Top Tweets for #Rareresearch
Today, June 20th, is World FSHD Day.
FSHD is a rare genetic muscle disorder that can affect and cause atrophy in the facial, shoulder, upper arm, and lower leg muscles of an individual.
Learn more about FSHD in our infographic below
#FSHD #WorldFSHDDay #CureFSHD #RareResearch
Today in the lab: Automated serial dilution of standards with our new Tetsuwan robot!
#inthelab #labwork #lajollalabs #LJL #RareResearch #scientists #automation #ml #robotics #therapeuticdiscovery #drugdiscovery @c_m_ponce
Today in the lab: Taking cells out of the liquid nitrogen
#scientist #inthelab #lajollalabs #liquidnitrogen #cells #cellcare #RareDisease #RareResearch #liquidnitrogentank #RNAtherapeutics #drugdiscovery
Please contact us at [email protected] if you're a researcher interested in investigating this critical issue within our community. #RareDisease #RareResearch
https://t.co/0kAaBfcnOw
🎉🌟Congratulations to our partner @VasseghiMary on her recent publication, highlighting the variable and fragmented care for people in Ireland with TSC. This is part of her PhD research work studying care in Tuberous Sclerosis Complex. #rareresearch #raredisease
Today in the lab: qPCR training for our new LJL Research/Lab Interns
#LaJollaLabs #LJL #rarediseaseresearch #rareresearch #inthelab #todayinthelab #labwork #labtraining #LJLInternship #intern #scientist #biotech
Today, June 20th, is World FSHD Day!
Learn more about FSHD in our infographic below
#FSHD #WorldFSHDDay #Neuromuscular #RareDisease #CureFSHD #FSHDResearch #RareResearch #MuscularDystrophy #LJL #LaJollaLabs
Really wonderful #RareDiseaseSymposium event hosted by @RAiNAllIreland @sheehangilroy & @MTU_ie today 🙌 It was so encouraging to learn about some of the #RareResearch happening & also engaging discussions on the importance of #PPI in involving individuals & families #Partnership
Looking forward to attending this event next week in Tralee & learning about current #RareResearch projects in Ireland.
So much dedication & determination going into these projects. For the #RareCommunity research is much needed & it often serves as a crucial advocacy tool.
There’s is still time to register RAiN Symposium on June 10, 2024, at @MTU_ie
Discover the incredible work supporting those living with rare diseases in the South of Ireland. Register using this link
🔗 https://t.co/greepBrH6C
#RareDiseases #RAiN #MTUTralee @IrishResearch
A transferable model of care for #RareConditions
Would encourage the #RareCommunity to call for more funding in this regard. Who else is tired of coordinating alone & trying to connect the care providers together & highlight the overall picture of the condition.
#RareResearch
Wesley Mulcahy @CHI_Ireland and Anne Lawlor @22Q11_Ireland presenting " Complex Care Co-Ordination" at the RAiN webinar @ucddublin @UCD_Research @eurordis @QUBelfast
Today is International Pompe Awareness Day!
Learn more in our infographic below.
#pompedisease #TogetherWeAreStrong #EveryMoveCounts #PompeDiseaseDay #raredisease #lajollalabs #LJL #rarediseaseawareness #RareResearch #researchrare #drugdiscovery #Pompe
Today in the lab: Running DNA fragments on gel to test annealing temperatures for a PCR assay.
#inthelab #labwork #scientist #PCRassay #PCR #DNA #ASO #drugdiscovery #RNAtherapeutics #raredisease #rareresearch #LJL #lajollalabs
Today in the lab: A dose-response assessment for an external project 💙
#inthelab #labwork #LJL #lajollalabs #RNAtherapeutics #RNA #RareResearch #raredisease #TargetedTherapy #doseresponse #IC50 #scientist
Today in the lab: Cell care for an external project
#inthelab #scientist #lajollalabs #LJL #labwork #cellcare #cellwork #RNAtherapeutics #biotech #RNA #CancerResearch #RareResearch #raredisease
This is a great opportunity for families to take part in a collaborative session with researchers hosted by @RAiNAllIreland
It’s a chance to voice your thoughts on the topics that concern your family #RareDiseaseCommunity #RareResearch #CollaborationForRare #SeeYouThere
Are you a parent/caregiver of a person living with a Rare Disease? We are hosting our first ‘Cup O’Collaboration’ on the 10th January in UCD 🤝👥 Join us for a lunch and collaborative session! If interested in joining us please contact us using the email below ⬇️ All welcome!
#RareDiseaseMoonshot A collaboration to progress #RareResearch to inform potential treatments for rare diseases. Encouraging to hear of success stories 🙌 really highlights the power of partnership.
#RareCommunity #MeaningfulAction
Key note panel discussion is underway with a focus on Rare Disease Moonshot programme and success stories so far @orphan_drugs #WODC @eurordis @RareDiseasesIE @RAiNAllIreland @a_j_mcknight @Melissa_Kinch_ @22Q11_Ireland @raisingrareness @NI_RDP
The #RareFair2023 is a week away! Visit the RPV booth & come to Pam Cusick's presentation on Friday, Sept. 8, 4pm: "The Rare Voice: Patients, Family Caregivers, and Research." For more about the fair: https://t.co/qmaT8JEl5f #RareDisease #patients #RareResearch
The #RareFair2023 is a week away! Visit the RPV booth & come to Pam Cusick's presentation on Friday, Sept. 8, 4pm: "The Rare Voice: Patients, Family Caregivers, and Research." For more about the fair: https://t.co/d1SFGiIAjE
#RareDisease #patients #RareResearch
The #RareFair2023 is a week away! Visit the RPV booth & come to Pam Cusick's presentation on Friday, Sept. 8, 4pm: "The Rare Voice: Patients, Family Caregivers, and Research." For more about the fair: https://t.co/d1SFGiIAjE
#RareDisease #patients #RareResearch
Great webinar today. Key point for me was the power of collaboration
That notion of #LeaveNoOneBehind when it comes to the #RareDiseaseCommunity We need to make sure as many voices are heard when it comes to #PPI & accessibility to enable that
#StrongerTogether #RareResearch
Join our panel today as they discuss how the patient voice can be included at every stage. ‘The power of the patient voice in shaping policy and advancing research’ at 1pm BST today. It's not too late to sign up for free here: https://t.co/ONleWKgeZu
#PatientEngagement
Gutted to be missing this event today! Laura @our_rare_road & Erica will be attending, so say hello at the @rareireland information stand 😊
Have a wonderful day ladies & best wishes to all involved in the @RAiNAllIreland event today at UCD.
#RareCommunity #RareResearch
We are looking forward to welcoming colleagues to @ucddublin for the #RAIN Symposium with a focus on "Equity for People living with a #RareDisease "There will be exhibition stands from @rare_trial @rareireland @PWSAI #Posters from #ECR @hrbireland @IrishResearch @healthdpt
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