#RareKC - Twitter Hashtag

almost 3 years ago

If you're interested in attending the @RareKC’s 2023 Summit and traveling from the Midwest (IL, IN, IA, KS, MI, MN, MS, NB, ND, OH, SD, WI), there are scholarship opportunities to support your travel. Contact [email protected] for more information! #RAREKC

GlobalGenes's tweet photo. If you're interested in attending the @RareKC’s 2023 Summit and traveling from the Midwest (IL, IN, IA, KS, MI, MN, MS, NB, ND, OH, SD, WI), there are scholarship opportunities to support your travel. Contact info@rarekc.org for more information!
#RAREKC https://t.co/z7ntlHd5Pf

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UEO Sickle Cell @UEOSickleCell

almost 4 years ago

As patients and advocates, we must turn our pain and challenges into opportunities and change…. #sicklecellmidwest #FocusForward #BioNexusKC #RareKC

UEOSickleCell's tweet photo. As patients and advocates, we must turn our pain and challenges into opportunities and change….

#sicklecellmidwest #FocusForward #BioNexusKC #RareKC https://t.co/qLRcnsAPF4

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MarksMyBarber

@MMBliving

over 4 years ago

Day party Sunday going crazy, 17 tables sold 😳👀 #RareKc 🏆

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MarksMyBarber

@MMBliving

over 4 years ago

This Sunday I’m collaborating w/ a group of dope Kansas City creatives to bring you #RAREkc #DayParty 🙌🏽 This is something you can’t miss! Get tickets now 🎟 👉🏽 https://t.co/uiBLbXyj7K

MMBliving's tweet photo. This Sunday I’m collaborating w/ a group of dope Kansas City creatives to bring you #RAREkc #DayParty 🙌🏽 This is something you can’t miss! Get tickets now 🎟 👉🏽 https://t.co/uiBLbXyj7K https://t.co/ba50ff6Szj

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Rare KC @RareKC

over 4 years ago

#RareKC is excited to host our exhibitors, guests, and amazing speakers @Polsinelli this afternoon at day of one of our #2022RareKCSymposium.

RareKC's tweet photo. #RareKC is excited to host our exhibitors, guests, and amazing speakers @Polsinelli this afternoon at day of one of our #2022RareKCSymposium. https://t.co/yeas6KHisE

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Jay Vivian @JayLVivian

almost 7 years ago

Kelly Ranallo presenting the Global Genes Rare Champion of Hope in Collaboration Research Award to the International Myositis Assessment and Clinical Studies Group #2019GGSUMMIT #rarekc

JayLVivian's tweet photo. Kelly Ranallo presenting the Global Genes Rare Champion of Hope in Collaboration Research Award to the International Myositis Assessment and Clinical Studies Group #2019GGSUMMIT #rarekc https://t.co/4ZklUJhc4z

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ARJInfusionServices @ARJInfusion

over 7 years ago

The @MGATripleCrown is 5/19 @TownCenterPlaza. Join us & register today & use code MGAFAMILY19 at checkout to get 20% off your registration. #mgakc #mga5k #careaboutrare #rarekc #ihaveheardofmg #mgstrong #kansascity #charity #missouri #kansas #nwarkansas #myastheniagravisstrong

ARJInfusion's tweet photo. The @MGATripleCrown is 5/19 @TownCenterPlaza. Join us & register today & use code MGAFAMILY19 at checkout to get 20% off your registration.

#mgakc #mga5k #careaboutrare #rarekc #ihaveheardofmg #mgstrong #kansascity #charity #missouri #kansas #nwarkansas #myastheniagravisstrong https://t.co/eO7nvKTy0a

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BioNexusKC @BioNexusKC

over 7 years ago

Thank you @DennisRidenour, Janell, and Theo for sharing your story with all of us. #RareDisease #rarekc @RareKC

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BioNexusKC @BioNexusKC

over 7 years ago

Today has been filled with great information and also hope at the @RareKC conference. #rarekc #rarediseases

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Kieran Pemberton @pembo17

over 7 years ago · Kansas City

Spent the day at #rarekc!! Let's do this!!

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ARJInfusionServices @ARJInfusion

about 8 years ago

It’s almost time for the MGA Triple Crown Showdown! We are proud sponsors for the Myasthenia Gravis Association’s Triple Crown Showdown this Sunday, May 29th at Town Center Plaza. For more information visit: https://t.co/vbYX08IDQy #mga5k #mgakc #rarekc #mgstrong

ARJInfusion's tweet photo. It’s almost time for the MGA Triple Crown Showdown!

We are proud sponsors for the Myasthenia Gravis Association’s Triple Crown Showdown this Sunday, May 29th at Town Center Plaza. For more information visit: https://t.co/vbYX08IDQy

#mga5k #mgakc #rarekc #mgstrong https://t.co/KNWrD2Fj75

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BioNexusKC @BioNexusKC

over 8 years ago · Kansas City

Dr Carol Saunders @ChildrensMercy describing the impact genomic testing can have on rare diseases #RareKC ...without genetic testing, an accurate diagnosis takes an average of 6 years.

BioNexusKC's tweet photo. Dr Carol Saunders @ChildrensMercy describing the impact genomic testing can have on rare diseases #RareKC ...without genetic testing, an accurate diagnosis takes an average of 6 years. https://t.co/JPqTRCOZbB

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Heritage Biologics @HBiologics

over 8 years ago

HB is proud to be working with @RareKC. Inspiring "Townhall" event today in Kansas City. Increasing awareness is critical! #rarecare #rarekc

HBiologics's tweet photo. HB is proud to be working with @RareKC. Inspiring "Townhall" event today in Kansas City. Increasing awareness is critical! #rarecare #rarekc https://t.co/1ywuvkAC0G

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pic-K @newbornjaundice

over 8 years ago

This morning we are excited to take part in #rareKC and hear from inspiring collaborators… https://t.co/yUxGiSA2nC

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BioNexusKC @BioNexusKC

over 8 years ago

A lot of powerful information being shared between researchers and their patients during the morning panel session. #rarekc

BioNexusKC's tweet photo. A lot of powerful information being shared between researchers and their patients during the morning panel session. #rarekc https://t.co/E34FOAdEYK

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BioNexusKC @BioNexusKC

over 8 years ago

“The state line often presents and artificial barrier to #collaboration. We need to erase that line. We will not have good outcomes for patients if that line remains.” -Dr. Jerry Wyckoff @UMKansasCity @KState @KStateOlathe #rarekc