Top Tweets for #SORDDeficiency
More than 95% of #raredisease patients lack an FDA approved treatment for their condition. CMT-SORD patients need an approved treatment now, & FDA has authority to make it happen. #SORDdeficiency
#CMTSORDFightforaTreatment
Sign here: https://t.co/NkgVjMc6BM
The CMT-SORD community urgently needs effective treatment. Sign the petition to urge #FDA to listen to the voices of patients to review
the potential first-ever treatment for #SORDDeficiency.
Sign petition: https://t.co/NkgVjMbyMe
#MakeitHappenforCMTSORD
Breaking News for SORD Deficiency Patients! Read press release here: https://t.co/Yoh8WdYGIf #appliedtherapeutics #hnf4cmt #hnf #sorddeficiency #sord #charcotmarietooth #cmtwegotthis
Clarifying the confusion of the name by exploring what makes #SORDDeficiency so different from every other CMT subtype, and discussing why SORD-Deficiency is #CMT. #sord #cmtastar #sordcmt @Applied_Tx
https://t.co/WpqGruUfsJ
Join us 9/13/22 @7pm ET Understand #SORDDeficiency!
•Identify the steps to take if you want to be tested for SORD Deficiency
•Share research that is underway
•Discuss opportunities to participate in #clinicaltrials
•Q & A https://t.co/zmARtqCnUl
SPONSORED POST: If your patients have CMT or HMN with an unknown genetic cause, they may have #SORDDeficiency. These patients may qualify for testing and participation in the INSPIRE clinical trial. Learn more at https://t.co/xvi15E0bOL or email [email protected]
Do you have #CMT2 or #dHMN with an unknown genetic cause of disease? You may have #SORD Deficiency. Testing takes a few minutes. Learn more by emailing: [email protected] #SORDDeficiency #charcotmarietooth #CMT #cmtneuropathy #cmtwegotthis
Study Launches to Evaluate AT-007 for SORD Deficiency https://t.co/JRv6cC1VnG #AT007 #SORDdeficiency #sorbitol #medicalresearch #clinicaltrial @camraredisease
Do you have #CMT2 or #dHMN with an unknown #genetic cause of disease? You may have #SORD
Deficiency. Testing only takes a few minutes. Learn more by emailing: [email protected]
#SORDDeficiency #charcotmarietooth #CMT #cmtausa #cmtwegotthis
Could you be 1 of the estimated 3300 patients in the US with the gene causing SORD Deficiency? You may have been diagnosed with #CMT2, or distal hereditary motor neuropathy (#dHMN). Join us as we learn more about #SORDDeficiency: https://t.co/ymXqhpm5L3
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