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Our last This Week in RARE Daily for June, and it’s a good one!
Amazon Web Services Commits $10 million to Pediatric Rare Disease Research & More 📰 — Check out the full summary HERE: https://t.co/7dkq0UQd44
#RareDaily #WeekInRareDaily #CareAboutRare #RareDiseaseAwareness
FDA Grants Sarepta Expanded Approval for DMD Gene Therapy & More is now available to read about for This Week in RARE Daily 📰
🔎 Check out the full summary HERE: https://t.co/e1Erqig6tj
#RareDaily #RareNews #WeekInRareDaily #CareAboutRare #RareDiseaseAwareness #GlobalGenes
European Study Identifies Sources of Delayed Diagnosis & More — This Week in RARE Daily 📰
Get up to speed on the latest news from this week: https://t.co/zdiuLEZm7u
#RareDaily #RareNews #CareAboutRare #RareDiseaseAwareness #GlobalGenes
Profluent Releases AI-Created and Open-Source Gene Editor & More — This Week in RARE Daily. Read: https://t.co/KxVUFcfRoY
#RareDaily #RareNews #WeekinRareDaily #CareAboutRare #RareDiseaseAwareness #GlobalGenes
Expanding Access to Genome Sequencing in Rural Populations & More — This Week in RARE Daily. See what you missed. Click to read the full articles here: https://t.co/SUIkEeLil3
#RareDaily #RareNews #CareAboutRare #GlobalGenes
Catch up on this week's rare disease news through RARE Daily News of the Week. Click to read the full articles here: https://t.co/SsF3kPO8WI
#RareDaily #RareNews #WeekinRareDaily #CareAboutRare
RARE Daily News of the Week. Click to see what you've missed and read the full articles: https://t.co/2FdhQMM0to
#RareDaily #RareNews #WeekinRareDaily #CareAboutRare #RareDiseaseAwareness #GlobalGenes
This week's Rare Daily features positive results from Dravet Syndrome study, researchers finding a genetic switch underlying rare inflammatory diseases, and more! To read, click here: https://t.co/v44Wrbe3hn
#RareDaily #RareNews #GlobalGenes
This week's Rare Daily features Lenmeldy price concerns, @FDA approving @Merck’s Winrevair for Adults with Pulmonary Arterial Hypertension, and more! To read more, click here: https://t.co/v44Wrbe3hn
#RareDaily #RareNews #GlobalGenes
This week in Rare Daily, @orchard_tx 's Lenmeldy is now the first FDA-approved gene therapy for the rare and fatal condition metachromatic leukodystrophy. To read more: https://t.co/MxjoTdaetR
#RareDaily #RareNews #GlobalGenes
This week in Rare Daily, Florida legislature establishes The Andrew John Anderson Pediatric Rare Disease Grant Program, named by Republican State Representative Adam Anderson son, whose has Tay-Sachs disease. To read more: https://t.co/MxjoTdaetR
#RareDaily #RareNews #GlobalGenes
This week in Rare Daily, @Everylifeorg and @Amgen join to offer 88 $5,000 scholarships for college students with rare diseases for the fifth year. To read more: https://t.co/MxjoTd9GEj
#RareDaily #RareNews #WeekinRareDaily #CareAboutRare
Week in RARE Daily is a new feature from Global Genes where you can get a quick rundown of the top 5 headlines in the rare disease space from our editorial staff. To read more, click here: https://t.co/fxPPuf5POs
#RareDaily #RareNews #WeekinRareDaily #CareAboutRare #GlobalGenes
Max Feinstein is a rock-and-roller that was diagnosed with the bleeding disorder hemophilia A, and has developed a music curriculum for people with these conditions. To check out the full Rare Daily on Max Feinstein, click here: https://t.co/1DrtFm5i0z
#RareDaily #HemophiliaA
In this #RAREDaily article, Giacomo Chiesi, Head of Global Rare Diseases, and Gina Cioffi, Senior Manager, Public Affairs, share insights on our study analyzing the economic burden of rare diseases: https://t.co/EcnfawFs94 @GlobalGenes #ChiesiGlobalRareDiseases
Molly, thank you for your incredible work to build a stronger understanding of rare genetic diseases of #obesity, including #BardetBiedlSyndrome. We are all inspired by your family’s journey.
Read Molly’s story here: https://t.co/m9Bvgtrfgf #RAREDaily @dslevine @GlobalGenes
As the mother of a child living with #BardetBiedlSyndrome (BBS), Molly D’Angelo knows firsthand the harmful effects of weight stigma and bias. Read her family’s story in this #RAREDaily article: https://t.co/m9Bvgtrfgf @dslevine @GlobalGenes
A6: You can subscribe for updates from the @GlobalGenes #RareDaily for the latest news, advancements, and updates across the industry https://t.co/NuoyVx7fsK #NIHchat
Did you see our Rare Daily feature on the @TheSPSRF last week? Their founder & CEO, Tara Reid, discussed the organization's mission, her management style, some fun facts about herself, and more. Read the full article here https://t.co/96l2JKkKOg
#raredaily #CareAboutRare
Sharing your story is powerful and can often inspire others to do the same. You can tell us more about your #raredisease journey here for a chance to be featured in our #RAREDaily publication. #AYAPatient #CareAboutRare @HA_Summit
https://t.co/sheQVD2yWf
Q4: If you wish your peers could understand ~1~ thing, what would that be?
#AYAPatient
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