Top Tweets for #RareDConversations
2 weeks til our live recording of #RareDConversations podcast #MND episode with special guests Dr John Ealing, Catherine @adrianhalpenny and @Andrew_Swale
You can be in the zoom audience - register at https://t.co/aOM8OvH5CG
Interested?
@mndassoc @mndresearch
@mndcampaigns

We've got a special live #MND #RareDConversations podcast for #RareDiseaseDay2022
With amazing guests - Dr John Ealing, Catherine @adrianhalpenny, and Dr Andrew Swale
Thanks to @nwgmsa @OfficialUoM @NWGLH @RCPath
Be in the zoom audience - register now: https://t.co/aOM8OvH5CG

Powerful presentation by @MariangelsRive1 at #IFTA congress describing such beautiful work #RareDConversations a Manchester project opening up conversations about lived experiences of rare genetic conditions

We're so excited to release our special 2 part #RareDConversations podcast episode
https://t.co/sIvxpQPzq0
With a diverse panel of guests with varied conversation and Q's from the live audience!
Available on all good #podcast platforms 🎧

Strange how this was only 12 months ago @chriswarburton_
https://t.co/HuBl7C9OP5
We've got a virtual live special #RareDConversations episode recording tomorrow to support #RareDiseaseDay2021 all about #rarecancer
https://t.co/qx9zbhvVWo
@GeneticBill has your gig this year!
Only 7 days to go until our Rare Cancer #RareDConversations podcast special recording and we'd love you to take part
Tickets are going but we've still got plenty of room on our Zoom
Totally free - reserve your virtual seat now at
https://t.co/qx9zbhvVWo

The UK Rare Diseases Framework has been published today by the Department of Health and Social Care @DHSCgovuk. Read it here https://t.co/ktFc4UgDl3 and keep an eye on our social media for more on what this means for the #RareDisease community. #UKRareDiseasesFramework
We have entered our film into the #RAREfest20 gallery for the @camraredisease festival. It’s a representation of our #RareDConversations podcast.
You can find it at Poster #14 under the film and gallery link.

We had great pleasure hosting @Ddysmo and Andrew Read as guests on Episode 4 of #RareDConversations https://t.co/S7yvxqoqUv
Exciting to see the release of this new edition 📙
New Clinical Genetics by Read and Donnai. 4th Edition hot off the press. Lots of updated and new content.

To celebrate #InternationalPodcastDay today why not listen again to our International #RareDConversations episodes
https://t.co/VakYsFrcrF
Here are some of our rare moments - what's yours?

Look out this week for when our latest #RareDConversations episode drops. It’s one not to miss with Dr Domenico Coviello, Dr Carlos Chimpen, Dr Sofia Douzgou and Dr Sid Banka 🎧 #allthedoctors @smbanka @SofiaDouzgou

Listen to our latest International #RareDConversations podcast episode from Romania
Hear so many stories from our very special guest @DanDorica with guest listeners @ovidiu_damian and our very own @ramonazmoldovan
https://t.co/JLeeTZ7i7w
Available across all podcast platforms


In our latest #RareDConversations podcast episode we talk International with Prof Shubha Padke in India and hear from Dr Charu Deshpande, Mr Suyong Sathe and our very own @RhonaMacLeod4
https://t.co/vlyOEVqW9n

All those loving our #RareDConversations podcast can now show just how much by voting for us in the @britpodawards Listeners' Choice Award
It's really easy - head over to
https://t.co/Sty1Ydrf5W and search for 'rare d'
Thank you for your support!

Great end to our International #RareDConversations podcast recordings.
This time a Mediterranean flavour. We talked about connection, family, and what makes us human.
We are looking forward to this episode release!
Check out the whole series so far - https://t.co/VakYsFrcrF

A rare Bank Holiday edit session for our next #RareDConversations podcast episode with special guests from India
We chat again about connections across countries and the affects of Covid-19
Released end of May
Listen to the previous China episode here https://t.co/1UH7leUlsT

We visited Romania for our latest zoom recording. We talked about lived experience of rare conditions and how we are represented. During these #rare times with Covid-19 we felt uplifted to hear stories of strength & community driven by political experiences. #RareDConversations

I would like to include you in this conversation @TheRadTherapist @narrative_eftc @AFTorg_UK
My favourite moment is when Prof Jie Ding is telling us about the difference that made to a boy talking about his genetic condition. #RareDConversations
https://t.co/dF0Wdr3Hon
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