#RareActivist - Twitter Hashtag

over 4 years ago

@ncats_nih_gov Being born with 3 rare genetic conditions and 1st becoming a #rareAdvocate and then a #rareActivist through @rareAdvocacy has taught me how valuable my #raredisease lived experiences are to the development of treatments and various therapeutics that aim to save and improve lives.

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Rare Advocacy Movement @RareAdvocacy

over 5 years ago

#611Challenge: What makes life beautiful? #OLMDEI answer: Justice In order to achieve #humanity, #justice must be made #accessible to all of the #beautiful varieties of people that exist on this planet. #Speakup, #demandJustice and #knowyourworth. #rareActivist #HealthEquity

RareAdvocacy's tweet photo. #611Challenge: What makes life beautiful?

#OLMDEI answer: Justice

In order to achieve #humanity, #justice must be made #accessible to all of the #beautiful varieties of people that exist on this planet.

#Speakup, #demandJustice and #knowyourworth.

#rareActivist
#HealthEquity https://t.co/1uFHD8HRZo

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Rare Diseases South Africa @rarediseasessa

about 7 years ago

Is this not the coolest kit for @947RideJoburg ? Designed by our patients themselves, join the #RareActivist team to get one TODAY and help us change the lives of those impacted by #RareDiseases

rarediseasessa's tweet photo. Is this not the coolest kit for @947RideJoburg ? Designed by our patients themselves, join the #RareActivist team to get one TODAY and help us change the lives of those impacted by #RareDiseases https://t.co/2AHmGaeL0A

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Daryl Impey @darylimpey

about 7 years ago

If you haven't entered the @947RideJoburg then do so now. Entries are closing soon! Don't forget to use "Daryl10" for the competition and if you looking for a charity to support, have a look @RareDiseasesSA who does amazing work for rare dieseases #Rides4Rare #RareACTIVIst

darylimpey's tweet photo. If you haven't entered the @947RideJoburg then do so now. Entries are closing soon! Don't forget to use "Daryl10" for the competition and if you looking for a charity to support, have a look @RareDiseasesSA who does amazing work for rare dieseases #Rides4Rare #RareACTIVIst https://t.co/nylSXTHcFy

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Ride Joburg @RideJoburg

about 7 years ago

The #RareACTIVIst team #Rides4Rare, uses their mobility to benefit those without it. With 1 in 10 South Africans impacted by a rare disease, @RarediseasesSA works towards having rare diseases recognised as a health priority. Join their #RideJoburg team #InternationalDayOfCharity

RideJoburg's tweet photo. The #RareACTIVIst team #Rides4Rare, uses their mobility to benefit those without it. With 1 in 10 South Africans impacted by a rare disease, @RarediseasesSA works towards having rare diseases recognised as a health priority. Join their #RideJoburg team #InternationalDayOfCharity https://t.co/3TbkLyTNvZ

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Rare Diseases South Africa @rarediseasessa

almost 8 years ago

To our #RareACTIVist supporters...Thank you in advance for standing at the sidelines, your cheers keep us pedalling towards that finish line. Thanks to Basically Branding CC for printing our awesome supporters shirts this year. #CC2018 #ride4rare #livingbeyond

rarediseasessa's tweet photo. To our #RareACTIVist supporters...Thank you in advance for standing at the sidelines, your cheers keep us pedalling towards that finish line.
Thanks to Basically Branding CC for printing our awesome supporters shirts this year.

#CC2018 #ride4rare #livingbeyond https://t.co/Jk1qmYl34G

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Rare Aware @rare_aware

about 8 years ago

Thank you @GoodThingsGuy for sharing this story & reminding us how amazing it is to live in South Africa! https://t.co/loPCXZXbon #Care4Rare #AwareAboutRare #LivingBeyond #RareACTIVist @LodgeatPG

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Rare Diseases South Africa @rarediseasessa

about 8 years ago

Thank you @GoodThingsGuy for sharing this story & reminding us how amazing it is to live in South Africa! https://t.co/EWplHkZlvE #Care4Rare #AwareAboutRare #LivingBeyond #RareACTIVist @LodgeatPG

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Rare Aware @rare_aware

over 8 years ago

Our #RareACTIVist, Tim Stones is featured in the June edition of @MensHealthMag South Africa for #FathersDay. #RareDad @jonathanancer wrote the piece entitled "Living every day to the maximum" - we can't wait to read it. #livingbeyond

rare_aware's tweet photo. Our #RareACTIVist, Tim Stones is featured in the June edition of @MensHealthMag South Africa for #FathersDay. #RareDad @jonathanancer wrote the piece entitled "Living every day to the maximum" - we can't wait to read it. #livingbeyond https://t.co/93rQih0V08

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Alushi Management @ALUSHI_JHB

over 8 years ago

.@MrsSAPageant #alushitalent Nicole Capper sent us this pre🛩boarding pic in mid-air en route to Everest⛰Base⛰Camp for the greatest 👣trek👣 of her life to raise money for @RarediseasesSA 🖤 Find out how to be a #RareActivist & GET INVOLVED HERE 👉🏽 https://t.co/wMo0E4i0Ea

ALUSHI_JHB's tweet photo. .@MrsSAPageant #alushitalent Nicole Capper sent us this pre🛩boarding pic in mid-air en route to Everest⛰Base⛰Camp for the greatest 👣trek👣 of her life to raise money for @RarediseasesSA 🖤

Find out how to be a #RareActivist & GET INVOLVED HERE 👉🏽 https://t.co/wMo0E4i0Ea https://t.co/jV7H8ZieFr

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Rare Diseases South Africa @rarediseasessa

over 8 years ago

Thank you for your participation in #RareDiseaseDay2018 A special thank you to all the #RareACTIVist who lit up social media, all our patients who shared their stories, and @nicolejcapper for being such an incredible ambassador. #ShowYourRare #ShowYouCare https://t.co/txcCbLafUj

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Rare Diseases South Africa @rarediseasessa

over 8 years ago

It has just been brought to our attention that thanks to you out of all the charities that participated in the @947Cycle we came in the TOP 20 for raising funds...8th position to be exact! We could not have done it without you! #RareACTIVist #livingbeyond #rideforapurpose

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Rare Diseases South Africa @rarediseasessa

almost 9 years ago

our impact table for October: 37 new patients, 15 caregivers, 14 new doctors who registered, 9 people who became a #RareActivist, & 7 new support groups that have been incubated. Sign up at https://t.co/CR5EMbPB6f to join our database. #Care4Rare #AwareAboutRare #LivingBeyond