Top Tweets for #RareInCommon
"In less than 2 weeks, the hashtag #RareDiseaseTruth reached nearly 2 million people, generating 7000 interactions and 5000 shares."
Thank you all for sharing the tears, the smiles, the good and the bad, the hard and the oh so hard.
Thank you @livinlavidalopo and #RareInCommon
The latest episode of the #RareInCommon podcast is live! Tune in now to learn all about #RareDiseaseTruth and what it means to the community using the hashtag to share on their own terms. @livinlavidalopo @NeenaNizar
Listen here: https://t.co/3XfdvmVety
The latest episode of the #RareInCommon podcast is live! Tune in now to learn all about #RareDiseaseTruth and what it means to the community using the hashtag to share on their own terms. @livinlavidalopo @NeenaNizar
Listen here: https://t.co/3XfdvmVety
Tune in to the #RareInCommon podcast tomorrow as
@livinlavidalopo and @NeenaNizar discuss #RareDiseaseTruth. They're covering the power of the hashtag and the moving stories it's been illuminating. You won't want to miss it: https://t.co/3XfdvmVety
The #RareInCommon podcast is back this year as @livinlavidalopo sits down with @NeenaNizar to discuss #RareDiseaseTruth. They're covering the power of the hashtag and the moving stories it's been illuminating. Tune in this Thursday, February 25 here: https://t.co/3XfdvmVety
Excellent, can't wait for this episode. #RareDiseaseTruth #Trending #RareDiseaseDay #RareInCommon #RareDisease
For those following #RareDiseaseTruth you will love my conversation it’s creator, @NeenaNizar on the upcoming episode of @RareInCommon. We discuss the power of this # and the hidden truths of #RareDisease. Stay tuned for it’s release in the coming days. @mindmatter_us
Our work together will lead to breakthroughs and faster treatments and cures for people living with #rarediseases #RareAsOne #CollaboratingForCures #RareInCommon @congenitalhi @CZIScience @ChanZuckerberg
Thanks to everyone who attended the @ChanZuckerberg #RareAsOne community event! We are so inspired by our #RareAsOne grantees, and grateful to them for sharing their stories and working together to accelerate #raredisease research
It’s day 6 of our countdown to @rarediseaseday! Can you spot Zippy’s mini-me? Today’s rare disease fact of the day is brought to you by 3 monochrome pals 👇 #RareInCommon #WeAreThe300Million
Happy Thursday! Did you think we’d forget about day 9 of our @rarediseaseday countdown? Zip’s back with a colorful friend (and book!) with today’s #raredisease fact of the day. Check it out 👇 #WeAreThe300Million #WeAreRare #RareInCommon
Day 13 of CB’s @rarediseaseday countdown is brought to you by a couple of striped up pals. Check out today’s #RareDisease fact of the day! #WeAreThe300Million @RareDiseases #RareInCommon #CareAboutRare
The countdown has begun! ⏳#RareDiseaseDay is officially 15 days away and our CB fam is sharing a #RareDiseaseFact every day until #RDD 🦓 Make sure to tune in each day! #WeAreThe300Million #WeAreRare #RareInCommon
It's an expensive event but I was so impressed with the interactive week at #SXSW when held a panel on #RareInCommon. The topics this year address really important healthcare issues https://t.co/My6LoNFiT4
@lukebrosen @TracyDixonSalaz @ErinHBarker @RebeccaBrachman @storycollider @MTA Both your stories are amazingly inspirational. Tomorrow I make the 14-hour drive to St Louis from Austin for Hunter’s 13th lifesaving #Spinraza injection. Excited to hear more @storycollider #BoldMedicine #RareInCommon @2DDPodcast & @2RareMamaBears
The #RareGenomeProject is an incredible resource for the undiagnosed community. Many thanks to the @broadinstitute for their work. Listen to Episode 21 – From broad questions to exact answers by Rare in Common on #RareInCommon https://t.co/a4hvNeaAce
We hear you and change is coming.
SOLUtion is incredibly excited and proud to share the first installment of its video series, Human Highlights.
Tremendous thanks to Griffin and his family for sharing their story.
#adrenalinsufficiency #awareness #rareincommon #SOLUtionMedical
We are thrilled to announce that Andra Stratton is a #finalist for an #eyeforpharma Patient Champion Award in the Patient Advocate category! As the co-founder/president of @LipodystrophyLU and host of podcast #RareinCommon, Andra gives a voice to the rare disease community.
We are thrilled to announce that Andra Stratton is a #finalist for an #eyeforpharma Patient Champion Award in the Patient Advocate category! As the co-founder/president of @LipodystrophyLU and host of podcast #RareinCommon, Andra gives a voice to the rare disease community.
Like podcasts? The brilliant #RareinCommon focuses on the rare disease community as a whole and features people discussing their work and experiences in rare diseases. Anything that gets the rare disease community together gets a ✅ from us! https://t.co/wKHQuEc7VA
Are twitter introductions a thing? If not, oh well. @TSkinnyGirlBlog meet @_OurOdyssey_ .... you all should connect. You have a lot in common. #RareDisease #RareInCommon #adulting
Fewer than 200,000 cases of Congenital Adrenal Hyperplasia per year in the U.S. Fewer than 20,000 cases of Addison's Disease per year. Number of people at risk for experiencing a life-threatening Adrenal Crisis: 1 in 500. Rare is more common than you may think.
#rareincommon
#RareinCommon was out on the floor this month @TheACMG's Annual Meeting in Seattle. In this special episode, hear the geneticists, advocates, & other attendees as they share their experiences and views on the role of genetics in #rarediseases. Listen at https://t.co/0oKdfNeOxo
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