#Refsum - Twitter Hashtag

about 3 years ago

Start the summer with impact: DARE Fest 2023 – June 10-18! https://t.co/yDNthOPJj4 Refsum is a rare disease that impacts people of all ages and genders changing vision, mobility & many aspects of life. Early diagnosis and diet improve lives! #DareFest2023 #refsum #RareDisease

GlobalDAREFound's tweet photo. Start the summer with impact: DARE Fest 2023 – June 10-18!

https://t.co/yDNthOPJj4

Refsum is a rare disease that impacts people of all ages and genders changing vision, mobility & many aspects of life.

Early diagnosis and diet improve lives!
#DareFest2023 #refsum #RareDisease https://t.co/54tPAKxkBs

1

4

2

0

213

RARE Revolution Magazine®

@RareRevolutionM

almost 5 years ago

Thank you @RareRevolutionM for our #tuesdaytakeover. The Global DARE Foundation is a global community dedicated to improving the lives of those affected by #adultRefsumdisease. https://t.co/kwafYWaDmP #Refsum #preventblindness #retinitispigmentosa #raredisease

RareRevolutionM's tweet photo. Thank you @RareRevolutionM for our #tuesdaytakeover.
The Global DARE Foundation is a global community dedicated to improving the lives of those affected by #adultRefsumdisease.

https://t.co/kwafYWaDmP

#Refsum #preventblindness #retinitispigmentosa #raredisease https://t.co/XSKj8ghzwv

0

2

0

The Journal of Inherited Metabolic Disease @JIMD_Editors

almost 6 years ago

New in JIMD Reports, Benson et al demonstrate improved electroretinographic responses following dietary intervention in a patient with Refsum disease. Showing that Phytanic Acid restriction can help eye disease in #refsum #openaccess https://t.co/zGLP5LVJBx

JIMD_Editors's tweet photo. New in JIMD Reports, Benson et al demonstrate improved electroretinographic responses following dietary intervention in a patient with Refsum disease. Showing that Phytanic Acid restriction can help eye disease in #refsum
#openaccess
https://t.co/zGLP5LVJBx https://t.co/at56R2EE5z

0

8

4

0

Ataxia and Me CIO 1184030 @Ataxia_and_Me

about 6 years ago

We are continuing to mark #BrainAwarenessWeek we are looking back at the #RareDisease #patients stories on our #Ataxia awareness project for #SaturdayMotivation #heroes #REFSUM #RareDisease Journey to a Diagnosis by KristieKooyengaDeMarco https://t.co/mdNmHtvMAY #kNOwATAXIA