing we know to do in this circumstance is to keep her in hospital for the duration of the illness. No cure, no treatment, except fluids and hope. The reality of #ppa2deficiency #raredisease and lack of research.π
We are all so grateful to have our little sunshine girl home and well, and will just have to take it a day/hour/minute at a time. Wishing all a peaceful weekend x #grief #childloss #ppa2deficiency
She's struggling to shake the stomach bug. I'm beside myself but trying to stay calm. It's all so triggering and terrifying. We are being looked after, but I know we are all nervous. Hoping tomorrow is a clear day. ##ppa2deficiency #ptsd #grief
She completed her first gymnastics award today. We started her at the class to help with balance as children with #ppa2deficiency can have issues. She loves it. We have no idea what her future holds, but today was a proud moment that I will treasure! #mitochondrialdisease #sudc
Our story features in @takeabreakmag today. Please buy, share & raise awareness. We will only find treatments and cures for #ppa2deficiency if we push for research & for more answers for families affected by #sudc. For Alexander, for Isabelle and all affected children. @SUDCUK1
Danielle and Leon have selflessly shared their family and their story with families like ours to try and save other children. Please share and help raise awareness. #ppa2deficiency #mitochondrialdisease #rarediseases @MitoAction
Normal service has resumed (standing on something she shouldn't be). I miss my normal levels of parent worry. Will take a day or two for the anxiety to lessen! #grief #childloss #ppa2deficiency
A brief break from the anxiety and some swinging joy. After a rough couple of days (thanks for listening and all the kind comments), today feels lighter. Difficult not to over analyse everything she does & live in fear. Today, we didn't β€οΈ #grief #childloss #ppa2deficiency #sudc
Last Seen Hashtags on Sotwe
omegle
Seen from Singapore
FWB
Seen from Vietnam
mlbb #nsfw
Seen from United States
Breasts
momson((()))*+filter:native_video
Seen from Germany
xlii or #exny or #momson or #nolimit() +filter:native_video
Seen from Mexico
dolcett
Seen from Japan
pawg bbc
Seen from Turkey
ngintipcd
Seen from United States
ΩΨ±ΨΉΨ§Ω)(
Seen from United States
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.2M followers
Barack Obama
@barackobama
119.1M followers
Cristiano Ronaldo
@cristiano
112.6M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
98.2M followers
NASA
@nasa
92.2M followers
Justin Bieber
@justinbieber
91.4M followers
KATY PERRY
@katyperry
88.8M followers
Taylor Swift
@taylorswift13
82.7M followers
Lady Gaga
@ladygaga
74.2M followers
Virat Kohli
@imvkohli
71.7M followers
Kim Kardashian
@kimkardashian
70.3M followers
YouTube
@youtube
68.7M followers
Neymar Jr
@neymarjr
64.6M followers
Bill Gates
@billgates
64.5M followers
The Ellen Show
@theellenshow
62.4M followers
Selena Gomez
@selenagomez
61.9M followers
CNN
@cnn
61.8M followers
X
@x
60.8M followers