Top Tweets for #ScreenTodayForSMA
Here at SMA UK, We are so proud to support Jesyโs petition, calling for SMA to be added to the UK newborn screening heel-prick test ๐ฃ Please take a moment to read, share and sign ๐ https://t.co/GwIadlnfi6 ๐ #ScreenTodayForSMA
Read more about our Newborn Screening Campaign here ๐ https://t.co/x3COIDz4fp
#ScreenTodayForSMA #SMAUK
ยฃ4 โ a small cost for something that can change everything.
Early SMA screening can give a baby the chance to walk, breathe and eat independently and avoid preventable disability. @wesstreeting #ScreenTodayForSMA
Thereโs been a lot of discussion recently about the cost of newborn screening, so we wanted to share the facts. ๐ฃ
To add SMA to the current newborn screening test, it would cost ยฃ4 per baby.
Watch this emotive short film where 4-year-old Ollie shares the things heโll never get to do because SMA wasnโt included in the newborn screening test when he was born. ๐ https://t.co/tt1ZVdwP1j
Together, we can change the future for children with SMA.
#ScreenTodayForSMA
A huge thank you to everyone who has sent in their pictures so far! ๐คฉ Here's how YOU can join in with our #SMAAwarenessMonth campaign!
๐ฅ Download the poster from our website
๐ธ Snap a photo of you holding it
๐ฃ Share it and tag us!
#ScreenTodayForSMA
In this short video, Neil talks about the short time his family had with their son Teddy who had SMA Type 1, and why he supports pre-symptomatic screening and treatment for SMA ๐ฃ
#ScreenTodayForSMA #SMAAwarenessMonth
๐ https://t.co/D6OMFQvVqB
Leading SMA experts highlight that the UK's lack of newborn screening has harmed children diagnosed with SMA compared to 70% of Europe and other countries.
We are a part of the @sma_nbsalliance which calls on the UK NSC & @NHSuk to screen all newborns for SMA.
#ScreenTodayforSMA
The UK is lagging behind the US and Europe in newborn screening for SMA. SMA UK is raising awareness, and we need your help! Write to your MP using our template letter ๐ฃ For details and the letter, visit our blog ๐ https://t.co/EYLNlh0if8
Find out why it is more important than ever to implement newborn screening for SMA in the UK and what needs to happen to make it a reality as soon as possible. ๐ฃ
Read our latest news piece at https://t.co/nS3vbaYgED ๐
#ScreenTodayForSMA
Fantastic to see that the Minister for Health in Ireland has announced additional funding to ensure the roll out of screening for SMA across Ireland in 2024. We hope that the UK can soon follow suit with an in service evaluation for the whole of the UK. #ScreenTodayForSMA
We must remember why newborn screening for SMA matters so much. Our barometer shows that 332 babies have been diagnosed with SMA too late since treatments have been available in the UK.
#ScreenTodayForSMA #SMA #SpinalMuscularAtrophy #NewbornScreening
Several Alliance members joined the โEvery Moment Mattersโ Parliamentary Roundtable today in Westminster to discuss newborn screening for SMA. #ScreenTodayForSMA ๐ฃ
Itโs so important to remember why newborn screening for SMA matters so much. Our barometer shows that 315 babies have been diagnosed with SMA too late since treatments have been available in the UK.
#ScreenTodayForSMA #SMA #SpinalMuscularAtrophy #NewbornScreening
๐ฃ Itโs so important to remember why newborn screening for SMA matters so much. Our monthly barometer shows that 294 babies have been diagnosed with SMA too late since treatments have been available in the UK. #ScreenTodayForSMA #SpinalMuscularAtrophy
Today is international neonatal screening day and the UK SMA Newborn Screening Alliance is meeting to discuss what more we can do to support newborn screening for SMA at the earliest possible opportunity ๐ฃ #ScreenTodayForSMA ๐ก
The UK National Screening Committee is meeting today to discuss newborn screening for SMA. We will update the community as soon as we know the outcome of these discussions. #ScreenTodayForSMA
At the recent SMA Europe meeting in Prague, it was surprising how few countries were worried about newborn screening for SMA - because they already have it! We are continuing to work with UK NSC to push for a rapid decision in the UK. It is unethical to delay. #ScreenTodayForSMA
Weโre delighted that NICE has published new guidance recommending Zolgensma as an option for treating pre-symptomatic SMA. ๐ฃ This recommendation is an important development in relation to newborn screening for SMA: https://t.co/s5RHzZ7XwQ #ScreenTodayForSMA
๐ฃImportant work is underway to understand the ethics and acceptability of newborn screening for the general population - read more about it here ๐ https://t.co/zSozjQOui3
#ScreenTodayForSMA #SpinalMuscularAtrophy
It was great to meet members of the Rare, Genetic and Undiagnosed Conditions All Party Parliamentary Group yesterday. We hope you found it helpful to hear more about the urgent need for newborn screening for SMA. @LizTwistMP #ScreenTodayForSMA
Everything points to an urgent need for newborn screening on SMA. Read about the temporary change to Zolgensma treatment eligibility and why this emphasises the need for newborn screening: https://t.co/FXMj41beK9 #ScreenTodayForSMA #NewbornScreening #RareDiseases
Last Seen Hashtags on Sotwe
doublepenetration
Seen from Netherlands
artist
Seen from United States
pyt
Seen from Germany
้ๅฒ
Seen from United States
awekviral
Seen from Malaysia
ebonypyt
Seen from Russia
giantess
Seen from United Kingdom
destroyedhole
Seen from Netherlands
เธซเธฅเธธเธเธเธฒเธเธเนเธฒเธ
Seen from Thailand
momson()+*+*+filter:native_video
Seen from Brazil
Most Popular Users
Elon Musk 
@elonmusk
240.4M followers
Barack Obama
@barackobama
119.3M followers
Donald J. Trump
@realdonaldtrump
111.7M followers
Cristiano Ronaldo
@cristiano
110.2M followers
Narendra Modi
@narendramodi
107M followers
Rihanna
@rihanna
97.6M followers
NASA
@nasa
92.1M followers
Justin Bieber
@justinbieber
90.8M followers
KATY PERRY
@katyperry
87.4M followers
Taylor Swift
@taylorswift13
81.3M followers
Lady Gaga
@ladygaga
72.8M followers
Kim Kardashian
@kimkardashian
69.7M followers
Virat Kohli
@imvkohli
69.5M followers
YouTube
@youtube
68.7M followers
Bill Gates
@billgates
63.7M followers
The Ellen Show
@theellenshow
62.5M followers
Neymar Jr
@neymarjr
62.2M followers
CNN
@cnn
61.9M followers
X
@x
60.8M followers
Selena Gomez
@selenagomez
60.5M followers