Top Tweets for #PSPaware
Today we're in Hampshire for a Palliative Care Neurology session led by @boydghosh and @jadedonnelly78.
We're sharing information about the support we can provide to healthcare professionals and their patients with PSP & CBD #PSPAware
Did you know you can help spread awareness by sharing our new Eye Red Flag poster with your local opticians or taking it with you when you visit your ophthalmologist?
Download here: https://t.co/GdMaTkBfQK
#EyeRedFlag #PSP #Opticians #RedFlagPoster #RaiseAwareness #PSPAware
Today’s #MondayMotivation is Florence Bate & friends. Florence, Louis Aric, Miranda and Liam, set out on 20 July to climb Ben Nevis, Scafell Pike and Snowdon in just 24 hours to raise money for PSPA.
They raised £8,872!
Thank you!
#ClimbingChallenge #RaiseAwareness #PSPAware
We're sending a big thank you to Janet Collingsworth!
Janet shared her experience of PSP and how her optician aided her diagnosis with Chat magazine. The article was published last week and shines a light on her symptoms and our Eye Red Flag posters.
Thanks Janet! #PSPAware
You can read more about our online exercise sessions with @theneuroheroes in Edition 3 of PSPA Matters magazine - due out from 9 September!
#PSPAware #TeamPSPA #exercise
Recognising the importance exercise can play in the lives of people living with the PSP/CBD, this year, PSPA has partnered with Neuro Heroes to deliver regular online sessions. Read more:
https://t.co/PHMUmDBQ02
@PSPAssociation
AWARENESS GRANTS DEADLINE APPROACHING!
The deadline for the PSPA Awareness Grants is fast approaching on 31st July & there is £8,000 to award for 2024.
Apply here: https://t.co/QcYKjwM8MK
#PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA
Signing up to donate brain tissues is an individual choice. However, such donations can be valuable to researchers, to learn more about PSP & CBD.
Learn more about Brain Donation here: https://t.co/wdbBL48NU0
#BrainDonation #MedicalResearch #PSPAware #CBDAware #RaisingAwareness
Last year we launched our Awareness Raising Grants. This year we have £8,000 to award and the deadline for applications is 31 July.
For more information and how to apply: https://t.co/QcYKjwM8MK
#PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA
Excited to be hosting the first of our Research Information Sessions today.
If you didn't manage to sign-up to attend the online event, don't worry!
A recording of today's session will be available next week.
#PSPAResearch #PSPAware #Research
Know someone who has been a PSPA fundraising superstar? Nominate them for the PSPA Fundraising Award to celebrate their efforts.
Nominate here: https://t.co/g1al0Txr2s
#PSPA30 #PSPAAwards #NominateToday #AlwaysAmazing #PSPAware #ProgressiveSupranulclearPalsy
Last week we visited @RowcroftHospice for their open day for people living with neurological conditions.
Helpline Care Navigator, Cathy Moughton, was on hand during the event to speak to families living with a diagnosis of PSP or CBD #PSPAware #neurologicalconditions
You can still watch PSPA featured in the programme produced by @ITNBusiness and @TheBrainCharity .
Bruce and Neda share their experience of living with CBD.
https://t.co/d8TYUtUxMd
#insideneurology #PSPAware #corticobasaldegeneration #rarediseaseday #raredisease
Nominations for the PSPA Awards are open! Do you know someone who should win the Always Amazing Award for someone living with PSP?
Nominate here: https://t.co/g1al0Txr2s
#PSPA30 #PSPAAwards #NominateToday #AlwaysAmazing #PSPAware #ProgressiveSupranulclearPalsy
This #WomeninScienceDay we are proud to showcase the amazing doctors, nurses, researchers and therapists we work with to help create a better future for everyone affected by PSP & CBD.
#PSPAware #PSPAware #TeamPSPA #MedicalHeroes #WomenInScience
Exciting news. @AmylyxPharma Clinical Trial update - first participant recruited. The trial aims to test if AMX0035 can effectively slow the progression of neurodegenerative diseases such as PSP.
More Information: https://t.co/mNoJ9NURyD
#MedicalTrial #PSPResearch #PSPAware
PSPA has secured an advert in the latest edition of @CollegeOptomUK Acuity Magazine.
Featuring PSP eye red flags for optometrists to look out for during annual eye examinations
https://t.co/JgsPOdOn64
#AcuityMagazine #EarlyDetection #PSPAware #EyeRedFlags #PSPSupport
This week’s #MondayMotivation is Megan, our Research Coordinator.
Megan is on the London Marathon Team and has raised £820 for PSPA so far! Thank you!
Sponsor Megan: https://t.co/N3nYSc91Xq
#PSPResearch #MedicalResearch #LondonMarathon #CambridgeHalfMarathon #PSPAware
A quick reminder to watch the @ITNBusiness and @TheBrainCharity programme Inside Neurology: Our Unique Brains that launched earlier this month.
https://t.co/YwXhDnAwlT
#InsideNeurology #ITNBusiness #OurUniqueBrains #PSPAware #CBDAware
This week's #MondayMotivation is Janet and her annual coffee morning.
The coffee morning is held yearly in memory of Janet's husband, Harry. This year, she hosted the coffee morning in October and raised a fantastic £400.
#CoffeeMorning #InMemory #PSPAware #FundraisingHeroes
Volunteer Louisa Roberts West, took a PSPA Eye Red Flag poster to her local opticians to raise awareness of the condition. @RawlingsOptic requested some leaflets for their staff and wrote a blog on their website. Thank you.
#EyeRedFlags #Opticians #PSPAware #PSPSupport
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