Top Tweets for #RareButNotForgotten
#Vasculitis is a rare inflammatory disease which affects about 2-3000 new people each year in the UK
#Vasculitis means inflammation of the blood vessels. Any vessels in any part of the body can be affected.
We are #RareButNotForgotten
#RareDiseaseDay @vascuk
#Scleroderma is a rare, chronic disease of the immune system, blood vessels and connective tissue.
There are 2.5 million people worldwide who are living with #scleroderma, and within the UK there are around 19,000 people diagnosed.
We are #RareButNotForgotten
@WeAreSRUK
Today is Rare Disease Day! 💙@rarediseaseday
Two of our amazing supporters, Alison and Lottie, have kindly shared their experience of living with lupus for Rare Disease Day, read their stories at https://t.co/NDrVg3XRsr
#RareButNotForgotten @RAIRDA_org
So what does RAIRDA do? #rarebutnotforgotten
In #lupus, autoantibodies attack the body’s own tissues
The majority of people living with #lupus are women, and the condition is more common amongst people of Black, Asian or Chinese ethnicity
This #RareDiseaseDay we want to remind you we are #RareButNotForgotten @LUPUSUK
Did you know that around 9,000 people will be diagnosed with #vasculitis, #lupus, #scleroderma and #sjogrens every year?
We are #RareButNotForgotten
#RareDiseaseDay takes place on 28th February, learn more here: https://t.co/twkggEj3nV
@rarediseaseday
Did you know that approximately 2,400 people are diagnosed with #lupus each year in the UK?
We are #RareButNotForgotten @RAIRDA_org
Rare Disease takes place on 28th February, learn more at https://t.co/f7BX9IgWc7 @rarediseaseday
Did you know that around 9,000 people will be diagnosed with #vasculitis, #lupus, #scleroderma and #sjogrens every year?
We are #RareButNotForgotten
#RareDiseaseDay takes place on 28th February, learn more here: https://t.co/twkggEj3nV
@rarediseaseday
Did you know that approximately 170,000 people with #RAIRDs live in the UK?
We are #RareButNotForgotten
#RareDiseaseDay takes place on 28th February, learn more here: https://t.co/twkggE20lV
@rarediseaseday
Did you know that approximately 19,000 people have #scleroderma right now in the UK?
These diseases are rare - but not that rare.
We are #RareButNotForgotten @RAIRDA_org
Rare Disease takes place on 28th February, learn more here: https://t.co/RrRhVbYrSj @rarediseaseday
Hey Rare Disease Community! Sign up to our email list to get updates on our service roll out and other important announcements. https://t.co/yPXf20GGRH | #RareDisease #RareButNotForgotten
Back in the Spring, our rare disease computer simulation technology was featured in @RareRevolutionM
https://t.co/oTBRennAJw … … | #RareDisease #RareButNotForgotten
We will be releasing our first validated artificial stem cell simulation of Cystic Fibrosis, free of charge to not for profit researchers later this month. #cysticfibrosis @123Genetix #RareButNotForgotten
Top 5 Rare Disease Facts https://t.co/P0wX1aVrpG via @YouTube and @123Genetix #RareDisease #RareButNotForgotten @rarediseasefdn
Check out our NEW VIDEO on rare disease facts...
https://t.co/ZUJYJ1eymv
via @YouTube #RareDisease #RareButNotForgotten
Sign up on our website to get notified of our upcoming crowdfunding campaign, service roll out and other important updates.
https://t.co/yPXf20YhJf | #RareDisease #RareButNotForgotten
Meet our founder, Dr. Danter | Check out our blog https://t.co/cGnKkUJKtC #RareDisease #RareDiseaseDay #RareButNotForgotten
How rare is rare? We have a blog post on that.
https://t.co/bPGlVM1SZs | #RareButNotForgotten #StrongerTogether #RareDiseaseDay #RDD18Chat A1
Sign up on our website to get notified of our upcoming crowdfunding campaign, service roll out and other important updates.
https://t.co/yPXf20YhJf | #RareDisease #RareButNotForgotten #RareDiseaseDay2018
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