Top Tweets for #RareCompassion
Med student Roshni Gandhi shares how important 1st impressions & trust are when working with #raredisease indiv. and families, & how it can impact how they approach medical care relationships in the future. Learn more about our program here https://t.co/g04Bbu7WpZ #rarecompassion
Happening Now: End of Rare Compassion Program, Rotation 1 Wrap-up call. Thank you to our speakers and all who were able to attend — over 5 screens worth of participants! #RareCompassion #RareCompassionProgram #CareAboutRare #RareDisease
The theme for rotation 1 of #RareCompassion program is “Vulnerability & Trust.” Thank you @ADanGrenier sharing some insight into your journey & advice for HCPs!
@GlobalGenes
With 3 rare diseases & a few of my dozen comorbidities being rare as well, I’ve had multiple diagnosic journeys. My advice to HCWs to better help patients is to listen, respect & keep an open mind. Remember: we never fit the classical presentation!
#RareCompassion
Calling all #medicalstudents! Connect with members of the rare disease community through @GlobalGenes’ #RARECompassion Program and gain a deeper understanding of chronic and #raredisease patients. Learn more here: https://t.co/JYUOZejgyN
Calling all #medicalstudents! Connect with members of the rare disease community through @GlobalGenes #RARECompassion Program and gain a deeper understanding of chronic and #raredisease patients. Learn more here: https://t.co/JnQmQHvtLt
The Rare Compassion Project is giving the rare disease community a unique opportunity to:
- Share first-hand rare disease experiences
- Connect the rare disease and healthcare communities
- Build a better understanding of treatment and care
#rarecompassion @globalgenes
The Rare Compassion Project is giving the rare disease community a unique opportunity to:
- Share first-hand rare disease experiences
- Connect the rare disease and healthcare communities
- Build a better understanding of treatment and care
#rarecompassion @globalgenes
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