Top Tweets for #SUDEPACTIONDAY
On #SUDEPActionDay, Quantum Neurodiagnostics supports #StopSUDEP.
Our 24/7 remote EEG monitoring and expert interpretation help detect seizures and support timely clinical decisions.
Together, we can advance epilepsy care and awareness.
#EpilepsyAwareness #EEG
The Epilepsy Deaths Register offers grieving families a meaningful way to honour their loved ones by directly contributing to research that can protect others: https://t.co/OtfnBDfIh7
Please share this post so that others may contribute to this vital research for #SUDEPActionDay
Every person with epilepsy deserves safe, appropriate care. Every family deserves to know that everything possible is being done to protect their loved one. No one should have to campaign relentlessly to get the care needed π please Sign & Share the petition
#SUDEPActionDay
"I'm a mum, a campaigner and a policy champion for SUDEP Action."
(SUDEP Action Policy Champion, Marie James)
Sign our petition to the Prime Minister: https://t.co/KADkFoVjUy
#SUDEPActionDay #StopSUDEP #SUDEP #Epilepsy
#SUDEPActionDay - #PatsyCustis stepdaughter of #president #GeorgeWashington was possibly the 1st #SUDEP medically recorded #epilepsyawareness #epilepsy #seizures #seizuressuck #epilepsywarrior #epilepsyfacts #epilepsyawarenessmonth #sudepawareness #cameronboyce #marthawashington
"There is still so much stigma around epilepsy, globally, and within the UK. Our voices aren't heard... its a fight to get them heard."
(Policy Champion, Kristi McDonald)
Sign our petition to the Prime Minister: https://t.co/KADkFoVjUy
#SUDEPActionDay #StopSUDEP #Epilepsy
Christi shares her daughter Quinnβs story because no family should have to learn about SUDEP after losing a child. "Awareness, education, and research can save lives. If sharing Quinnβs life helps even one family, her story made a difference." Read more: https://t.co/dBV5AmuN5s
"I'm a mum, a campaigner and a policy champion for SUDEP Action."
(SUDEP Action Policy Champion, Marie James)
Sign our petition to the Prime Minister: https://t.co/KADkFoVjUy
#SUDEPActionDay #StopSUDEP #SUDEP #Epilepsy
This is a post from a friend for whom I have great respect, @alove_1980, discussing Sudden Unexpected Death In Epilepsy Action Day which is today. Please take a moment to read what she posted. #epilepsy #SUDEPActionDay
"Action must follow to bring epilepsy and its risks out of the shadows and to the forefront of care."
Decades of reports have found systemic failure when its come to people living with #epilepsy and learning disabilities: https://t.co/P6ztTn1LT5
#SUDEPActionDay #SUDEP
Take action for your patients with epilepsy and download the SUDEP & Seizure Safety Checklist for #SUDEPActionDay
This Checklist, available for both adults and children, is a structured tool to help assist you in discussing #SUDEP risk factors: https://t.co/tkU1maka1R
#Epilepsy
Latest Purple Chorus podcast: CEO Sammy Ashby & @w_stoker discuss βWhy Didnβt My Neurologist Tell Me About SUDEP?β & epilepsy risks.
Watch the full video: https://t.co/SoYAyWh2Xo
#SUDEP #EpilepsyAwareness #SUDEPActionDay
Hablar de la SUDEP da miedo.
No hablar es peor
Hoy es el DΓa de AcciΓ³n contra la Muerte SΓΊbita e Inesperada en la Epilepsia, que se lleva decenas de miles de vidas al aΓ±o
π
Cameron Boyce, con 20 aΓ±os, actor de Los Descendientes, es una de ellas.
#SUDEPActionDay #Epilepsia
Today is #SUDEPActionDay. Every conversation is an opportunity to inform, empower and take action. Together, we can make a difference.
Join us. Share. Start a conversation. Help #StopSUDEP.
Learn more: https://t.co/v8jBwpqPFQ & https://t.co/PlwAAK0mjr
Do something amazing for #SUDEPActionDay - sign up or donate to #MyWayto5K! πββοΈ
Every 5K & donation raises vital awareness of epilepsy & SUDEP. People that take part share their story and experience of SUDEP β could you do the same?
Donate or sign up: https://t.co/jh6gkfejjR
#SUDEPActionDay WATCH: https://t.co/dll8YfcAiU
Today, we raise awareness about SUDEP (Sudden Unexpected Death in Epilepsy) and honor the lives lost to this devastating reality. π π π
Education, awareness, and open conversations matter.
#SUDEPAwareness #SUDEPACTIONDAY #EpilepsyAwareness #Seizures #Epilepsy
Did you know SUDEP accounts for about 50% of epilepsy-related deaths? π
This #SUDEPActionDay, help us save lives. Your donation funds critical research, safety education and support for grieving families.
Donate now: https://t.co/0dfEjakCTU
#EpilepsyAwareness
How does sharing risk messages differ in the UK and the US?
Hear from CEO Sammy Ashby and Alison Kukla from PAME (Partners Against Mortality in Epilepsy) about talking about SUDEP and empowering people with epilepsy.
Watch here: https://t.co/4Gl4RUMWBQ
#SUDEPActionDay
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