Top Tweets for #RareDrugDevelopment
Last week, DTRF's Lynne Hernandez attended the 2024 @GlobalGenes #RAREDrugDevelopment Symposium. This was a great opportunity to connect with other patient advocates on the similar path of collaborating with stakeholders to find better therapies for their patient communities.

Registration is officially open for this year's RARE Drug Development Symposium, from April 29 to May 1, in Philadelphia, PA! Register by Feb. 16 to catch early bird pricing! Register here: https://t.co/fCUtVUBM9O
#RDDS #RDDS24 #RareDrugDevelopment #CareAboutRare
@odc_upenn

How Can the FDA Improve Processes for Rare
Diseases? Keynote speaker Peter Marks, M.D., Ph.D. Director FDA’s Center for Biologics Evaluation & Research discusses this & more in our livestream starting now.
https://t.co/A7GByjHPYY
#CareAboutRare #RareDrugDevelopment #RDDS
@US_FDA

Using the framework of the research readiness roadmap,
what could your journey to a successful therapeutic look like? Our attendees break out into their last workshop to map out a successful journey.
#CareAboutRare #RareDrugDevelopment #RareDisease #RDDS

Find out how emerging technologies may be used for drug discovery, design, and repurposing with our expert panelists. View the live stream here @ 2:15pm ET: https://t.co/A7GByjInOw
@kabukisyndrome @TevardB @creyonbio @KIF1A
#CareAboutRare #RareDrugDevelopment #RareDisease #RDDS

🌍5/ The Global Genes #RareDrugDevelopment Symposium is the perfect opportunity to learn, network, and collaborate for a better future for rare disease patients worldwide. 🤗🌟 I'm honored to be a part of this amazing community. #RDDSymposium2023 #UnitedByRare
🎉1/ Super excited to be attending the Global Genes #RareDrugDevelopment Symposium in Philadelphia this week! 💊🔬🧬 Can't wait to connect with fellow experts, researchers, and advocates in the field of #RareDiseases. #RDDSymposium2023
The first day of #RDDS is here, and we're all set for an action-packed day! Don't miss out on our live stream:
https://t.co/A7GByjInOw
#RareDrugDevelopment
@TIBER_capital @debraOfAmerica @FamilieSCN2A @ODC_UPenn @BostonChildrens @bcmhouston @kabukisyndrome @TevardB @creyonbio

We are grateful to our sponsors for their commitment to rare disease. Your support & dedication have been instrumental.
#RareDrugDevelopment #RDDS
@JazzPharma @pfizer @TravereRare @astrellasgenetx @genentech @BridgeBioPharma @REGENXBIO @spark_tx @ultragenyx @amicusrx1

Stay current with new trends in the regulatory landscape and the role that patient organizations can play at the Rare Drug Development Symposium 2023. To register: https://t.co/FCQy0Q2dVN
#GlobalGenes #RDDS2023 #GoFartherTogether #RareDrugDevelopment #CareAboutRare #RareDiseases

Need something to hold you over before our live #GGSummit22 updates next week here and Instagram stories? Check our #GGSummit from 2021 playlist on Youtube and watch 30 sessions from last year's event. #CareAboutRare #RareDrugDevelopment #RareDisease
https://t.co/sTSCAuISYq
Great couple of days at the @GlobalGenes Rare Drug Development Symposium meeting with fellow patient advocacy leaders and drug researchers to learn about the latest in #raredisease research and treatment development. #RDDS #CareAboutRare #RareDrugDevelopment

We're enjoying today’s interactive workshops at the @GlobalGenes Rare Drug Development Symposium! #RDDS #CareAboutRare #RareDrugDevelopment
Day 1-afternoon workshops are starting now! Attendees will be participating 1 of 3 workshops to attend that were different than where they were this morning. New workshop topic: Fostering Successful Connections Between Stakeholders to Accelerate Progress #RDDS

We look forward to gathering with fellow patient advocacy leaders and drug researchers at the @GlobalGenes RARE Drug Development Symposium in Philadelphia this week! #RDDS #CareAboutRare #RareDrugDevelopment #RareDisease
Tomorrow is the big day — #RDDS! Shout out to our amazing sponsors for helping make this event possible. #CareAboutRare #RareDrugDevelopment #RareDisease
@HorizonNews @ChiesiGroup @editasmed @JanssenUS @JazzPharma @TravereRare @AlexionPharma @pfizer @Regeneron @ucb_news

#RDDS will be kicked off with a reception this evening. Stay tuned as we'll be live-tweeting insights from each session starting tomorrow here around drug development research and new approaches. @ODC_UPenn #RareDisease #CareAboutRare #RareDrugDevelopment
Need something to tie you over before our live #RDDS updates tomorrow? Check our RDDS 2021 playlist on Youtube and watch 4 sessions from last year's event. https://t.co/88DKm0Zdt9 #CareAboutRare #RareDrugDevelopment #RareDisease

Tomorrow is the big day — #RDDS! Shout out to our amazing sponsors for helping make this event possible. #CareAboutRare #RareDrugDevelopment #RareDisease
@HorizonNews @ChiesiGroup @editasmed @JanssenUS @JazzPharma @TravereRare @AlexionPharma @pfizer @Regeneron @ucb_news

26 speakers. Unique workshop-style sessions. Network & build relationships with advocates, researchers, and industry leaders. Effectively shape the future of #raredrugdevelopment. Register today! https://t.co/y9UYJsa83s #rdds2022

26 speakers. Unique workshop-style sessions. Network & build relationships with advocates, researchers, and industry leaders. Effectively shape the future of #raredrugdevelopment. Register today! https://t.co/5JuwBkQIal #rdds2022

What does it take for your org. to be research ready? We've listed a few resources that will help you understand the processes involved. https://t.co/7nd8cPRctn #RDDS2022 #raredrugdevelopment #RareResources
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