Top Tweets for #SMASHSMA
#SMAawarenessMonth
Today's #SMAwarrior is Ellen (Type 1), fighting her #BattleAgainstSMA . Deterioration of her health happened so rapidly that she is in intense supportive care now. Without a life saving #SMAmedicine , she is losing her muscle strength day by day!
#SMAshSMA
Special thanks to Dr Seema Pai Ma'am @drseemapai Prabhat Sir @ThePksinha and Vivek Tomar Sir. #BattleAgainstSMA #SMAshSMA #Right2Live #RareDiseaseDay
We are thankful to @SSS_Foundation & all panelists
for this enriching Webinar for parents & patients on #Scoliosis ! Our heartfelt gratitude for including our Co-founder @SMA_mom to share her journey on caregiver's perspective. #awareness #BattleAgainstSMA #SMAshSMA
@pradyutbordoloi @OfficeOf_MM @curesmaindia Thanks a lot Sir .. you are our ray of hope .. #BattleAgainstSMA #SMAshSMA .. many families at @curesmaindia are eagerly waiting for a treatment! #Treatment4All #RightToLive
CureSMA India wishes everyone a Merry Christmas!! May the joy of this festive season fill your life with happiness and peace.
#BattleAgainstSMA #SMAshSMA #HappyChristmas #MerryChristmas
The minister empathized with our problems and promised to get a personal appointment with Health Minister and Chief Minister.
#BattleAgainstSMA #SMAshSMA
@CoalIndiaHQ @JoshiPralhad @raosahebdanve @CoalMinistry @PIB_Coal @MoHFW_INDIA @PIBRaipur @mansukhmandviya @BOC_MIB @ChhattisgarhCMO @PIBHindi Thanks @CoalIndiaHQ for this kind gesture. We still believe that from more and more compassionate companies like you all Indian #SMA patients @curesmaindia would get treatment soon #BattleAgainstSMA #SMAshSMA !
@curesmaindia @CoalIndiaHQ @JoshiPralhad @raosahebdanve @CoalMinistry @PIB_Coal @MoHFW_INDIA @PIBRaipur @mansukhmandviya @BOC_MIB @ChhattisgarhCMO @PIBHindi @narendramodi @PMOIndia Thanks @CoalIndiaHQ for this kind gesture. We still believe that from more and more compassionate souls like you all Indian #SMA patients @curesmaindia would get treatment soon #BattleAgainstSMA #SMAshSMA !
@curesmaindia @HospitalArtemis @newartemis @Roche Thanks for your support to our Indian SMA community @curesmaindia ! Hope #Evrysdi reaches to more and more needy patients soon.. #BattleAgainstSMA #SMAshSMA
@curesmaindia @narendramodi Thank you so much Sir...this is the day we all @curesmaindia have been waiting for..we are truly blessed to have one of ours - Rastogi family - to meet you and talk about our issues ! TREATMENT FOR ALL SMA PATIENTS is our dream. #BattleAgainstSMA #SMAshSMA
@curesmaindia @myogiadityanath @anandibenpatel #SMAtreatmentForALL #BattleAgainstSMA #SMAshSMA thank you leaders for meeting our warriors and for giving them time to explain our situation! We really believe that if strong leaders like you support us, anything is possible!
@curesmaindia @narendramodi Thank you so much Sir...this is the day we all @curesmaindia have been waiting for..we are truly blessed to have one of ours - Rastogi family - to meet you and talk about our issues ! TREATMENT FOR ALL SMA PATIENTS is our dream. #BattleAgainstSMA #SMAshSMA
Letโs come together and raise awareness amongst others and ourselves on how bone health is adversely affected in SMA patients.
#SMAawareness #Osteoporosis #SMAandOsteoporosis #SMNproteins #BattleAgainstSMA
#SMAshSMA
As a result of failure in achievement of optimal bone health, SMA affected are at a high risk of lifetime osteoporosis and are prone to fractures, even during simple day-to-day activities.
#SMA
#joyofstandingtall #fightingSMAwithSmile
#TreatSMA #BattleAgainstSMA #SMAshSMA
Decreased functional level, reduced activities, low exposure to sunlight, compromised nutritional status, intake of certain drugs, are some of the major reasons.
#rarediseaseSMA #BeyondSMA
#joyofstandingtall #fightingSMAwithSmile
#TreatSMA #BattleAgainstSMA #SMAshSMA
@swarup58 Thanks a lot for your support Sir...means a lot to us , parents @curesmaindia ! Help us win #BattleAgainstSMA #SMAshSMA
@alpanaS16 @navneetravirana @NileshS30146997 @curesmaindia @OfficeOf_MM @narendramodi @DrBharatippawar @PMOIndia @mansukhmandviya @MoHFW_INDIA Thanks a lot for listening to us! We need more people like you to help us support our #BattleAgainstSMA ! #SMAshSMA
@alpanaS16 @curesmaindia @RandhirSawarka1 @NileshS30146997 Thanks a lot for helping us Sir.. We are the parents @curesmaindia eagerly waiting to receive one of the 3 approved lofe saving drugs for #SMA . #BattleAgainstSMA
#SMAshSMA
@alpanaS16 @yadravkar @curesmaindia @Roche @NovartisIndia @NileshS30146997 @mybmc @ShivsenaComms @Sena_Tweets @UdhavThackeray @CMOMaharashtra @OfficeofUT Thanks a lot Sir for giving us time and supporting our cause #BattleAgainstSMA . Time is ticking for our children suffering from #SMA
Hopefully soon with our efficient leaders' support, all Indian patients will get atleast one of the 3 approved treatments #Hope #SMAshSMA
@VTankha @PMOIndia @nsitharaman @OfficeOf_MM Thank you so much Sir for addressing our cause & supporting our #BattleAgainstSMA .
JOIN HANDS WITH @curesmaindia
To #SMAshSMA
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