Top Tweets for #PRSYM23
#TBT to New Orleans
Had a wonderful time at #CARRA2023 and #PRSYM23 with great colleagues, delicious food, and phenomenal CARRA-oke
@JohnBridgesMD presenting his abstract as a plenary at #PRSYM23 @uabpeds @uabmedicine @UABRheum We are so excited for him to join our #PedsRheum faculty this summer
Excellent update on best practices in childhood onset #lupus by @EmilySmitherman from @uabpeds @UABRheum at #PRSYM23
Dr. Aimee Hersh discusses patient reported outcomes in patient care and research at #PRSYM23:
-There are many PROs, w/ 1 specific for cSLE (SMILEY)
-There are pros/cons to each PRO
-More research is needed, e.g. establishing meaningful change
-They should be part of core measures
Dr. Aimee Hersh presents โPatient-Reported Outcomes: Patient Care and Researchโ at #PRSYM23
#pedsrheum #rheumatology @ACRheum #lupus #outcomes
Maybe not all antibodies are bad ๐คฏ
Some anti-chemokine antibodies may be protective.
Dr. Paul Utz discussing autoantibodies in COVID-19 at #PRSYM23
Last day of #PRSYM23 ๐ญ
It has been a fantastic week of learning, catching up with old friends and making new friends, working together to advance understanding of #pedsrheum diseases, aiming for better therapies and outcomes for our amazing patients ๐ฌ๐งฌ๐ฉ๐พโ๐ฌ๐ฉบ
Such an honor to be able to open up the #PRSYM23 JDM session today among my esteemed colleagues! What a perfect end to a week of research collaboration, education and friends! #CARRA2023 @MontefiorePeds @carrainc @curejm @TamarPedsRheum @NataliaVasCan
2/2 How do you incorporate reproductive health into clinical practice?
-counsel with medications, regardless of age
-talk to patient alone
-adapt 1 key question, e.g. what are you using for birth control?
-be familiar with meds during pregnancy (๐ทs)
#PRSYM23
1/2 Dr. Bonnie Bermas on reproductive health in patients with PRDs:
1. Why is this important?
-use of teratogenic agents
-lot of myths
-pregnancy is better when planned
-majority of teen pregnancies unplanned
-teen pregnancies have worse outcome
#PRSYM23
1/2 Dr. Patience White on transition #PRSYM23
-It is a process
-We arenโt doing well at addressing it. In US, only 20% of youth w/ SHCN received guidance from provider.
-There has been an improvement in #pedsrheum, but still not ideal.
-Lots of opportunity in practice/research
A structured approach will facilitate healthcare transition-it needs to be customized to your institution #PRSYM23 #implementation #transition
Transition is like taking a ride in a plane. โ๏ธYou're aiming for a smoothing landing #PRSYM23 #transition #PedsRheum
1/3 Dr. Lisa Rider provides an update on autoantibodies in JDM at #PRSYM23
Myositis autoantibody testing is recommended for use in clinical practice. Why?
-Abs exclusive to myositis
-Distinct clinical phenotypes by Ab
-Helps w/ prognosis
-Different genetic & environmental risks
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