Top Tweets for #RareShowcase25
You left us feeling inspired with your lightning talk, Charlotte! π€©
Thank YOU for coming to #RareShowcase25 yesterday and for the very kind words π§‘
Absolutely fantastic day at @RareBeacon Rare Disease Showcase in Manchester (Bridgewater Hall) ππ» Brilliant opportunity to be able to be able to present/talk and listen to a variety of talks. Definitely feeling inspired π#RareShowcase25 #proud #grateful #raredisease
Absolutely fantastic day at @RareBeacon Rare Disease Showcase in Manchester (Bridgewater Hall) ππ» Brilliant opportunity to be able to be able to present/talk and listen to a variety of talks. Definitely feeling inspired π#RareShowcase25 #proud #grateful #raredisease
If youβre at @RareBeacon's Manchester Rare Disease Showcase today, say hi to the Genetic Alliance UK team, learn about our plans for Rare Disease Day and see our CEO, Nick Meade, talk about the rare condition policy landscape for 2026
#RareShowcase25
And the Beacon Bunch is rolling out! πβοΈ
We're headed up to Manchester to get everything ready for #RareShowcase25 tomorrow
We can't wait to welcome over 150 rare disease advocates in less than 24 hours
SEE YOU SOON! π€©
π Beacon is turning 13 this Friday β and itβs lucky for some! π
To celebrate our birthday, weβre giving you 10% off tickets to the Manchester Rare Disease Showcase. π
ποΈ Use the code 'BeaconBday' when purchasing your tickets!
π https://t.co/8rS6BUUpSd
#RareShowcase25
We are thrilled to be collaborating with NIHR BioResource and the D-CYPHR team!
Hannah Stark is speaking at the #RareShowcase25 about D-CYPHR: Working with families to create a worldβs first childrenβs genetic health research programme, so get your tickets now to learn more
1 in 17 people in the UK will experience a rare condition. We're working with @RareBeacon to support patient groups & drive research. Kids 0β15 can join D-CYPHR to help shape the future of children's health.
Learn more: https://t.co/ALpqzOM7LP
Join us for the Manchester #RareShowcase25! π₯
π
26th November 2025
π Bridgewater Hall, Manchester
β³ Early bird pricing ends: 31st August
This is your chance to connect with others passionate about making a difference in the rare disease space.
https://t.co/koP2UAftNO
Photos OUT NOW! πΈ
Want to reminisce about the #RareShowcase25 or weren't able to attend on the day?
View the fantastic lightning talks that happened on the night and check out our full photo gallery here - smile you're on camera! π
https://t.co/iQfnherScE
Last chance to get your tickets for the Cambridge #RareShowcase25! β³
Join us for an unforgettable evening celebrating innovation, collaboration, and the incredible impact of the rare disease community.
ποΈ Thereβs not long left to secure your spot! https://t.co/eaAQXqylRJ
Sponsor spotlight! π
We'd like to say a huge thank you to our silver sponsor of the Cambridge #RareShowcase25, Astellas.
Their generosity and support help to make events like these possible! π§‘
Find out more and get your tickets here: https://t.co/MqSZItD0oF
Meet the speakers at Cambridge #RareShowcase25!
β‘ Elly Aylwin-Foster
In this talk Elly will present her experience, side by side, participating in two very different trials in the timeline of cystic fibrosis research.
β³ Get your tickets here: https://t.co/9dKVdUraoW
π’ Donβt miss the @RareBeacon #RareShowcase25 - a vibrant gathering of patient groups, researchers, clinicians, industry professionals, and more from across the UK and beyond:
The Cambridge #RareShowcase25 is next month! π
Join us for an evening that brings together passionate voices from across the rare disease community.
Take a look at our highlight video from last year and secure your spot!
π
https://t.co/Hk3Jk5ewmI
Meet the speakers at Cambridge #RareShowcase25!
β‘Simon Lande
His talk will cover how HealthLumen is using genetic database analysis to enhance their understanding of rare disease prevalence.
Get your tickets here: https://t.co/9dKVdUraoW
Meet our Cambridge #RareShowcase25 speakers!
β‘ Helen Evans
π"What if we could treat cavernoma without invasive surgery?" Helen will explore the emerging potential of focused ultrasound as a non-invasive treatment for this condition.
Get your tickets: https://t.co/twb0yhYkLv
Just two weeks to go until the Cambridge #RareShowcase25! π
π
18th June 2025 | 18:30-21:00
π The Clayton Hotel, Cambridge
Do you want to be part of a powerful celebration of innovation and impact in the rare disease community?
Get your tickets! ποΈ
https://t.co/eaAQXqylRJ
π Less than one month to go until the Cambridge #RareShowcase25! π
What to expect? π
An exciting evening of innovation, networking, and storytelling from across the rare disease community.
Don't miss out, secure your tickets now! ποΈ
https://t.co/8t0BnVNOcr
The Cambridge #RareShowcase25 is next month! π
Join us for an evening that brings together passionate voices from across the rare disease community.
Take a look at our highlight video from last year and secure your spot!
π
https://t.co/Hk3Jk5ewmI
Applications closing soon! π’
Submit a lightning talk for the Cambridge #RareShowcase25. β‘
Highlight your work, share your personal journey, and present fresh, innovative ideas!
Submit a lightning talk proposal when registering before the 9th May. β°
https://t.co/JHrFFJv2fb
Join our speaker line-up at the Cambridge #RareShowcase25! π€
This event will feature an exciting lightning talk session - share your insights, stories and achievements in just 5 minutes!
Submit your proposal when registering for the event! β‘
π https://t.co/BAVUr9923e
Don't miss out on early bird tickets for the Cambridge #RareShowcase25! π₯
With 100% of last yearβs attendees making meaningful new connections, you donβt want to miss out.
Use the code βShowcaseSaver5β for Β£5 off ποΈ
Find out more and register here:
https://t.co/gw4YGVTi45
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