#PVNHaware - Twitter Hashtag

over 7 years ago

#MarchOnPVNH Day 26 = Epilepsy. 1 in 26 people in the #US will develop #epilepsy; 1 in 100 in #UK & in #Canada live with it. It's the most #common #symptom, affecting up to 90% of our #PVNH members. Spread the word about #epilepsyawareness on #PurpleDay. #PVNHaware #OurPVNHlife

PVNHsupport's tweet photo. #MarchOnPVNH Day 26 = Epilepsy. 1 in 26 people in the #US will develop #epilepsy; 1 in 100 in #UK & in #Canada live with it. It's the most #common #symptom, affecting up to 90% of our #PVNH members. Spread the word about #epilepsyawareness on #PurpleDay. #PVNHaware #OurPVNHlife https://t.co/mFAszSEnJg

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PVNH Support @PVNHsupport

over 7 years ago

February 28 is Rare Disease Day. Help us raise awareness for #PVNH, #SBH and all forms of neuronal heterotopia disorders. . . . #PVNHaware #myPVNHlife #OurPVNHlife… https://t.co/028I9wiLyT

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Yolaine Dupont @vangroovymom

about 8 years ago

Thank you is never enough. Every #dollar #raised goes to #PVNHresearch so #PVNHfamilies can get #better #diagnosis & #improved #care. Last day. Make it count!! Can't wait to see how much we raised #together! #RedTruckbeer #regalbeaglekits #beerforacause #inmemoryofElla #PVNHaware

vangroovymom's tweet photo. Thank you is never enough. Every #dollar #raised goes to #PVNHresearch so #PVNHfamilies can get #better #diagnosis & #improved #care. Last day. Make it count!! Can't wait to see how much we raised #together! #RedTruckbeer #regalbeaglekits #beerforacause #inmemoryofElla #PVNHaware https://t.co/E3vk31GJkf

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