Top Tweets for #RARERevolution
Meet Jenny Ousbey, founder of OVID Health and a true Health Change Maker. Discover her inspiring journey in RARE Revolution insider: https://t.co/7sd3jIfPnJ #WomenInRare #HealthChangeMakers #PatientAdvocacy #OVIDHealth #RareRevolution
๐ IT'S LIVE! ๐ RARE Revolution, the B2B life sciences & rare disease publication, is here! Access exclusive insights & our AI library: https://t.co/UTicjsCwX7 #RARERevolution #LaunchDay #RareDisease #Innovation #GoLive #RareDiseaseAI #LifeSciences
๐ A huge THANK YOU to #RareRevolution for this platform to raise awareness on #RareDiseaseDay. Together, weโre creating a brighter future for the rare community! Thanks @HavasLifeLondon for a great pro bono partnership! Please follow us at @Unique_charity #Uniquecharity
Join us to raise awareness for mast cell diseases on 20 October annually: https://t.co/zg6dLOkYAQ
(Mast Cell Diseases Community Mosaic based on artwork by Heather Poston)
#RareDisease #RarelyDiagnosed #Mastocytosis #MMAS #MCAS # HAT #RareDiseaseDay #RareRevolution
"Mastocytosis, Monoclonal MCAS and Mast Cell Dieases - what are they? Find out more at https://t.co/zg6dLOkYAQ
#RareDisease #RarelyDiagnosed #Mastocytosis #MMAS #MCAS #HAT #RareDiseaseDay #RareRevolution"
Couldn't agree more! ๐ Clinical trials drive real progress for rare disease treatment, and the Irish #RareDisease community has been advocating for change every step of the way. Together, we're making strides! #RareRevolution #TogetherForRare #ResearchMatters
Welcome news - Clinical Trials improve the lives of people living with rare diseases, by enabling development of new treatments (drugs, devices, procedures & processes). Without trials healthcare services comes to standstill. @rare_trial @cancertrials_ie @HRCIreland @rachsail
Thank you @thegr8chalupa for sharing my message and for the warm hug! So wonderful to meet you in person today. Keep fighting the fight. We are right behind you #patientrevolution #rarerevolution
"We are NOT waiting to be invited to participate in our own healthcare." @SimplyKristyD at #swaayhealth #patientrevolution #rarerevolution
"We are NOT waiting to be invited to participate in our own healthcare." @SimplyKristyD at #swaayhealth #patientrevolution #rarerevolution
"Navigation of the healthcare is broken for all of us. More than ever, it's time for a #rarerevolution & #patientrevolution." A heartfelt CTA from patient & caregiver advocate @SimplyKristyD ๐๐๐
#swaayhealth
@CareersKristy setting the tone for #SwaayHealth Live 2024 by delivering the opening Patient Perspective keynote - Reminding us why and for whom we do what we do. #RareRevolution #HITMC
Fantastic #GGSummit closing plenary session! A few takeaways:
Sense of hope through connection.
We can accomplish a lot of things, together.
See the value you bring to the conversation.
Powerful.
Thank you, @SusannahFox! ๐
#WeekInRare
#RareRevolution
#RebelHealth
Looking forward to sharing the #RebelHealth backstory today at the @GlobalGenes Rare Advocacy Summit
Please read & show some love & grace to โฆ@OnceUponAGeneโฉ!
โI choose to drive all around because that is how my life is. That is how my emotional journey has been. That is how rare disease isโ
#patientvoice #caregivervoice #rarerevolution https://t.co/RWPKtlvi5F
Discover RARE stories, like Alan's, within the pages of our 2023 Spring Edition on #Neurology.
Coming VERY soon.
#RareDisease #RARERevolution
Blatant plug to #CharityHour
Contributing to Rare #Neurology edition from @RareRevolutionM coming very soon ! at https://t.co/HS3T1qMYCz
#Ataxia #RareDisease Many in the rare disease world will know Alan Thomas, the founder of @Ataxia_and_Me , by his hashtag #AlanEverywhere.
@SimplyKristyD The #RareRevolution is on the horizon, my friend. Rare patients & caregivers in particular can bring forth perspectives from a place of experience that few others can. There are powerful insights in the rare diagnostic odyssey and journey. We just need to include them! #vive2023
@hcldr @EMoriartyWade @JamieRoger8 @K_SalemOaks @H_SalemOaks Wonderful chat, all! A heartfelt thanks to each of you. It's been an awesome #RareDiseaseDay2023 & a full #RareDisease month. Turning the calendar is equal parts sad because this is over, exciting because the #RareRevolution will continue, & a relief because I'm exhausted! #hcldr
@ADanGrenier @hcldr Yes! And itโsโฆa lot. A lot, a lot. Glad we connected here, & also glad we have opportunities to have our rare voices heard. Just need to keep the #RareRevolution train moving! #hcldr
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