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#MDA's Ambassadors are pivotal to our mission: empowering people living with #neuromuscular disease to live longer, more independent lives. Get to know our 2025 MDA National Ambassadors, Lily S. and Ira Walker, in our latest #QuestBlog: https://t.co/O8Z50dB5RQ
At the end of 2024, the @USDOT released a final rule aimed at improving the #AirTravel experience of wheelchair users. MDA Advocacy team members Shannon Wood and Mark Fisher take us through the improvements in this #QuestBlog: https://t.co/uz1dJSOjwE
New therapeutics on the horizon provide hope for people living with #Duchenne #MuscularDystrophy (#DMD).
Check out this #QuestBlog to learn more about promising therapies in development: https://t.co/zzdWIXGhcu
Check out this #QuestBlog with MDA’s Executive Vice President, Public Policy & Advocacy, @PMelmeyer, and learn more about the convening of the Neuromuscular Advocacy Collaborative to align on legislative priorities for 2025: https://t.co/VypMl6z2Hf @MDA_Advocacy
The #Thanksgiving season serves as a reminder to focus on gratitude and appreciation, but practicing gratitude habits year-round has incredible benefits to your well-being. These seven practices can help you get started. Read more in our #QuestBlog: https://t.co/uBUGy9JZpc
#CMTawarenessMonth is the perfect time to dive into the latest research and updates on #CharcotMarieTooth (#CMT). Explore our #QuestBlog, where we break down advancements in understanding #CMT, #ClinicalTrials, & what these updates mean for the community: https://t.co/dThJKdEY0d
In her recent #QuestBlog, @MindyHSpeaks highlights the importance of authentic #DisabilityRepresentation, and #GoodBadThings delivers just that. Get your tickets for the September 20-22 virtual release here: https://t.co/dCNqo1AJyC
https://t.co/tye3WLFz60
Living with a #neuromuscular disease can make staying active challenging, but #AdaptiveExercises can help manage symptoms and improve independence. Discover exercises that fit your body and mobility. Learn more in our #QuestBlog: https://t.co/L0HmYk78OY
Sumukha Terakanambi, an MDA Ambassador living with #DMD, shared his experience at the 14th Annual Disability Justice Seminar, emphasizing the critical need for #AccessibleVoting. Read more in our #QuestBlog: https://t.co/3f9qtS96cU
Ben Lou, a rising senior at @MIT who lives with #SMA, is breaking boundaries in quantum physics, mathematics, and philosophy – and in the way that the world views people living with disabilities. Read more in our #QuestBlog: https://t.co/PpiMp6JgfJ #SMAawarenessMonth
Kenzie Graves was the 5th infant in the U.S. to receive #GeneTherapy for #SMA. Her parents share their journey with early detection through #NewbornScreening, making treatment choices, and life today in this #QuestBlog: https://t.co/f1VvGIK4jM @sydtotheknobel #SMAawarenessMonth
Treatment with exon skipping therapies makes the effects of #DMD less severe for some people with the disease, and new generation therapies on the horizon provide hope for increased efficacy and improved disease management. Learn more in this #QuestBlog: https://t.co/hMm13AGhPK
Chris Anselmo, who lives with #LGMD, finds fulfillment and positive change through his new writing endeavor, where he shares insights on overcoming adversity. Read more about his journey in our #QuestBlog: https://t.co/QCzwiNwRud
SELENON (SEPN1)-related myopathy is a rare congenital #neuromuscular condition characterized by slowly progressive axial (trunk and head) muscle weakness, early-onset rigidity of the spine, scoliosis, and respiratory insufficiency. More in our #QuestBlog: https://t.co/ciJXS8P1ma
Concerts and sporting events can be rewarding adventures, but #accessibility can complicate the journey. MDA Ambassador @justinjaylo24, who lives with #LGMD, shares how his family prepares for these outings in his #QuestBlog: https://t.co/ruWOaPIISf #AccessibleEvents
Researchers at @EdgewiseTx are seeking adults living with #Becker #MuscularDystrophy (#BMD) to participate in a global Phase 2 pivotal study to evaluate the safety and efficacy of sevasemten in adults. Learn more in this #QuestBlog: https://t.co/y2buMq3E30
#MDA Ambassador Matt Curcio, who lives with Colagen 6 Related Dystrophy, celebrates #FathersDay by sharing the joy, love, and lessons in #AdaptiveParenting that he has found as a father. Read more in this #QuestBlog: https://t.co/ux81Vd9FDL
Scientists are still trying to find out what causes #autoimmune #neuromuscular diseases, but breakthroughs are leading to more treatment options than ever. Read more in this #QuestBlog: https://t.co/QJ5G8wipfG
Thanks to #MDA advocates, this year has brought exciting improvements to #AccessibleAirTravel. The @MDA_Advocacy Team shares news from Washington D.C. Read more in this #QuestBlog: https://t.co/WfjW2HWpdH
The biggest adventure in life is to live your dreams, even if you have to ask for help. #MDA ambassador Travis, who lives with #SMA, shares his story! https://t.co/2t5j5f1Gjy #QuestBlog
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