Top Tweets for #ProgressiveCondition
Not a great day hearing your lung function test has declined and results of a sleep study revealed 5 cluster episodes of SATs being in the low 80's!!
@MDUK_News #bravegirl #progressivecondition #LCMD #LMNA #CMD
Be brave and seek adventure.
Better off Adventures
#musculardystrophy #progressivecondition #wallclimbing #inspirationalquotes #disability #challengeyourself @MDUK_News @ndawards @WellChild @ChildofBritain @PrideofSport @wellsjournal @VisitSomerset #betteroffadventures
Day 9 of my 30 day physio challenge helping those shielding from #omicron #covid and raising medical research funds for @MDUK_News
Please help show your support and donate.
https://t.co/pqftWCklhO
#positiverolemodel #childadvocate @cbbc #progressivecondition #determination
Imagine you are dragged by a monster gradually toward a deep hole ,people don't see you though they are looking closely at you and don't hear you though you are shouting loudly to them for help .
#chronicillness
#ProgressiveCondition
Never say never, believe in yourself and make it happen.
#whatmusculardystrophy!
#CarmelaCan #thisgirlcan #MDfighter #fighttostaystrong #fighttostaymobile #lifelimitingcondition #progressivecondition #corshamgymnasticsacademy @BritishGymfig @MDUK_News
My 100 day challenge which ends this weekend wasn't part of #CaptainTom100 but Sir Tom Moore was certainly part of my drive to carry out this tough challenge. Thank you @captaintommoore for inspiring me and others. #lifelimitingcondition #progressivecondition @MDUK_News
Only 5 more days Carmela. Last challenge on Sunday 🎉 We are going to miss your daily tweets. #100daychallenge #MD #fundraising for #research #wonderwoman @MDBloggersCrew @sky_badger @WhizzKidz @MDStyleBloggers @MDSupportCentre @MD_Trailblazers @kidztoadultz @Act4Kidz @VarietyGB
Absolutely loved my first ever #hippotherapy session today. My core has got weaker since RDA stopped a year ago due to Covid so mummy has found an alternative. #NeverGiveUp #fighttostaymobile #progressivecondition #weakmuscles @MDUK_News #equestrian
I picked up my new upgraded powerchair today. Due to growing, getting weaker and spine curvature sensitivity over bumpy paths, I needed a powerchair with suspension and extra seating support. #progressivecondition #raredisease #lcmd @MDUK_News @rarediseaseuk @BillyFootwear
A lovely sunny day for a bit of physical therapy fitness training on my Frame Runner #fighttostaymobile #fighttostaystrong
#focusonyourabilitynotyourdisability
#musculardystrophy #progressivecondition #lifelimiting
@Quest_88 @Parasportuk @ParalympicsGB @Paralympics @Nike
Day 48 of my #150Challenge raising medical research funding for my rare life-limiting condition with @MDUK_News my sponsor link is
https://t.co/64vsdZYcGF #lifelimitingcondition #progressivecondition #brave #determination #NeverGiveUp #helpme
A very tired Carmela whom you normally see this very smiley upbeat kid who strives to spread awareness of her cruel wasting condition but all is good with dog Tinker by her side. ❤
#lockdownlife #fatigued #tired #somedaysarehard #musculardystrophy #progressivecondition
Day 40 of my #150Challenge raising funds for @MDUK_News https://t.co/64vsdZYcGF #MusclesMatter #lifelimiting #progressivecondition
Carmela has had a tough week with daily tears, muscle pain, joint discomfort and extreme fatigue. Yet you'll all just see her inner strength through her gorgeous smile.
#progressivecondition #lmnacmd #brave @RareDiseases @rarediseaseday @rarediseaseuk #childofcourage #courage
Day 36 of my #150Challenge raising funds for medical research in to my rare life-limiting condition with @MDUK_News
https://t.co/64vsdZYcGF #MusclesMatter #progressivecondition #PositiveRoleModel #childofbritain
Although you see Carmela as a very happy upbeat little girl, this is the reality of fighting a war behind closed doors. Carmela has been in tears all week and this is the reason.😪
#raredisease #awareness #progressivecondition #pain #mentalhealth
https://t.co/XetCGHtMtX
Muscular Dystrophy keeps dropping challenges at me! Today I picked up leg gaitors I have to wear during the night to stop me sleeping in a foetus position causing joint contractures. Sleeping isn't going to be fun 😪
#progressivecondition #crueldisease #lifelimitingcondition
Just another couple of hospital checks today on my heart and legs. #progressivecondition #riskofsuddenheartattack #jointcontractures #lifelimitingcondition
Why raise a princess? When you can raise a warrior! Thank you to these who have helped give me extra strength to get through a tough year.
@DCWonderWoman @WonderWomanFilm @GalGadot @LillyAspell @PattyJenks @warnerbros
#lifelimitingcondition #progressivecondition #LMNACMD
It's now day 11 of my festive charity and I've had no-one on twitter who has taken part yet 🥲. My muscles are wasting away but I'm determined to help children like me have hope whilst I can still move. #lifelimitingcondition #progressivecondition #LMNACongenitalMuscularDystrophy
There must be some people who would like to help me Please!! Can you show me how you Decembell the festive way and help me raise awareness of my super rare type of Muscular Dystrophy? I've already lost the muscle ability to raise my arms and hold. #DecembellChallenge #TheLMNAway
Thank you so much to Hannah at Bumble Bee Physio for supporting my #DecembellChallenge #TheLMNAway #MusclesMatter
#progressivecondition #lifelimiting #musclewastingdisease #LMNACMD
@MDUK_News
@CureCMD @thismorning https://t.co/8alH068zp2
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