Top Tweets for #RareMeetUp
๐ฃ Itโs HNRNPH2 Awareness Week!! ๐ฃ Weโve just wrapped our 2023 Annual HNRNPH2 Conference & Family Meeting, made possible by @s_searchlight, @GlobalGenes & YBRP donors just like you! ๐๐ซถ๐
Help us continue this important work in 2024! ๐
#HNRNPH2 #careaboutrare #raremeetup
๐ Shout out 2 our donors & supporters! Thank you for making the #6thWorldConferenceonCDG possible, contributing to our shared mission to educate, empower, and create change for the #CDGcommunity
@GlycomineBio @GlobalGenes @GLYCOTwinning @UCIBIO_Research @theFoGsj
#RAREMeetUp
So grateful & excited to have you join us for #NECSanDiego, @nicupodcast @drnicu @DoctorDaphnaMd!
#preventNEC @cziscience #RareAsOne @GlobalGenes #RAREMeetup
So excited for @nicupodcast to join us for #NECSanDiego! Register here https://t.co/IQVzDcxLNJ & join @drnicu @DoctorDaphnaMd @jenncanvasser @neojae @erinumberger1 @ravimpatelmd @mistygoodlab @AmyHairMD @crmartin90 @troymarkelmd @ChaabanMD @SusanHintzMD @martinblakely #preventNEC
๐ฃ Great news!
The APCDG and the CDG & Allies received the #RAREMeetUp award from @GlobalGenes out of 100+ applicants!
This award will support the 6th World Conference on CDG!
Learn more: https://t.co/G4eijK0iJY
So honored to receive this #RAREMeetUp award from @GlobalGenes - thank you for supporting #NECSanDiego & helping us build a world without this devastating disease! #preventNEC #RareAsOne @JGoldstein0215 @neojae @erinumberger @epNICURDN @cziscience @mistygoodlab @ravimpatelmd
Grateful to @GlobalGenes for supporting #NECSanDiego with a #RAREMeetUp grant! This will help us broaden our reach & impact to #preventNEC & build a ๐ without #NEC. 100+ patient-led #raredisease orgs applied & we were 1 of 6 lucky enough to be awarded! https://t.co/3Y7DfpRgbD
Grateful to @GlobalGenes for supporting #NECSanDiego with a #RAREMeetUp grant! This will help us broaden our reach & impact to #preventNEC & build a ๐ without #NEC. 100+ patient-led #raredisease orgs applied & we were 1 of 6 lucky enough to be awarded! https://t.co/3Y7DfpRgbD
Planning an in person meet-up? Apply now for The RARE Meet-Ups Impact Grant! Open to members of the Global Advocacy Alliance, this grant will provide financial support, marketing, and other resources. For more: https://t.co/I2XGxJJESV
#RAREMeetUp #GlobalGenes #RAREGrant
All eyes are here
#RareMeetUp
Exciting news! We are now accepting RARE Meet-Up grant applications.ย Click the link below for more information and how you can apply.
https://t.co/cNefCreCAm
#RareMeetup #CareforRARE #raredisease
#RareMeetup at Disorder: The Rare Disease Film Festival in SF โค๏ธ
The amazing aHUS #RAREMeetup group in #Tampa this past weekend showing how #fierce they are! @AtypicalHUS
Over 50 people attended #aHUS Meetup Tour - San Antonio. See where the next #RAREmeetup is: http://t.co/n9NhE0Opch
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