#PRVprogram - Twitter Hashtag

30 days ago

To date, RPD PRVs have been awarded to 71 therapies, resulting in more than $4.4 billion of non-dilutive, direct funding for drug sponsors. Read more at https://t.co/u5XZZlI9UX #RTWInstitute #PRVProgram

RTWInstitute's tweet photo. To date, RPD PRVs have been awarded to 71 therapies, resulting in more than $4.4 billion of non-dilutive, direct funding for drug sponsors. Read more at https://t.co/u5XZZlI9UX #RTWInstitute #PRVProgram https://t.co/j7HOfCTotE

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Biotechnology Innovation Organization

@IAmBiotech

10 months ago

Kristin's story underscores why Congress must reauthorize the Rare Pediatric #PRVprogram - an essential driver of critical treatments for kids with rare diseases.

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The Rare Disease Company Coalition @RareCoalition

over 1 year ago

Today is #RareDiseaseDay—a day not just for awareness, but for action. As we celebrate progress, we also implore leaders to support the initiatives that keep innovation alive, from restoring the #ODTC to reauthorizing the #PRVProgram. That’s how we truly honor our community.

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EveryLife Foundation

@EveryLifeOrg

over 1 year ago

We’re deeply grateful to @amyklobuchar for her leadership in #RareDisease and efforts to renew the #PRVProgram. With under 2 weeks left before it expires, urge your senator to #Renew this vital program: https://t.co/uzaSdMHMrc

Amy Klobuchar

@amyklobuchar

over 1 year ago

In the United States, 30 million people live with a rare disease, and about half of them are children. As co-chair of the bipartisan Rare Disease Caucus, I have been working to increase research and innovation to find treatments and cures for patients. https://t.co/LIbiMtG7Gh

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EveryLife Foundation

@EveryLifeOrg

over 1 year ago

The Priority Review Voucher Program #PRV is set to expire in ONE WEEK. Families across the nation are urging you to take action to support the #PRVProgram, ensuring the continued development of life-saving treatments! Time is critical—act now to help secure #Cures4RareKids: https://t.co/FKdgm8asQm

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EveryLife Foundation

@EveryLifeOrg

over 1 year ago

Massachusetts-based #RareDisease advocate Jean Walsh breaks it down: If the #PRVProgram changes even one child’s life, it’s worth it. But it’s set to expire in just over 10 days! Tell Congress: Act now to preserve #Cures4RareKids! Learn more: https://t.co/9YaBAZlSUv

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EveryLife Foundation

@EveryLifeOrg

over 1 year ago

Colorado mother & advocate Kate Holler knows how the #PRV transforms children's lives. Congress holds the power to ensure its success. Tell Congress now is the time to renew #PRVProgram! Take Action: https://t.co/ymMhG3Nkpg #Cures4RareKids

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