Top Tweets for #rareparent
In honor of Rare Disease Day coming up, we want to share Sandra's inspiring story about her journey as a rare parent to her son with ADNP syndrome. To read her full story, click here: https://t.co/8UJP7eqeT3
#RareDiseaseDay #RareDiseaseStory #ADNP #ADNPSyndrome #RareParent
🌟 Rare Caregivers Peer-Support Training 🌟
📅 Date: October 15
⏰ Time: 12-4 p.m. EST
🔗 Register: [email protected]
💰 Cost: Absolutely Free!
#rarecaregiver #rarecare #rareparent #raredisease #rarecarepeersupport #peersupport #mentalhealth
Join us every Tuesday for our Rare Family Dynamics @ 10 am PST! No matter what you are feeling, Rare Family Dynamics is a safe space to share and connect with other Rare parents. #rarefamilydynamics #rareparent #rarefather #rarediseaseparent
#RDD2023 https://t.co/e5UYjAZWdm
Sustaining healthy relationships as a Rare Parent can be challenging. You are constantly being pulled in many directions, being asked to give all of yourself to others. See our blog for more. #rareparent #rarefather #rarediseaseparent #rareparents
https://t.co/rUNF2bHAgU
#RDD2023
Not that she needs it but best of luck to @sheehangilroy Ted talk is brill! #RareParent @rareireland
Best of luck to our chairperson and #RareDisease #Advocate @sheehangilroy today and all the inspirational speakers @TEDxTralee_
https://t.co/crP3kWfCO6
#Motivation #Inspiring @Independent_ie @kerryman_ie
"Nobody knows our child as well as we do - nobody. Nobody understands as well what they need and what is best for them"
#RareParent
#LivedExperience #ParentExpertise
https://t.co/HTKEZrnRPQ
This #September is all about #RAREParenting at @RareRevolutionM!
Share your experiences of being a #RAREParent, especially being a #RAREDad!
Thank you to RARE parents for giving everything you have to support and care for your #RAREChildren and loved ones💕
We love visitors but for now it's a Big No, we have immunocompromised children #SpecialNeedsParenting #AutismAwareness #MyVoice #RareParent @KEAutismMom @AdatFoundation @WadauK
TONIGHT! AT 6pm, @NBC10Boston’s @Abbey Niezgoda shares the latest on Talia and our continued path to clinical trial. Thank you for continuing to share our story, Abbey! #curecmt4j #raredisease #ruduffenough #rareparent.org
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