Top Tweets for #RUDYstudy
Today the #MPFTResearch team are supporting #RareDiseaseDay by highlighting the RUDY Study and inviting patients with rare diseases across all ages to take part☑️
📩If you'd like more information, please email [email protected]
#RUDYstudy #RareDiseaseDay2024 #Research
It’s important to learn as much as we can about Rare Diseases so we can improve care. That’s why Registries like the Rudy Study are so important. You can sign up here: https://t.co/yvQ8xwSjae #RareDiseaseDay2021 #RareDiseaseDay #RudyStudy
On ‘Rare Disease Day’ I need to share my story of Hypophosphatasia or HPP. https://t.co/QGwBjNOPi4.
#hpp #hypophospatasia #softbonesuk #rudystudy #rare #rarediseaseday2020 #metabolicsupport #showyourrare #tellyourstory #iamnumber17
Excellent news - One of @RUDY participants is a "changemaker" within #IAmNumber17 This is a campaign to help the voices of those with rare diseases be heard, brought to you by Takeda, together with 13 rare disease patient groups from across the UK #raredisease #RUDYstudy
I am very honoured to be a Changemaker for the #IamNumber17 Campaign. Do you have a #raredisease experience you would like to share? Please visit https://t.co/tGun54Guqm to find out more information and how you can get involved in the campaign. #metabolicsupportuk #rudystudy
🙌NEW STUDY: @KettGeneral has started a new study, @RudyStudy recruiting patients and relatives to understand more about all aspects of rare diseases #rudystudy #NHSresearch #cancerresearch
https://t.co/aF1pZz9Cpv
This Graph shows how Rudy participant numbers have grown since the study started in 2014. We are very grateful for all the participants who have joined the study over the years.
#RudyStudy #rarediseases #OxfordResearch
Immy decided to join us on our conference call to say hello to everyone @RudyStudy @JavaidKassim @canine_partners #DogsWithJobs
Recruiting for rare disease studies today.
@WestSuffolkNHS @RudyStudy #rudystudy #rarediseases https://t.co/LYv0Duedy9
https://t.co/sUww6b4drN
Thank you to all our new participants who have signed up to help RUDY with research into rare diseases... please remember to complete your questionnaires in the to-do page to tell us how you are feeling. #RareDisease #rudystudy
I love being part of the #RudyStudy as a patient taking part in the research as well as on the patient forum driving the research forward. #RareDiseases #SignUp
Living with a #raredisease? Know somebody who is? Or are you a #clinician working in this space? The #RUDY Study aims to improve understanding around rare diseases and helps develop new tests & treatments. (1/3)
I have #Hypophosphatasia an extremely rare #metabolic condition. Here is my story to raise the profile during HPP Awareness Week #RudyStudy
#whatsonwednesday #RUDYStudy
Alfie's Trust, as part of the Lymphangiomatosis and Gorham's Disease Alliance -... https://t.co/0w90xcKZek
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