Top Tweets for #SPAEN18
Listen to Roger Wilson @Amocras and @jeanyvesblay talking about highlights of the roundtable of #patient #advocates and #experts during the @myESMO #saroma and #GIST symposium 2018:
https://t.co/UEgrPy0dp3
#SPAEN18 #advocacy #research #evidencebasedmedicine #networking
“We can learn from pediatric oncologists: They look at late effects of treatment, set up guidelines on what to screen after specific treatments, late effect clinics & lifestyle advises.”
@Winette_vdGraaf
#SPAEN18 #sarcoma #childhoodcancer #ICCD2018 #lateeffects
Photo: U.Deck

"The outcome for children, adolescents & young adults with cancer has markedly improved. However, sarcoma belong to the subtypes where approximately 30% of the patients suffer from relapse."
Uta Dirksen #SPAEN18
#ChildhoodCancerDay #ICCD2018 #Ewing #Osteosarcoma
Photo: Uli Deck

@myESMO Thanks for giving us the opportunity, it’s a pleasure to be here to learn and network. #sarcoma #SPAEN18 #gist #ESMO @casali_pg @apdeitos @jeanyvesblay
So great to have you on the board, Annika! We are looking forward to working with you!
#SPAEN18 https://t.co/kMWlIphq2Q
Brilliant speech, @Winette_vdGraaf - it was great to have you here for our conference.
All of this wouldn't work without the cooperation with you and all the other comitted experts!
#SPAEN18 #sarcoma #GIST https://t.co/9OcIP4PkX2
Thanks @sarcomapatients for all your hard work as European Sarcoma patients advocates. Your work is outstanding!
It was a privilege to speak about the specific issues young sarcoma patients are faced with, and how to address them. https://t.co/yM1Z7favAJ
Thank you @sarcomapatients for this precious award we are so happy to receive on #WorldCancerDay and to know #WeCanICan take our Advocate in Action plans ahead with support from you & @stompoutcancer @vijivenkatesh

Thanks, @DrSarcoma - much appreaciated! We treasure the close cooperation with you, the experts - wouldn't work without you!
#SPAEN18 #sarcoma #GIST #StrongerTogether https://t.co/IYnnawEnoa
@sarcomapatients Thanks to #SPAEN18 for helping to bring the world together and make it a better place for us all!
@sarcomapatients Thanks to #SPAEN18 for helping to bring the world together and make it a better place for us all!
Happy to congratulate the winners of the SPAEN Advocacy in Action award 2017:
1. Friends of Max, India @Friends_Of_Max
2. The Polish SARCOMA Patients Association, Poland @sarcoma_pl
3. Associazione Paola, Italy
Keep the great work up!
#SPAEN18 #sarcoma #GIST
Photo: Uli Deck

Inspiring to be a part of @sarcomapatients #SPAEN18 for #sarcoma and #GIST2018 on @WorldCancerDay #WeCanICan with @DrSarcoma Ian Judson @royalmarsdenNHS @Winette_vdGraaf @myESMO @spaen https://t.co/wge38CWTIt
Today is World Cancer Day!
SPAEN is meeting today for our Annual Conference, making the motto "We can, I can" come to life.
Together we can make a difference for those affected by sarcomas!
#Worldcancerday #WCD #WecanIcan #cancer #sarcoma #GIST #SPAEN18
Photo: Uli Deck

Nothing like a group photo to prove you’ve ‘worked’ all weekend. Some work is better than others! Thank you @sarcomapatients for inviting me to your annual conference, very inspiring https://t.co/Vso7Zb2T2n
Need to understand the culture of an organisation to facilitate change. “Organisations are people not bricks and mortar” #SPAEN18
Today is World Cancer Day!
SPAEN is meeting today for our Annual Conference, making the motto "We can, I can" come to life.
Together we can make a difference for those affected by sarcomas!
#Worldcancerday #WCD #WecanIcan #cancer #sarcoma #GIST #SPAEN18
Photo: Uli Deck

Rachael Tayer asking "Do patients with sarcoma have the same issues as patients with other cancers?" when it comes to Health-related Quality of Life. The answer was "no"!
#SPAEN18 #sarcoma #GIST #desmoid #QoL #QualityofLife
@ctandrmt @OlgaHusson
Photo: Uli Deck

Winette van der Graaf talking about youn cancer patients at #SPAEN18 @sarcomapatients #WorldCancerDay2018

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