Top Tweets for #RunningForRARE
Start shining for rare 🏃♀️☀️
Celebrate #GlobalRunningDay with NORD’s Summer Fun Challenge. Run, walk, roll, or move your way while raising awareness and support for people with #RareDiseases. Join today: https://t.co/J4kvv4ku3N
#RunningforRare
Back for a second year, the @ClevelandClinic Genetics team took on #ClevelandMarathon weekend, with NORD® #RunningforRare® as an official charity partner for the first time!
Huge thanks to Team Captain Delaney Berhault, Genetic Counselor Assistant, for bringing the team together to raise awareness and support for the #RareDisease community.
Join the movement at https://t.co/dh2HpLRXQN.
Team NORD® #RunningforRare® participated in the @runcolfax race weekend for the third year, this time during the event’s 20th anniversary celebration!
Led by 2026 #RareImpactAwards honorees Lily Emmanuel and Eric Pahl, the team of 22 walkers and runners surpassed their $5,000 fundraising goal in support of the #RareDisease community.
We’re already excited to welcome even more runners to #RunColfax in 2027!
#Colorado #Denver #Marathon
We're still feeling the impact of the 130th #BostonMarathon 💙💛 Our #RunningForRare® team turned 26.2 miles into a powerful movement for the #RareDisease community—running for 13 rare diseases and one united mission.
You can still read their stories and support their efforts here:
https://t.co/7IDbKWdiSB
Happy #NationalSiblingDay! Meet twins Benjamin & Samantha, our TCS @nycmarathon Team Captains. Both joined NORD #RunningForRare in honor of their mom, Lori, who lives with #LynchSyndrome. Alone we are strong. Together we are unstoppable. Join us at https://t.co/P6mk3uhWiu.
It's #SiblingsDay! 🎉 Meet brothers Christopher & Jacob, young members of #RunningForRare who tackle 1-mile races together. Christopher is an #MPS1 warrior, and both joined to raise awareness for the #RareDisease community.
Know a kid runner ready to make an impact? Join the fun at https://t.co/dh2HpLRXQN.
Kate is running the #BostonMarathon with NORD’s #RunningForRare® team for the third year! 💛 Her two sons live with #Phenylketonuria (#PKU). She dedicates her marathon to raising awareness and support for families like hers living with #RareDiseases.
Support Kate: https://t.co/iuKXwvAimR
Calley is running the #BostonMarathon with NORD’s #RunningForRare® team. 💜
Every stride is dedicated to her mom, who lives with #FactorXIIDeficiency, and Shaylee, longtime Running for Rare community partner living with #PompeDisease.
Support Calley: https://t.co/Vkm90QwaNJ
Paul is running the #BostonMarathon with NORD’s #RunningForRare team 💙
Inspired by the #RareDisease community, he runs in honor of his patient partner, Kyle, who lives with #MPS1, aka #HurlerSyndrome.
Support Paul's run and learn about Kyle here: https://t.co/9ygTEeUhlU
Annie Sedoric is running the #BostonMarathon with NORD’s #RunningForRare® team! 💜
After brain surgery, surviving bacterial meningitis, and years living with #acromegaly, Annie continues to inspire the #RareDisease community.
Support Annie's run here: https://t.co/PErQKobmWG
🏃 Make your miles count! Join Team NORD #RunningForRare.
Run the 2026 @NYRR TCS #NYCMarathon with us. Be matched with a rare disease patient partner, join team events, and get coaching and fundraising support. Apply: https://t.co/tHQ4meswm0
#NewYork #TCSNYCMarathon2026 #NYC
Beck is running the #BostonMarathon with NORD’s #RunningForRare® team in honor of his son, Cannon. 💙 After being diagnosed with #HoltOramSyndrome and undergoing open-heart surgery, Cannon is now thriving. Beck runs to ensure no #RareDisease family faces their journey alone.
Support him here: https://t.co/2XNBi1LVky
#LivingWithHOS #HoltoramSyndrome
Happy Birthday to #RunningForRare runner, Alecia! She's running the @BostonMarathon for her grandson, Anthony, who was diagnosed with #ArthrogryposisMultiplexCongenita after 4 months in the NICU.
Wish Alecia a happy birthday by support her charity run: https://t.co/Y6nGGCWmpz
Who Runs the World? #RunningForRare!
Here's a #BlackFriday deal: Join a #marathon around the world and your registration is free when you run for #RareDisease awareness with the National Organization for Rare Disorders! Sign up this week: https://t.co/QrDpeSDlzP
We've gotten such a good response to our second annual #TurkeyTrot for #RareDiseases that we're extending the deadline to sign up and receive your #RunningForRare team shirt through Monday!
Join the party this #Thanksgiving, no matter where you are: https://t.co/IBjtYA0kGf
#Thanksgiving is around the corner, and we’re thankful for the NORD #RunningForRare team! 🏃♂️
Put meaning behind your miles this fall:
- Sign up for your local #TurkeyTrot
- Get our exclusive team shirt
- Raise funds for #RareDisease awareness
Join here: https://t.co/MXQ1x2Eazh
NORDY is stretching for next month's #TurkeyTrot! 🦃🏃Find a Turkey Trot near you or plan to run/walk a favorite path in support of the #RareDisease community. Sign up here by Oct. 24 to receive your NORD #RunningForRare shirt: https://t.co/uXOGd6cSjB
#Thanksgiving #CharityRun
Our Virtual #TurkeyTrot is back! 🦃 Run, walk, jog, or roll anywhere Nov. 22–30 while supporting #NORD and the 1 in 10 Americans living with a #RareDisease.
Register by Oct 24 to get your shirt in time for #Thanksgiving: https://t.co/uXOGd6cSjB
#RunningforRare #ShowYourStripes
This World Cancer Day, let's run for a cause that truly matters! 🏃♂️💙 Join #RaceFor7 and support those affected by rare diseases. 💪💜 #RunningForRare #WorldCancerDay #racefor7
🗓️ Event Date: 23rd February 2025
📍 Location: India
🔗 Register now: https://t.co/DZfhikwcDY
This is the 4th time that Ian is #RunningForRARE in the Cambridge Half to support our Unqiue Feet group!
"The money I raise will go towards inclusive and accessible activities that kids with any physical or learning disability can join in."
Thank you Ian!
https://t.co/F56ROyJBjB
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