Top Tweets for #SMACommunity
This platform is born from lived experiences frm #SMAcommunity, collective hope n our shared belief dat accessibility must b real, dignified n measurable.
eSwayam -the digital Accessibility map will b powered by community n citizens, scaled by technology n driven by d real users.
Incredible week at @CureSMA 2025, where I presented on the role of vascular pathology in SMA.
Truly inspiring to meet patients and their families to connect and hear their stories. Thank you for the opportunity to share and learn!
#SMAreserach #SMAcommunity
We’re proud to be part of something that puts people with SMA at the heart of care improvements 📣
Want to know what’s changing? Read the blog: https://t.co/EVZNFAJMW7 🧬
#SMACommunity #SMACareUK
While the treatment is approved only for young children, its marketer is working to develop a gene therapy for older kids and adults. Catch up on news about it out of @mdaorg 2025: https://t.co/HsjtpxEjFj
#MDAConference #SMAResearch #SMATreatment #SMACommunity
Preclinical findings suggest activating this motor neuron protein could be beneficial for SMA patients. Review the data out of @mdaorg 2025 now: https://t.co/5foG7CeMNx
#MDAConference #SMAResearch #SMATreatment #SMACommunity
My award-winning Documentary Short film DISABLED ARTIST SHOWCASE: Creating Our Spaces is now streaming on
@wildsoundfest @WabiSabiProd
. Check it out. https://t.co/zgxieT1U5g… #disability #disabled #sma #blind #filmmaker #strokesurvivor #bronx #smacommunity #awardwinning #documentary #inclusion
@dasoultoucha
@tylerperry
@BarackObama
@50cent
@KattWilliams
Explore how this type of therapy can help improve muscle strength and overall fitness in SMA: https://t.co/K4Aur36Z3f
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Did you know there’s a rare type of SMA that’s characterized by progressive muscle weakness and seizures? Learn more about it and other uncommon types here: https://t.co/oKlHXEUf1b
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
If the cold exacerbates your symptoms, have you found anything to help? Share with the community what lessens its effects:
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
If scoliosis is something you struggle with, surgery or braces may help. See what options may be right for you: https://t.co/Q89iGBGS3h
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
SMA treatment has come a long way in recent years. While there is still no cure, these therapies can help manage the disease: https://t.co/yPmhrV8up3
#SMATreatment #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
The three approved DMTs for SMA work by boosting SMN protein production. See what types and age ranges they’re indicated for: https://t.co/k0oZPHIp7x
#SMATreatment #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Approved DMTs for SMA aim to increase SMN protein levels, but they each work differently. See how here: https://t.co/eYABHZqdnX
#SMACommunity #LivingWithSMA #SMATreatment #DiseaseModifyingTherapy
For Halsey Blocher, who lives with SMA, cheering on others comes with challenges and rewards. She reflects on a few in a recent column: https://t.co/YHuluHnv3k
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
We Won! DISABLED ARTIST SHOWCASE: Creating Our Spaces #disabled #disability #disabilities #cerebralpalsy #strokesurvivor #blind #sma @smamyway_us @raredisease #smacommunity @throwerb @tammiatj #bronx #filmmaker #filmfestival #awardwinning @dasoultoucha @therealtonihickman
Two Texas brothers, Zack and Zarek Elizondo, reflect on life with SMA and the unbreakable bond it’s reinforced in their lives. https://t.co/2ZQpByhxQr
#SMAAwareness #SMACommunity #LivingWithSMA #FacesOfSMA #SMAAwarenessMonth
The rarer types of SMA are caused by mutations in genes other than SMN1. Explore them here: https://t.co/jXQI2DkycV
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Catch up on the #SMANewsToday Column of the Week here: https://t.co/DLoLA1j0cF
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA
Fatigue often has a profound effect on daily life. One patient advocate says it can even make everyday activities feel next to impossible. We explore this common but disruptive symptom here: https://t.co/bUV4lDiFpe
#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://t.co/Rv7cepPbqF
#SMANewsToday #SMANews #SMAResearch #SMAAwareness #SMACommunity
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