Top Tweets for #ProDGNE
We kicked-off the #ProDGNE International meeting on #GNEMyopathy 🚀
Today's talks:
👉#PatientPartnership in #ProDGNE & #RareDiseases @Michi_Onali
👉@EJPRareDiseases & the upcoming ERDERA @DariaJulkowska
👉The @eurordis Open Academy @RoselineFavre #patientinvolvement @iaiaraia
#ProDGNEmeeting2024
📌Pazienti, ricercatori e stakeholders da tutto il mondo🌍si incontrano per discutere gli aggiornamenti sulla #MiopatiaGNE e illustrare i risultati del progetto #ProDGNE finanziato nell'ambito di #EJPRD
👉https://t.co/0drgIijtnM
⤵️
https://t.co/reCQB1F2Zr
👏Big congratulations to Dr. Andreas Roos!
Andreas leads the proteomic studies in #ProDGNE and contributes to the multi-omic efforts of our consortium toward the discovery of #biomakers in #GNEMyopathy, an ultra #rare #muscle disease
🎊Congratulations Dr. Andreas Roos on winning the @WorldMuscleSoc President’s Prize for Emerging Myologist of the Year! The prize highlights Dr. Roos’ exceptional portfolio of recent work, in particular his study on FILIP1 variants.
🔗https://t.co/zqtKRP9pJV
📸: @WorldMuscleSoc
Uau! Reflecting on a super productive summer with #ProDGNE, engaging in insightful conversations about #GNEMyopathy! We are grateful to @LochmullerLab for hosting our dynamic internal #ProDGNEmeeting2023 in Ottawa and grateful to all Consortium colleagues.
A busy summer for #ProDGNE filled with great discussions on #GNEMyopathy🧬!
Big thanks to @LochmullerLab for hosting our internal #ProDGNEmeeting2023 in Ottawa 🇨🇦last week and to our amazing advisors and keynote speakers Stella Mitrani-Rosenbaum and David Wishart @WishartLab
I had a great time presenting my work on modes for GFPT1-CMS to this fantastic group!
Thank you @LochmullerLab for the opportunity to listen and learn from the @ProDGNE team!
I am looking forward to hearing all the updates as the project progresses. #ProDGNE #GNEMyopathy
A busy summer for #ProDGNE filled with great discussions on #GNEMyopathy🧬!
Big thanks to @LochmullerLab for hosting our internal #ProDGNEmeeting2023 in Ottawa 🇨🇦last week and to our amazing advisors and keynote speakers Stella Mitrani-Rosenbaum and David Wishart @WishartLab
A busy summer for #ProDGNE filled with great discussions on #GNEMyopathy🧬!
Big thanks to @LochmullerLab for hosting our internal #ProDGNEmeeting2023 in Ottawa 🇨🇦last week and to our amazing advisors and keynote speakers Stella Mitrani-Rosenbaum and David Wishart @WishartLab
Workshop on Eurocarb21!
What better occasion & place to hold the GLYCOTwinning Workshop!
✅Leading international symposium in Glycosciences
✅>600 researchers from all over the 🌐
✅At "Maison de la Chimie", in the 🫀 of Paris
#glycotwinning #glycoscience #Eurocarb21 #prodgne
🚚Delivery day for #ProDGNE and our team @unimedizinhalle!
🛫Next Destination: Cardiff
ManNAc-6-phosphate will be used by the group led by @pertusati to synthesise and test our #prodrugs
#GNEMyopathy #EJPRD #JTC2020
It's #RareDiseaseDay!
Join our #ProDGNE team of patients and researchers from Canada, Germany, Italy, Portugal and UK in raising awareness for ALL #RareDiseases🌍
👉ProDGNE is a #EJPRD funded project working on pre-clinical #research for #GNEMyopathy, a #rare 🧬#muscle disease
Our #ProDGNE monthly meetings are back for the New Year!
This month we gathered partners from Canada, Germany, Italy, Portugal and UK to discuss the ongoing work on our #prodrugs
#EJPRD #JTC2020 #GNEMyopathy #RareDisease
For our last #ProDGNE meeting of the year we had the pleasure to meet with @KamRedlawsk, disability advocate, ID Designer & writer who told us more about her work and #GNEMyopathy through her art and experience.
Follow https://t.co/PXvMUu6aEg for more updates on Kam's book!⤵️
Great times for our #ProDGNE partners from Germany and Canada!
Vanessa Hagenhaus, MD/PhD student from @unimedhal in Halle ventured over to Ottawa to learn from Jarred Lau about how the @LochmullerLab is modeling #GNEMyopathy in #zebrafish 🐟
#RareDisease #NMD #EJPRD #JTC2020
#ProDGNEmeeting2022
🔴LIVE
We are back from a lovely lunch break and very happy to start the afternoon session with
@TeresinhaEvange who is now presenting the role of @euro_nmd in supporting research for #rare #NMDs
#ProDGNE #GNEMyopathy #RareDisease #NMD
#ProDGNEmeeting2022
🔴LIVE
Great presentation on #SialicAcid biology from #ProDGNE partner Rüdiger Horstkorte @unimedhal
#ProDGNEmeeting2022
🔴LIVE
We continue with @pertusati from @PharmacyCU presenting the focus of #ProDGNE ➡️ #Prodrug approach in drug discovery: applications of phosphoramidate technology
#GNEMyopathy #RareDisease
#ProDGNEmeeting2022 has kicked-off! 🚀
🔴 LIVE from Lisbon
Our morning session has started with:
🟣 Welcome from @QuintelaVideira & FCT NOVA Director Virgilio Cruz Machado
🟣 Patient Partnership in #ProDGNE,@Michi_Onali
🟣 #GNEMyopathy: a clinical perspective, @LochmullerLab
Fab lunch with first arrivals of the #ProDGNE team in Lisbon 🇵🇹!
🚀#ProDGNEmeeting2022 is kicking off tomorrow and we are really looking forward to meeting with all participants!
#GNEMyopathy #RareDisease #EJPRD #JTC2020
📣Registration is still open!
#ProDGNE 1 day meeting in person
ProDGNE & discuss pre-clinical #research on #GNEMyopathy
Deadline: 17 May
@ProDGNE @Michi_Onali #rarediseases #malattierare @EJPRareDiseases #UNIAMO #EURORDIS
📣Registration is still open!
#ProDGNE is finally meeting in person✈️and invites all stakeholders, patients, researchers, HCPs to join us for a 1 day meeting where we'll present #ProDGNE & discuss pre-clinical research on #GNEMyopathy
ℹ️https://t.co/8sBFe4qwrY
⏳Deadline:17 May
📣Registration is still open!
#ProDGNE is finally meeting in person✈️and invites all stakeholders, patients, researchers, HCPs to join us for a 1 day meeting where we'll present #ProDGNE & discuss pre-clinical research on #GNEMyopathy
ℹ️https://t.co/8sBFe4qwrY
⏳Deadline:17 May
⏰Final call to submit your abstract #ProDGNEmeeting2022
🔜Deadline is TOMORROW 10th May at 11:59PM CEST. Don't miss out on the chance to join us and present your work on #GNEMyopathy #SialicAcid or related themes.
Learn more about #ProDGNE and submit 👉https://t.co/gRz1Cr34h5
#ProDGNE invites you to submit an #abstract for the #ProDGNEmeeting2022!
➡️This is an opportunity to present your work on #GNEMyopathy, #SialicAcid or research of relevance to the programme and learn recent developments in #GNEM
⏳Deadline: 10/05/2022
👉https://t.co/gRz1Cr2wrx
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