Top Tweets for #RareIsReal
A good weekend with my nephew. Painting and singing gospel music are two of his favorite things and being outside. He LOVES everyone and jewelry 🥰#RareisReal🦓 #PaintingStripes #GRIN2B
https://t.co/ZziVhHUUIn
Standard is Boring. RARE IS REAL. ⚡️
Level up your winter vibe with our premium oversized sweatshirt by #RajartDesign. 3D metallic typography for those who stay authentic.
Limited Drop. Shop now: [Link in Bio] 🚀
#Streetwear #RareIsReal #LondonFashion #NYCStyle #Authenticity
"Rare is real! Its unconditional love, understanding, persistence, advocation, grief & acceptance. It’s our reality. It’s knowing your child’s days are limited, so you love harder, expect less & create the most special memories together." -Yashodha, Mom to Zareena
#RareisReal
"We are rare. It is isolating. It is HARD. No one deserves to go through it or lose their baby to it. BUT rare is unconditional love and appreciation for the smallest things. Rare is Atticus." -Sam, Mom to Atticus
#RareisReal #RareDiseaseDay #NTSAD
“I never knew this rare world existed until the day we entered it. It’s scary, but it is also so beautiful. I have learned so much in the past five years since Tobin’s diagnosis of Canavan Disease and I will say Rare is definitely REAL!” - Meagan, Mom to Tobin
#RareisReal
On #RareDiseaseDay and everyday NTSAD's Board of Directors strive to elevate the voices of Rare Families and further NTSAD's mission! #RareisReal
Learn more about NTSAD's leadership: https://t.co/KSZ0wvTMwp
In honor of #RareDiseaseDay, consider making a gift to support NTSAD's Research Initiative, so we can one day find effective treatments for Tay-Sachs, Canavan, GM1 and Sandhoff diseases. https://t.co/vKj6vlixxy
#RareisReal #NTSAD
"Life changes after a rare diagnosis, not just from all the appointments, but it also changes how you look at life. We find joy in the small moments. Our rare warrior teaches us and those around him about love, compassion, and empathy." -Kate, Mom to Felix #RareisReal
“Hannah brings our family so much joy, and she just completes it. My wish is that people could see Hannah and not feel sorrow and pity. That's something I wish was taught to us as children instead of 'don't stare' don't ask questions, etc.” -Christina, Mom to Hannah
#RareisReal
"Rare is neglected. Since it's a small community, it doesn't get publicity like other diseases. Therefore, there is less priority, less attention, less research." -Shelley, Mom to Jaxson
#RareIsReal #RareDiseaseDay
"Being rare is a struggle, but God gives me the strength to never give up! I don’t dwell on the 'remember when' or the 'what ifs.' I realize my life will always be complicated, but I choose to deal with it a smile on my face." -Jessica
#RareIsReal #RareDiseaseDay
"Rare may mean big problems and stress but it also means a rare love not many get to experience. It is smiles and happiness shining over pain. It’s a journey no one could ever want but a love that everyone would be blessed to experience." -Yasmina, Lily's Mom #RareIsReal
NTSAD honors all those who offer care day in and out. Your service matters. You are seen. You are celebrated. 💜
#caregiving #nationalcaregiversday #RareisReal #RareDiseaseMonth #NTSAD
"Rare statistics seem small until they become your reality. Greyson is our rare zebra, and we would have never guessed this would happen to our son. Rare communities are loving, supportive, and fierce advocates." -Kim and Adam, Mom and Dad to Greyson #RareisReal #RareDiseaseDay
Over the weekend, eight Rare Families and NTSAD's Family Service Team gathered in Austin, TX for a NTSAD Meet Up. The families present were coping with various stages of diagnosis and bereavement. The unifying factor for all? Rare is Real!
#RareLove #RareIsReal #RareDiseaseMonth
NTSAD is highlighting the rare love of Our Community with our new website! Take a moment and check out the beautiful family photos, stories, and more: https://t.co/dQoGwogPJn
#RareIsReal #RareLove #NTSAD #RareDiseaseDay #WeCareForRare #RareDiseases
NTSAD Board President Oralea Marquardt, LCSW; CEO Kathy Flynn; and Research Director Valerie Greger, Ph.D. visited with the UMass Research team and toured their research lab today. What a great start to Rare Disease Month!
#RareDiseaseDay #RareIsReal #RareDiseases
The #NORDSummit kicked off today! Stop by and meet the Avalere and @Fishawack team tomorrow if you're at the show! #RareisReal
Join us + @Fishawack next week at the #NORDSummit (Oct. 17-18) to discuss all things in the #RareDisease space. We hope to see you there! https://t.co/DJ51Cz4qSJ @RareDiseases #RareIsReal
February 28—TODAY!—is Rare Disease Day.
Millions of people worldwide live with or care for someone with a rare disease. #RareIsReal.
@drewdesjardins, EVP, Chief Strategy Officer FishawackHealth (FH), offers his insights in an article on Med Ad News, on…https://t.co/0fieqrWp7n
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