#SMASAwareness - Twitter Hashtag

over 3 years ago

today is smas awareness day 💜superior mesenteric artery syndrome affects 0.013% of people. and it has a terrifying mortality rate of 33% due to patients not receiving proper treatment in time. 0.013% is not too rare to care 💜 #smas #smasawareness #vascularcompressionsyndromes

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lindsaycat 🌤 @lindsaycat

over 4 years ago

Who dat at 13:12?? 🥲💜 Seriously though, super exciting to hear about new advancements in possible surgical treatments for #smasyndrome! If that's not worth celebration on #SMASAwareness day, I don't know what is! 🙌🏻🦓

Superior Mesenteric Artery Syndrome Nonprofit @smasyndromeorg

over 4 years ago

Our 2022 SMAS Awareness Day video with #smaswarriors raising awareness 4 #smasyndrome2022 because we are #nottooraretocare #gastrovascular #wilkiesyndrome 2022 SMAS Awareness (Revised) https://t.co/QwFhfhQ0YL via @YouTube

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Solunula @solunula

over 4 years ago

Purple pedi in honor of #SMASAwareness Day! Donate if you can at https://t.co/KtcsKiEfkf 💜🦓 @smasyndromeorg https://t.co/Y3yLfs42R9

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lindsaycat 🌤 @lindsaycat

over 4 years ago

Amplifying for my #SMAS sister in the UK #SMASAwareness 💜🙏🏻

Superior Mesenteric Artery Syndrome Nonprofit @smasyndromeorg

over 4 years ago

Help Nicolette get life saving surgery overseas https://t.co/Q6XA81bTF2

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lindsaycat 🌤 @lindsaycat

over 5 years ago

Also, @bouldercolorado City Council will be making a declaration regarding #RareDiseaseDay2021 at their meeting on March 3rd, where I will likely be invited to speak on behalf of the Rare community! It is truly an honor!💜💙💚🦓😊 #ShowYourStripes #smasawareness @smasyndromeorg

lindsaycat's tweet photo. Also, @bouldercolorado City Council will be making a declaration regarding #RareDiseaseDay2021 at their meeting on March 3rd, where I will likely be invited to speak on behalf of the Rare community! It is truly an honor!💜💙💚🦓😊 #ShowYourStripes #smasawareness @smasyndromeorg https://t.co/ORGbfNTn76

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lindsaycat 🌤 @lindsaycat

over 5 years ago

#RareDiseaseDay Campaign 1: I made 43 #SMASAwareness/Zebra face masks and sent them to my friends & family, asking them to keep a mask, share a mask, and wear a mask today to #ShowYourStripes and support the Rare community! @RareDiseases @rarediseaseday @smasyndromeorg

lindsaycat's tweet photo. #RareDiseaseDay Campaign 1: I made 43 #SMASAwareness/Zebra face masks and sent them to my friends & family, asking them to keep a mask, share a mask, and wear a mask today to #ShowYourStripes and support the Rare community! @RareDiseases @rarediseaseday @smasyndromeorg https://t.co/ZwK5yOeb9v

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lindsaycat 🌤 @lindsaycat

over 5 years ago

For the first campaign, I made 43 SMAS/Zebra themed face masks to send to friends and family, encouraging them to spread the word about @smasyndromeorg and @rarediseaseday! #SMASawareness #NotTooRareToCare #ShowYourStripes

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lindsaycat 🌤 @lindsaycat

over 5 years ago

Today is #RareDiseaseDay, but I've been a busy zebra all month in preparation! 😄🦓 I was diagnosed with SMAS, a rare GI disorder, in December of 2019. This year, I've been working around the clock on *two* awareness campaigns for #SMASAwareness and the Rare Disease Community!

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BeastMode Boone @BeastModeBoone_

over 5 years ago

I wore purple today for SMAS Awareness, for my mom. Thank you to anyone else who wore purple today, your support means a lot to the BMB Fam. Going live for sub game Thursday soon & my mom is going to tell her SMAS story so come say hi! #smasawareness

BeastModeBoone_'s tweet photo. I wore purple today for SMAS Awareness, for my mom. Thank you to anyone else who wore purple today, your support means a lot to the BMB Fam. Going live for sub game Thursday soon & my mom is going to tell her SMAS story so come say hi! #smasawareness https://t.co/KXhc5lUOOO

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BeastMode Boone @BeastModeBoone_

over 5 years ago

Tomorrow is national SMAS Awareness Day. BMB Fam would like to ask you to wear purple in support of this illness that is so rare it almost took my moms life before we found help. Post your purple on social media & tag us along w hashtags for #smasawareness 💜