#RareSPLASH - Twitter Hashtag

over 3 years ago

The #chronicillness Boom-Bust Cycle 1. Period of Low Symptoms 2. Overexertion 3. #FlareUp 4. Resting to Recover ...repeat #raresplash repost is inspired by @fourmorespoons of Instagram #LivingRare #rare360 #rarediseases #rareadvocacy #disability #chronicpain #spoonielife

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"#Chronicillness often means that people with #BIGDREAMS are often trapped in a body that's constantly, #fatigued, in #pain, and has no choice by to #rest." #raresplash repost is inspired by @chronicloveclub #LivingRare #rare360 #rarediseases #rareadvocacy #disability

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"Being diagnosed with a #chronicillness is hard. But the people you meet along the way, the opportunities that arise, and the lessons you've learned make it a little easier." #raresplash repost is inspired by @risingabovera #LivingRare #rare360 #disability #chronicpain #spoonie

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"Why does the burden always fall on the dizsabled person to make their environment accessible, when accessibility benefits everyone?" #raresplash repost #LivingRare #rare360 #rarediseases #rareadvocacy #disability #LifeFacts

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"#Change never happens at the pace we think it should. It happens over years of people joining together, strategizing, sharing, and pulling all the levers they possibly can." - Judith Heumann (1947-2023) #raresplash repost is inspired by @tovahsfine #rare360 #rareadvocacy

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"It does not matter how slowly you go as long as you do not stop." - Confucius #raresplash repost is inspired by @the_ot_author #LivingRare #rare360 #rarediseases #rareadvocacy

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

SIMPLE, MEANINGFUL WAYS TO PRIORITIZE YOURSELF 1. Set boundaries 2. Move 3. #Meditate 4. #Rest (do not just sleep) 5. Check in with yourself frequently 6. Ask for help #raresplash repost is inspired by @hatchingforhealth #LivingRare #rare360 #rarediseases #rareadvocacy

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"Every doctor should be aware that minutes of their life can affect months or even years of their patients' lives." #raresplash repost is inspired by @chronicluvclub #LivingRare #rare360 #MedicalPTSD #rarediseases #rareadvocacy

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

2/2 "My body is failing me" --> "I should treat my body with more kindness" "I'm worthless because I can't do X,Y,Z" --> "My pain & abilities do not define my worth" #raresplash repost inspired by @iengageapp #LivingRare #rare360 #MentalHealthforRare #chronicpain #rareadvocacy

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

The way you speak to yourself matters. Today's #raresplash repost is inspired by @fitwithfibro93 of Instagram #LivingRare #rare360 #mentalhealth

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

Bed doesn't ask questions. Bed doesn't judge you. Bed is just warm and soft. Bed is always there for you. Bed is nice. Today's #raresplash repost is inspired by @chronicillnesshumor of Instagram #LivingRare #SLEEP #Wearerare #rare360

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

Positive sensations to lean into: - The sun on your skin - The breeze on your skin - The rise and fall of your breath - The smell of something pleasant - The sounds of birds chirping - Water running over your hands Today's #raresplash repost is inspired by @alantgordon #rare360

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

"Being #disabled should not mean being disqualified from having access to every aspect of life." - Emma Thompson Today's #rareSPLASH repost is inspired by @NTICentral #LivingRare #RareAdvocacy #RareActivism #rare360 #AdultsLivingRare #rarewarriors #RareDiseaseDay #rarediseases

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

Your healing journey is as unique as your fingerprint. Stop Comparing #rareSPLASH #LivingRare #RareAdvocacy #RareActivism #rare360 #AdultsLivingRare #chronicillness #rarewarriors #spoonies #disability #WeareRARE #rarediseaseday #rarediseaseawareness

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

Your symptoms are still valid even if: 1. They're invisible 2. Someone else has it worse 3. Test results are normal 4. You aren't believed Today's #rareSPLASH repost is inspired by @cortdoesscience #happyNewYear #MentalHealth #LivingRare #RareAdvocacy #RareActivism #rare360

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

List of Priorities in #2023: ME Today's #rareSPLASH repost is dedicated to reminding you to make sure that YOU either are or remain at the top of your list of priorities for 2023. #happyNewYear #Happy2023 #mentalhealth #selfcare #selflove #LivingRare #RareAdvocacy #rare360

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Rare Advocacy Movement @RareAdvocacy

over 3 years ago

This #NewYear I will work on my health by ... working with my doctors to try new treatments, not feeling guilty about resting, eating nutritious food (plus the odd snack!), moving my body in the way that works for me. #rareSPLASH repost from Instagram

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Rare Advocacy Movement @RareAdvocacy

almost 4 years ago

"The strongest people I've met have not been given an easier life. They've learned to create #strength and #happiness from dark places." Today's #rareSPLASH repost is inspired by bbravefoundation of Instagram #happyholidays #LivingRare #RareAdvocacy #RareActivism #rare360

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Rare Advocacy Movement @RareAdvocacy

almost 4 years ago

A disco ball is hundreds of pieces of broken glass put together to make a magical ball of light. You aren't broken you are a disco ball. SOURCE: #MondayMotivation #rareSPLASH repost from #Instagram #LivingRare #RareAdvocacy #RareActivism #rare360 #rarewarriors #Disability

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Rare Advocacy Movement @RareAdvocacy

almost 4 years ago

Do you ever feel torn between: "I can't let this condition take over my life" and "I must consider this condition in everything that I do" #WisdomWednesday #rareSPLASH #LivingRare #RareAdvocacy #RareActivism #rare360 #POTS #EDSers #Fibromyalgia #MS #MG #Myositis

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