Top Tweets for #RUDuffenough
Column: Struggling whether to share a picture of hopefulness or despair #IpswichMA #RUDuffEnough #CureCMT4J https://t.co/BClxyFEjEO
ICYMI - Here is the amazing story by @AbbeyNBCBoston. Please watch for an exciting update about our path to clinical trial! #CureCMT4J #RareDisease #RUDuffEnough
Right now potentially lifesaving research is happening because of a family in #Ipswich. And their push to help their daughter could help countless others with @CureCMT4J. Our @NBC10Boston follow-up story: https://t.co/feoKLl0sfn
TONIGHT! AT 6pm, @NBC10Boston’s @Abbey Niezgoda shares the latest on Talia and our continued path to clinical trial. Thank you for continuing to share our story, Abbey! #curecmt4j #raredisease #ruduffenough #rareparent.org
This is fantastic news!! Wishing you all the best on this next step! 💜 #CureCMT4J #raredisease #RUDuffEnough #hope
And we're off to Dallas with Patient #2 of our CMT4J Natural History Study...Talia! Before our plane took off we traded butterfly wings for plane wings with our captain! :-)
#curecmt4J #hope #raredisease #ruduffenough
And we're off to Dallas with Patient #2 of our CMT4J Natural History Study...Talia! Before our plane took off we traded butterfly wings for plane wings with our captain! :-)
#curecmt4J #hope #raredisease #ruduffenough
It’s Chase Day! C’mon down to Bradley Palmer State Park by 9:30 am and join us to Chase The Butterfly to CureCMT4J! Walk, Run, or Roll! Register on-site with cash or check only. #RUDuffEnough
TUNE IN TONIGHT: Chronicle on WCVB Channel 5 Boston @ 7:30pm--"Patient Power". John and Jocelyn share Talia's story, the challenges of rare diseases, and how parents/patients move mountains toward cures
#curecmt4j #RUDuffEnough? https://t.co/2Bhep9Rpie
The hills will be alive with the sound of 🎵🎶🎵🎶🎵🎶 at this Sunday’s Chase The Butterfly! Register today at https://t.co/CM2IWnZ6yZ or on-site before the race (Cash and checks only) #CureCMT4J #RUDuffEnough
@1634meadery Please help get the word out about a great local fundraising event! Register for this Sunday’s Chase The Butterfly 3-miler to benefit Ipswich 7th grader Talia Duff. Sign up to roll, walk or run here: https://t.co/CM2IWnZ6yZ. #RUDuffEnough
@Port_Athletics Please help get the word out about a great local fundraising event! Register for this Sunday’s Chase The Butterfly 3-miler to benefit Ipswich 7th grader Talia Duff. Sign up to roll, walk or run here: https://t.co/CM2IWnZ6yZ. #RUDuffEnough
@7News @7News Please help get the word out about a great local fundraising event! Register for this Sunday’s Chase The Butterfly 3-miler to benefit Ipswich 7th grader Talia Duff. Sign up to roll, walk or run here: https://t.co/CM2IWnZ6yZ. #RUDuffEnough #7News
Here’s another reason to register for Sunday’s Chase The Butterfly! @russellorchards are donating yummy cider donuts! Come & get ‘em while they last!! Sign up to run, walk or roll at https://t.co/CM2IWnZ6yZ. #RUDuffEnough
The results are in....the Butterfly won! What a fun, beautiful run! Thank you, Sarah Eliot, for inspiring everyone and organizing, along with a little help from Kate and Pete Eliot. Thank you to all of our amazing volunteers and incredible community! #CureCMT4J #RUDuffEnough
Woof woof! Word has spread, even the dogs have their wings on! #RUDuffEnough to register to run/walk Chase the Butterfly for CureCMT4J? Only 6 days left! Register at https://t.co/r3Ci1WfkZ9. (note: dogs sadly are not invited, this pic was just too cute!) 🦋🏃🏃♀️🏃🏻♂️
Please join #CureCmt4J Registration now open at https://t.co/c8x8P75jHF #RUDuffEnough https://t.co/8LpwiyHiMQ
@StrongDucks You were so kind to help spread the word in December of Talia’s #RUDuffEnough campaign. The Ipswich 6th graders are at it again. Hosting this fun run to push #CureCMT4J to this year’s fundraising goal. Please share and come! Thank you!! https://t.co/OWhctej7KZ
I wish I could be there - but sadly an out of town wedding will keep me away. 😢 I am duff enough to retweet though! Everyone run for Talia! ❤️ #RUDuffEnough https://t.co/bZVSGp8NBQ
@AbbeyNBCBoston We hope you’ll join Talia for a run! She’ll be fueled up on potato chips. 😉❤️🦋 https://t.co/OWhctej7KZ
PASS THE WINGS! Umesh Bhuju is ready to Chase The Butterfly to CureCMT4J! Who’s ready to join him? #RUDuffEnough to register to run/walk on May 20th at Bradley Palmer State Park? Sign up now at https://t.co/r3Ci1WfkZ9.
SPREAD THE WORD! 21 Days To Go! Have you registered to Chase The Butterfly for #CureCMT4J? #RUDuffEnough REGISTER at https://t.co/qoHb7g60Y5
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