Top Tweets for #SCDGlobal
Did you know?
Sickle Cell Disease and G6PD Deficiency are more common than you think.
Understanding them helps families prevent crises and get care faster.
Know your Genotype! Ask your Doctor to be tested.
#SickleCellWarrior #SCDGlobal #SCDAwareness #BloodDisorder
Reimagining medicine takes a community effort. Special thanks to #SCD patients, advocates and medical experts in Europe & around the world who have placed their trust in us. @NovartisCancer #Sicklecellawareness #scdglobal
Today Webinar on “Paediatric to adult transition care for patients with #SickleCellDisease”
More info: https://t.co/cXbU1wmBCy #SCD #SickleCell #scdadvocacy #SickleCellAwareness #SickleLife #scdglobal
For WSCD2020, ERN-EuroBloodNet collected SCD patient representatives’ video testimonials on the importance of having a common unique patients’ voice in Europe and engaging patients thoughts in research: https://t.co/nrjXUp0LUP #WorldSickleCellDay #WSCD20 #sicklecell #scdglobal
Découvrez la leçon de vie de Laetitia @Letichou972 créatrice de l'application @drepacare afin de soutenir les malades atteints de #drépanocytose !
#WSCD2020 #JMLCD #scdglobal #Notaloneinsicklecell #untoldsicklecellstories #sicklecelldisease
Face à la #drépanocytose, Laëtitia a lancé une application pour les drépanocytaire du monde entier, pour les aider à croire en eux. #JMLCD @FMDTsosglobi
Retrouvez son témoignage ➡️ https://t.co/9DIMXyeDzW
What’s ‘sickle cell disease’ in your language? Happy #WorldSickleCellDay from GASCDO!!
#sicklecellinmylanguage #WSCD20 #sicklecell #scdglobal
#Accesstocare during #COVID19 continues to be a challenge for the 40k Sickle Cell Disease patients in the EU. That’s why ensuring vital access to healthcare systems, for #Sicklecell patients, needs to remain a healthcare priority #WSCD2020 #scdglobal https://t.co/UxBFBng8WT
#sicklecell #knowyourgenotype #scdglobal #GASCDO #WSCD2020 #sicklecellawareness #scdadvocacy #okara
@o_kares
Today is #WorldSickleCellDay and at cell corps Africa, we want to remind you that love is NOT enough.
Do you know the genotype of your partner?
Do you know that sickle cell has no cure and it is lifelong?
The effects on physical and mental health?
“In a hospitalization in 2006, I made an inward pledge that should I survive this particular crisis, I would tell the world about SCD. I did survive, and the following year, The Sickle Cell Journal was born.” -PunchNG.com
#sicklecellinmylanguage #sicklecell #scdglobal #GASCDO
“One thing I learned along the way is that your illness is not a problem in your life, it can limit you in some ways, but it should NEVER stop you from executing your plans.”
#sicklecellinmylanguage #sicklecell #WSCD20 #worldsickkecellday #scdglobal
Pour la Journée Mondiale de la #Drépanocytose, #JMLCD @SCDglobal invite les assos et les acteurs impliqués à participer à la campagne #SickleCellinmyLanguage (La drépanocytose dans ma langue)
#sicklecell #scdglobal
#GASCDO
#WSCD2020 #sicklecellawareness #sicklecelladvocacy
This Friday June 19 is the World #SickleCellDisease Day! #UnitedOnlus will hold a debate on the state of the art on new therapies and new drugs in Italy. Find more information at https://t.co/b2ktiTffrN #WSCD2020 #SCD #Sicklecell #scdglobal
Il 19 Giugno si celebra la giornata internazionale della Drepanocitosi #WSCD2020. La #UnitedOnlus vi parlerà delle nuove terapie e dei nuovi farmaci in fase di registrazione in Italia #SCD #SickleCellDisease #SicklecellAwareness #WorldSickleCellDay #sicklecell #scdglobal
Il 19 Giugno si celebra la giornata internazionale della Drepanocitosi #WSCD2020. La #UnitedOnlus vi parlerà delle nuove terapie e dei nuovi farmaci in fase di registrazione in Italia #SCD #SickleCellDisease #SicklecellAwareness #WorldSickleCellDay #sicklecell #scdglobal
Call to Action: Our individual actions will lead to powerful progress to increase awareness and combat global burden of sickle cell disease. Read more: *|https://t.co/PiGweDW0Kj|* #scdglobal #WSCD2020 #sicklecellawareness
My name is Lwimba Kasongo and have been living with #sicklecell disease for 38 years.
I stay positive because at the end of the day I only have one life to live, it’s either I cry about it or remain positive and make the most out of my life.
#sicklecellinmylanguage #scdglobal
We’re excited to bring the voices of individuals living with #sicklecell disease to the forefront by highlighting sickle cell in their language and voices for #WorldSickleCellDay!
#sicklecellinmylanguage #scdglobal #WSCD20
Join the Global Alliance of Sickle Cell Disease Organizations on June 19 as we explore significant barriers to global SCD advocacy among other topics. Register today as space is limited- *|https://t.co/N8Z9ZVBQ21|*
#WSCD2020, #scdglobal, #sicklecellawareness, #GASCDO
Follow link to know what is happening at the Global Alliance of Sickle Cell Disease Organizations *|https://t.co/vL2Ni0W4N3|*
#scdglobal #GASCDO #WSCD2020 #sicklecellawareness #scdadvocacy
One unified voice in different languages. GASCDO is hosting a #WorldSickleCellDay campaign featuring individuals living with #sicklecell disease from around the world sharing ‘sickle cell disease’ in their language. Participate here: *|https://t.co/wHYpply2ka|* #scdglobal
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