Top Tweets for #SWFMonthOfAwareness
๐ This week's SWF Million Miles Walk Warriors...
It's not too late to join in the fun! Sign up here: https://t.co/hNkB7bDkXF and let's collectively walk a million miles for Sturge-Weber syndrome.โค๏ธ
#MillionMilesWalk #SWFMillionMiles #SWFMonthofAwareness #SWFWarrior
๐ Pictures from the Sturge-Weber Syndrome Family Education Day!
Shout out to M. Sahin, M. Shirley, A. Shah, M. Chiu, K. Boyer, C. Juhasz, A. Pinto, & J. Bischoff AND Thank you @BostonChildrens for all you do for the SWS community. โค๏ธ
#SWFWARRIOR #SWFMonthOfAwareness
๐ On this day in 2013, researchers discovered the GNAQ gene mutation that causes Sturge-Weber syndrome. It was a momentous day in SWS history.๐
Thank you Helen Kim for your wonderful message. ๐
@rarediseasesnet
#SWFWARRIOR #SWFMonthOfAwareness #IAmAWarrior
We value you. Who you are inside and out. Be You. Be Beautiful. Everyday. โค๏ธ
#SWFWARRIOR #SWFMonthOfAwareness #IAmAWarrior
#sturgewebersyndrome #swfunited #sturgeweberfoundation #portwinestain #birthmarks #seizures #portwinebirthmark
๐ Become an SWF Warrior Today! Donate so we continue to support SWS patients, caregivers, and researchers. https://t.co/mogn1PFJOQ
#SWFWARRIOR #SWFMonthOfAwareness #IAmAWarrior
READ: New Mouse Model Enables Discovery of Potential Treatment for Rare Vascular Tumorsโand Beyond @CincyChildrens
๐ https://t.co/nUlnJizFZD
#SWFMonthOfAwareness #SWSresearch #science #research #sturgewebersydrome #sturgeweberfoundation #portwinebirthmarks #vasculartumor
๐ In this issue of Branching Out, Joyce Biscoff, PhD discusses the 10-year anniversary of the discovery of GNAQ, the gene that causes Sturge-Weber syndrome, and what's next. ๐
๐ Download https://t.co/cYrJIX09Gt
#SWFWARRIOR #SWFMonthOfAwareness #sturgewebersyndrome
๐ The Sturge-Weber Foundation Month of Awareness starts today! If you haven't grabbed your FREE MOA Warrior graphics ๐ https://t.co/CMLVhodYs2
Donate: Burgundy May MOA 2023
https://t.co/mogn1PFJOQ
#SWFWARRIOR #SWFMonthOfAwareness #IAmAWarrior
๐ค How was Sturge-Weber syndrome named?
Three men who changed medical history:
โข 1879โWilliam Allen Sturge
โข 1922โFrederick Parkes Weber
โข 1935โHilding Bergstrand
Aimee F. Luat, MD's @ChildrensDMC
#SWFMonthOfAwareness #sturgewebersyndrome #swfunited
๐ Myla's Mission raised over $17,000! #SWFWARRIORS Thomas and Molly Speer! โค
Event sponsors @CPTavern @HoltkampWinery @StMarysTavern
@mylasmissionforSWS
๐https://t.co/cYrJIX09Gt
#sturgewebersyndrome
#MillionMilesWalk #SWFMillionMiles #SWFMonthofAwareness
For 35 years The Sturge-Weber Foundation has been here to help those with SWS, PWS, KT, and related health issues. For a reason, a season, or a lifetime.
Learn more at: https://t.co/cad79K0KI2
#sturgewebersyndrome #sturgeweberfoundation #SWFMonthofAwareness #SWFWarrior
Meet Lily of Worcestershire, UK. She has been featured at https://t.co/DxPeQbFd3L โค which celebrates kindness, compassion, and heart-melting stories.
@miss.lily.sws
https://t.co/hY553oxZha
@lovewhatmatters
#swfwarrior #sturgeweberfoundation #SWFMonthofAwareness
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