Top Tweets for #SuTP

ILO Türkiye @iloankara

4 days ago

The ILO and KfW are extending their partnership in Türkiye to promote decent work, formal employment and responses to evolving labour market needs through December 2027. Read the press release 👉https://t.co/QDMjNEC3S4 #decentwork #formalization #ILOTürkiye #SuTP

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Standing Up to POTS @POTSActivist

7 days ago

Register today for the 13th Annual #SUTP 5K/2K! #POTS families join together to support one another and fundraise for POTS #research to improve quality of life. Cost is $30 for adults and $20 for those 22 and under and includes a tshirt. https://t.co/EVWFy9G58K #SUTP5K

POTSActivist's tweet photo. Register today for the 13th Annual #SUTP 5K/2K! #POTS families join together to support one another and fundraise for POTS #research to improve quality of life. Cost is $30 for adults and $20 for those 22 and under and includes a tshirt. https://t.co/EVWFy9G58K #SUTP5K https://t.co/z3AK9KduER

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Standing Up to POTS @POTSActivist

14 days ago

Register today for the 13th Annual #SUTP 5K/2K! #POTS families join together to support one another and fundraise for POTS #research to improve quality of life. Cost is $30 for adults and $20 for those 22 and under and includes a tshirt. https://t.co/EVWFy9G58K #SUTP5K

POTSActivist's tweet photo. Register today for the 13th Annual #SUTP 5K/2K! #POTS families join together to support one another and fundraise for POTS #research to improve quality of life. Cost is $30 for adults and $20 for those 22 and under and includes a tshirt. https://t.co/EVWFy9G58K #SUTP5K https://t.co/Bz2JEpG5o8

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Standing Up to POTS @POTSActivist

about 1 month ago

We’re incredibly grateful to Mike and Ann Patenaude, our Presenting Sponsors for the 13th Annual #SUTP 5K/2K! Their generosity is making a difference for the #POTS community—helping us fund vital #research. Thank you for standing up and inspiring hope! 💙 https://t.co/EVWFy9G58K

POTSActivist's tweet photo. We’re incredibly grateful to Mike and Ann Patenaude, our Presenting Sponsors for the 13th Annual #SUTP 5K/2K! Their generosity is making a difference for the #POTS community—helping us fund vital #research. Thank you for standing up and inspiring hope! 💙 https://t.co/EVWFy9G58K https://t.co/2U3l6jtqyv

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Standing Up to POTS @POTSActivist

about 2 months ago

Join us on Halloween morning for the 13th annual #SUTP 5K/2K event at Wittenberg or virtually. Virtual participants can choose the time, place, and length of their event. This is a great opportunity for families to support their #POTSie! https://t.co/EVWFy9G58K #spoonie #SUTP5K

POTSActivist's tweet photo. Join us on Halloween morning for the 13th annual #SUTP 5K/2K event at Wittenberg or virtually. Virtual participants can choose the time, place, and length of their event. This is a great opportunity for families to support their #POTSie! https://t.co/EVWFy9G58K #spoonie #SUTP5K https://t.co/yqr3izFZly

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Standing Up to POTS @POTSActivist

about 2 months ago

The 13th Annual #SUTP 5K/2K on Halloween - how fitting! We hope you will join us as we walk, run, and roll to improve the quality of life for those with #POTS through #research, advocacy and support. https://t.co/EVWFy9G58K #spoonie #SUTP5K

POTSActivist's tweet photo. The 13th Annual #SUTP 5K/2K on Halloween - how fitting! We hope you will join us as we walk, run, and roll to improve the quality of life for those with #POTS through #research, advocacy and support. https://t.co/EVWFy9G58K #spoonie #SUTP5K https://t.co/SwLHamCMSq

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Standing Up to POTS @POTSActivist

2 months ago

Join us on Halloween morning either in person or virtually for the 13th annual #SUTP 5K/2K event. Together, we can continue to improve the quality of life for those with #POTS through #research, advocacy and support. https://t.co/EVWFy9G58K #spoonie #SUTP5K

POTSActivist's tweet photo. Join us on Halloween morning either in person or virtually for the 13th annual #SUTP 5K/2K event. Together, we can continue to improve the quality of life for those with #POTS through #research, advocacy and support. https://t.co/EVWFy9G58K #spoonie #SUTP5K https://t.co/A19TYfCZiN

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Standing Up to POTS @POTSActivist

3 months ago

We hope that you will join us in person or virtually for our annual #SUTP 5K/2K! We walk, run, and roll to raise funds for #POTS #research. https://t.co/EVWFy9G58K #spoonie #SUTP5K

POTSActivist's tweet photo. We hope that you will join us in person or virtually for our annual #SUTP 5K/2K! We walk, run, and roll to raise funds for #POTS #research. https://t.co/EVWFy9G58K #spoonie #SUTP5K https://t.co/HqiISajcIU

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Standing Up to POTS @POTSActivist

3 months ago

Registration is now open for our annual #SUTP 5K/2K. We hope that you will join us in person or virtually as part of our largest event fundraiser of the year. All proceeds benefit #POTS #research. https://t.co/EVWFy9G58K #spoonie #SUTP5K

POTSActivist's tweet photo. Registration is now open for our annual #SUTP 5K/2K. We hope that you will join us in person or virtually as part of our largest event fundraiser of the year. All proceeds benefit #POTS #research. https://t.co/EVWFy9G58K #spoonie #SUTP5K https://t.co/a5idgs8MJN

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Standing Up to POTS @POTSActivist

6 months ago

Some days with POTS feel dark. If you're in the middle of a "dark" day right now, this is your reminder that you aren't alone and your story isn't over. What brings you light today? #POTS #motivationalmonday #SUTP #awareness #chronicillness

POTSActivist's tweet photo. Some days with POTS feel dark. If you're in the middle of a "dark" day right now, this is your reminder that you aren't alone and your story isn't over. What brings you light today?

#POTS #motivationalmonday #SUTP #awareness #chronicillness https://t.co/eLbKlRXGAv

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Standing Up to POTS @POTSActivist

6 months ago

Living with POTS is hard enough. No one should have to justify their illness or pain. #POTS #motivationalmonday #SUTP #advocacy #awareness #invisibleillness

POTSActivist's tweet photo. Living with POTS is hard enough. No one should have to justify their illness or pain.

#POTS #motivationalmonday #SUTP #advocacy #awareness #invisibleillness https://t.co/I7QfmNQLa6

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Standing Up to POTS @POTSActivist

7 months ago

Differences in #POTS symptom severity may be based on environmental trigger: infection, physical trauma or hormonal changes. Trauma (concussion, accident, surgery) was linked with highest symptom severity. Thanks to all who responded to our survey! https://t.co/SCkmcDpq0e #SUTP

POTSActivist's tweet photo. Differences in #POTS symptom severity may be based on environmental trigger: infection, physical trauma or hormonal changes. Trauma (concussion, accident, surgery) was linked with highest symptom severity. Thanks to all who responded to our survey! https://t.co/SCkmcDpq0e #SUTP https://t.co/EKEUWbmPVX

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Standing Up to POTS @POTSActivist

9 months ago

Standing Up to #POTS works all year to serve our community. Will you consider supporting our efforts? #SUTP is run by a small group of volunteers - there are no paychecks and our overhead is very low - meaning that you money goes where you want it to. https://t.co/55lwpuT1EC

POTSActivist's tweet photo. Standing Up to #POTS works all year to serve our community. Will you consider supporting our efforts? #SUTP is run by a small group of volunteers - there are no paychecks and our overhead is very low - meaning that you money goes where you want it to. https://t.co/55lwpuT1EC https://t.co/ZYZ44hZcxC

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Standing Up to POTS @POTSActivist

9 months ago

Your support means so much to us at #SUTP. We are 100% volunteers - no paychecks, little overhead. We have been serving the #POTS community since 2014. Won't you join us today? https://t.co/55lwpuT1EC

POTSActivist's tweet photo. Your support means so much to us at #SUTP. We are 100% volunteers - no paychecks, little overhead. We have been serving the #POTS community since 2014. Won't you join us today? https://t.co/55lwpuT1EC https://t.co/1unmNFFwlW

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Standing Up to POTS @POTSActivist

9 months ago

#SUTP works all year to support the #POTS community. Research, advocacy, and support continue to be our focus as we work together to improve quality of life. Please support our efforts as we continue to produce The #POTScast and fund POTS research! https://t.co/55lwpuT1EC

POTSActivist's tweet photo. #SUTP works all year to support the #POTS community. Research, advocacy, and support continue to be our focus as we work together to improve quality of life. Please support our efforts as we continue to produce The #POTScast and fund POTS research! https://t.co/55lwpuT1EC https://t.co/AuGbMYWmsO

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Standing Up to POTS @POTSActivist

10 months ago

We hope that you have a wonderful holiday season, and hope that you will include #SUTP in your end of year giving. We work all year on The #POTScast and to raise money to fund #POTS research. Won't you join with us to fund these efforts? https://t.co/55lwpuT1EC

POTSActivist's tweet photo. We hope that you have a wonderful holiday season, and hope that you will include #SUTP in your end of year giving. We work all year on The #POTScast and to raise money to fund #POTS research. Won't you join with us to fund these efforts? https://t.co/55lwpuT1EC https://t.co/Ui5PJIufrQ

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Standing Up to POTS @POTSActivist

10 months ago

During this holiday season, we hope that you will consider supporting The #POTScast and the #SUTP Research Fund. We work year round to bring you the latest #POTS information and fund researchers focusing on new, breakthrough treatments for POTS patients. https://t.co/55lwpuT1EC

POTSActivist's tweet photo. During this holiday season, we hope that you will consider supporting The #POTScast and the #SUTP Research Fund. We work year round to bring you the latest #POTS information and fund researchers focusing on new, breakthrough treatments for POTS patients. https://t.co/55lwpuT1EC https://t.co/yr1DJJjtz6

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Standing Up to POTS @POTSActivist

10 months ago

Please fill out this Google Form survey to help further #POTS research by Ainsley, a high school honor student. We want to hear about your diagnostic experiences, your story! This research has been IRB approved. #SUTP #research

POTSActivist's tweet photo. Please fill out this Google Form survey to help further #POTS research by Ainsley, a high school honor student. We want to hear about your diagnostic experiences, your story! This research has been IRB approved. #SUTP #research https://t.co/Fsb9HViEuZ

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Standing Up to POTS @POTSActivist

10 months ago

Our largest fundraiser of the year is the annual 5K/2K. We appreciate all of the support around this event, and hope to continue to fund #POTS research with your help. Donations of all sizes make a difference! You can donate once or every month at https://t.co/55lwpuT1EC #SUTP

POTSActivist's tweet photo. Our largest fundraiser of the year is the annual 5K/2K. We appreciate all of the support around this event, and hope to continue to fund #POTS research with your help. Donations of all sizes make a difference! You can donate once or every month at https://t.co/55lwpuT1EC #SUTP https://t.co/YATwEROSWI

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Standing Up to POTS @POTSActivist

11 months ago

There's no right way to be sick. There's no wrong way to try to manage it all. Living with a chronic illness is deeply personal and individual. Your path is what's right for you. #POTS #dysautonomia #chronicillness #motivationalmonday #SUTP #awareness

POTSActivist's tweet photo. There's no right way to be sick. There's no wrong way to try to manage it all. Living with a chronic illness is deeply personal and individual. Your path is what's right for you.

#POTS #dysautonomia #chronicillness #motivationalmonday #SUTP #awareness https://t.co/IiD5BpqkOu

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