#RoarForRare - Twitter Hashtag

over 1 year ago

On this #RareDiseaseDay, let’s #RoarForRare to boost awareness & support for the caregivers of and people living with rare diseases like #PhelanMcDermidSyndrome. Learn more: https://t.co/sSWoyfVTgV.

CureSHANK's tweet photo. On this #RareDiseaseDay, let’s #RoarForRare to boost awareness & support for the caregivers of and people living with rare diseases like #PhelanMcDermidSyndrome. Learn more: https://t.co/sSWoyfVTgV. https://t.co/hTfRi6WB1N

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Sanofi India @IndiaSanofi

over 5 years ago

#RoarForRare: George spent many yrs of his childhood in pain. At one point, he could hardly stand! That's when he was diagnosed w/ #Fabry disease & put on treatment. Today he lives pain free, his condition is not worsening & he's pursuing a Master's degree! #EveryLifeIsPrecious

IndiaSanofi's tweet photo. #RoarForRare: George spent many yrs of his childhood in pain. At one point, he could hardly stand! That's when he was diagnosed w/ #Fabry disease & put on treatment. Today he lives pain free, his condition is not worsening & he's pursuing a Master's degree!

#EveryLifeIsPrecious https://t.co/LUs8UK2mwF

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Sanofi India @IndiaSanofi

over 5 years ago

#RoarForRare: Saurabh was 3y when he showed signs of #Gaucher disease. Initially, there was no treatment in India. For the last 17 yrs, he’s been on infusion therapy & it has changed his life! Today, he’s a mechanical engineer w/ big dreams for his future #EveryLifeIsPrecious

IndiaSanofi's tweet photo. #RoarForRare: Saurabh was 3y when he showed signs of #Gaucher disease. Initially, there was no treatment in India. For the last 17 yrs, he’s been on infusion therapy & it has changed his life! Today, he’s a mechanical engineer w/ big dreams for his future

#EveryLifeIsPrecious https://t.co/YK7vy9kn68

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Sanofi India @IndiaSanofi

over 5 years ago

#RoarForRare: Fajansa first experienced symptoms of #Pompe disease when she was pregnant. But timely medication is helping her cope and enjoy life! Now, her daughter wants to one day be a doctor and find a cure for Pompe disease :) #EveryLifeIsPrecious

IndiaSanofi's tweet photo. #RoarForRare: Fajansa first experienced symptoms of #Pompe disease when she was pregnant. But timely medication is helping her cope and enjoy life! Now, her daughter wants to one day be a doctor and find a cure for Pompe disease :)

#EveryLifeIsPrecious https://t.co/vpTfFd7juE

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Sanofi India @IndiaSanofi

over 5 years ago

#RoarForRare: Meet Jaivant. Born with MPS Type I, a rare disease. He was fortunate to get early access to treatment which is helping him live a near normal life. Brilliant at school, he dreams one day to be a cricketer like his favourite: Virat Kohli! #EveryLifeIsPrecious

IndiaSanofi's tweet photo. #RoarForRare: Meet Jaivant. Born with MPS Type I, a rare disease. He was fortunate to get early access to treatment which is helping him live a near normal life. Brilliant at school, he dreams one day to be a cricketer like his favourite: Virat Kohli!

#EveryLifeIsPrecious https://t.co/DkqBwsg2Uf

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PWSA | USA @PWSAUSA

over 5 years ago

"I love playing with my grandson, who has Prader-Willi syndrome. We made a frog puppet from a paper bag and he was so proud and excited. He always puts a smile on my face." -Barbara Dorn #ShareYourRare #RareDiseaseDay #PWSawareness #ROARforRare #PraderWilliSyndrome #PWS #PWSAUSA