Top Tweets for #PatientCompensation
📢Building on the guidance our colleagues @CIHR_IG created on #Compensation for #PatientPartners, @CIHR_IMHA has just released its own guidance here: https://t.co/Dzi904qELh. #PatientEngagement #PPI #PatientCompensation
Really irks me when an org has a #PatientPartner's info needed to issue an honorarium, but they 'need' patient partners to fill out *their form.* With. All. Of. The. Info. They. Already. Have. Pls, just do the work to take the burden off patient partners. #PatientCompensation /1
At Medibanx, we value your contributions to clinical research. That's why we deposit compensation into your Medibanx wallet each time you approve access to your data. Your input drives medical advancement. #Medibanx #ClinicalResearch #PatientCompensation
It was a topic we felt researchers and orgs weren't addressing in the literature/formally. Our only support was each other, our belief in it & @jasonawolf's agreement to publish it #OpenAccess. 🙏 to Jason, @seastarbatita @PatientCommando & K. Strain. #PatientCompensation .../2
Another day of chasing down an honorarium for a webinar done ... a month ago. Which means for work I did before that. Why do we make this stuff so hard for people who are asked to give/share their time and expertise? #PatientEngagement #PPI #PatientCompensation
Seems like a good time to re-share this tweet thread about #PatientPartner #Compensation or #Payment. Always happy to hear others' thoughts & have helpful resources added as well!👇 #PatientEngagement #PPI #PatientCompensation
I spend a lot of time thinking and writing about, and advocating for #PatientPartner #compensation or #payment as part of research or other teams. I'm going to share some resources and thoughts as I've been asked lately about this 🧵.../1
A reminder that usually #PatientPartners on a #Research team or project are the ones there with motivations other than 'this is my job' or 'this is part of my training,' and they're often not paid for their time, expertise or skill. #PatientCompensation #PatientEngagement #PPI
Nice to see institutions adapt approaches to patient and public compensation and payment so we can meaningfully engage communities in our work. #PatientCompensation #PaymentforPPI #PatientEngagement
We know that administering payments for public involvement can be complicated, so we’ve developed this guidance alongside @HRA_Latest & @ResearchWales to support organisations with this.
Find out more & share your feedback on the guidance with us: https://t.co/0VhxRuDC05
We're just getting started but our team's website now has our second plain language summary about our paper on barriers and solutions to #patientcompensation #paymentforPPI with @TO_dpr @KDCobey @ProulxLaurie @ShobaDawson @martinusdewit Check it out: https://t.co/VjzhAFtBbE
Preprint "Identifying Potential Barriers and Solutions to Patient Partner Compensation (Payment) in Research"- https://t.co/QtIy7qWXYS. Really grateful & proud of this collab w @KDCobey @ProulxLaurie @martinusdewit @ShobaDawson @toupinak #PatientCompensation #PaymentForPPI 1/2
One principle is Equity: Who owns the space? Is it your job?
Another: Differentmotivations ie a paper or job tenure And: Respect for vulnerability, Commitment, Removing Barriers so other voices can be heard. @TO_dpr #patientcompensation
Just starting our Member’s Webinar on #patientcompensation with @TO_dpr presenting. Why don’t we talk about this more? First paper published in 2018 with @PatientCommando @seastarbatita @couragesings Its been downloaded 6000 times. Most recent paper 3000x in last few months
We know there are many barriers to compensating patients, but what can institutions do to make this process easier and simpler for researchers? Any thoughts? #PatientEngagement #PatientCompensation #PaymentforPPI
#PatientPartner #Compensation💰in #Research - a 🧵 on potential barriers & solutions, & cheeky but realistic scenarios for the team to consider (from https://t.co/98J29Uri3p) cc @ProulxLaurie @KDCobey @toupinak @ShobaDawson @martinusdewit .../1
@TO_dpr Outstanding thread on #PatientCompensation !! And great slide deck too. May I have permission to use slides? I would properly credit authorship of course.
A fantastic article about #PatientCompensation in research and the reflection questions with parallel scenarios are perfect, and would be useful in discussions with people planning #ConsumerEngagement in health services as well.
#OpenAccess
#PatientPartner #Compensation💰in #Research - a 🧵 on potential barriers & solutions, & cheeky but realistic scenarios for the team to consider (from https://t.co/98J29Uri3p) cc @ProulxLaurie @KDCobey @toupinak @ShobaDawson @martinusdewit .../1
Above 🧵 on #PatientCompensation in #Research (patients as partners NOT participants) is from our recent paper https://t.co/98J29Uri3p. Some references offering solutions in it & always happy to hear of any I don't know about. #PaymentForPPI
🚧 Barrier 3: Policy guidance from funders - there are few concrete examples of monetary amounts for #PatientCompensation - leaving institutions, researchers and #PatientPartners unsupported ....and on their own to figure it out🤔 .../5
Thinking 🚧 Barrier 2 👆to #PatientCompensation isn't a big deal? Here's your parallel scenario 👇to consider if you're another member of the research team...would you go for this?
🚧Barrier 2: Institutional inflexibility - Trying to 'fit' #PatientEngagement and #PatientCompensation in to existing systems & processes (with limited flexibility for change) that are used for staff, vendors, etc. .../3
Anyone else see the irony in a #PatientPartner being invited to contribute to a project about #PatientCompensation in research....and being told there is no payment/honorarium for this work? ...we've got work to do here. #PatientEngagement
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