Top Tweets for #PwALS
Have you ever heard of an #ALS patient able to stand out of his wheelchair unassisted? @BellinaMatthew who received 7 #NurOwn doses, could!
@US_FDA @FDACBER @DrCaliff_FDA Please #ApproveNurOwn! #PWALS need #NurOwnNow!
#NurOwnWorks #NurOwnPreservesFunction
On #GlobalMNDAwarenessDay some of us got together for blue cupcakes courtesy of Sally! The rest of the @Ngo_Lab @Steyn_Lab were busy across different buildings and different campuses, working with #pwALS and on #experiments
@AndrewTosolini @leanne_jiang
#NurownWorks and should be approved ASAP to treat all #PWALS as flawed scale errors should NOT obstruct safe and effective treatment for ALS patients. #EndALS @US_FDA
@RepJenniffer @RepChuck @RepDavids @SenatorDurbin @chairmang @ChrisCoons @BillCassidy @SenJohnThune
๐ ๐ฅผ Data data data! ๐งฌ ๐งช
Exciting day as we join the National Institute for #MND Research, uniting with collaborative researchers and #pwALS to determine data priorities and connectivity. Let's drive impactful research for the ALS community by prioritizing data and fostering collaboration! ๐ช #ALSResearch
Global #ALSAwarenessDay: The Neuro is playing a major role in a Canadian #OpenScience initiative, creating the most detailed picture of #ALS to help guide research. #PwALS can contribute by sharing their unique clinical portrait. https://t.co/hsrRXFE5aU. #ALSMNDWithoutBorders
At #ENCALS2022, a team from the CRU presented research on the barriers experienced by #PwALS on participating in #clinicaltrials which showed that more attention is needed to develop study designs that incorporate community feedback and minimize obstacles. #ALSAwarenessMonth
A gentle reminder to #ENCALS presenters - please stop using โsubjects and ALS patientsโ to describe participants and volunteers in your study - just say people with ALS #pwALS #ENCALS2022
#GrantRant Read the article cited. ๐๐It is spot on. ๐๐This is our real #ALSlife. Everyday. Cue #TheWho #Wewontgetfooledagain I just hope thatโs right. Meanwhile, NOTHING changes for #PWALS here or worldwide. #ENDALS #ENDMND #DYINGWAITING Disappointed, not surprised.
What happens between yesterday and an FDA decision?
ALS groups to the FDA and drug sponsors: โWe wonโt be played againโ https://t.co/EnfFf1ePFa via @statnews
Vas-y Alec, sors-nous ton gros calibre ! #pwals
See you tonight at Paragon Gallery on the PCC Cascade Campus 5:30 for the opening reception for Mรณnica Mayer! #mayerpdx2018 #monicamayer #mรณnicamayer #pwals
Hey Twitter! We have an Instagram! Follow us to see more images of our upcoming week with Mรณnica Mayer! #pwals #monicamayer #eltendedero #feminism #feminismo #mayerpdx2018 #activismo #artactivism
Cuban American interdisciplinary artist Ana Mendieta is one of our favorites! Read about her unapologetically feminist works here.
#anamendieta #feminism #pwals
https://t.co/58P97Iv7ss
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