Top Tweets for #SystemicJIA
Rosa is 7 and a half years old. She was diagnosed with #SystemicJIA (also known as #Stillsdisease) when she was nearly 4.
Rosa's poster says "I am #MoreThanMyArthritis. I'm a dancer and a rugby player. I am strong and I am so good at roller skating. I am a friend."
#ThinkJIA
Our new Systemic JIA / Still's disease resource is now on it's way to rheumatology hospitals.
#ThinkJIA #StillsDisease #sJIA #SystemicJIA #PaedRheum #arthritis #rheumatology #PaediatricRheumatology @rheumatologyuk @NICEComms @pscommissioner
We are hugely grateful to Professor Paul Brogan for sharing his expertise with us in our recent webinar about #SystemicJIA (#sJIA) which is also known as #StillsDisease.
The webinar is now available to watch on-demand on our website at
https://t.co/zXJhC8RtjA
#ThinkJIA
Last chance to sign up! Sign-up for this webinar will be closing today (Friday) so register now and submit your questions at https://t.co/zXJhC8RtjA
#ThinkJIA #sJIA #SystemicJIA #JIAUK #JIA #StillsDisease
If your child is affected by the subtype of JIA known as #systemicJIA or #sJIA (sometimes also called juvenile onset Still's disease), then join us for this informative webinar with Professor Paul Brogan on Tuesday 7th May at 2pm.
Register now at https://t.co/zXJhC8RtjA
#ThinkJIA
If your child is affected by the subtype of JIA known as #systemicJIA or #sJIA (sometimes also called juvenile onset Still's disease), then join us for this informative webinar with Professor Paul Brogan on Tuesday 7th May at 2pm.
Register now at https://t.co/zXJhC8RtjA
#ThinkJIA
We've just sent out our latest e-newsletter with details of our next quarterly Parent Zoom meeting and an upcoming #SystemicJIA (#sJIA) webinar.
Make sure you are signed up to receive emails via our website at https://t.co/n8u2UFyxav so you don't miss out.
#ThinkJIA #JIA #JIAUK
How little these babes were π₯Ί β¦ we honor those who have been taken by this monster of disease, and are so thankful as parents for the @sjiafoundation for helping us to be stronger together. #CureSjia #stillsdisease #systemicJIA
Stronger together. #curesjia
A year ago today ... our last βoutingβ before The Great Quarantine ... spent advocating for #systemicJIA #sjia and giving a face to a disease. #advocatelikeamother
It took almost 4 years,multiple failed meds,multiple failed procedures,a village that supported us,and 1 clinical drug trial to hear the words βNo active joints. Congratulations.β The feeling is surreal. #CureSJIA #PedsRheum #StillsDisease #DrugTrial #SystemicJIA #Isthisreallife
Monday comin atcha from Reasearch Clinic β drove 3 hours for a dose change π@CincyChildrens #pedsrheum #researchpatient #cureSJIA #systemicJIA @sjiafoundation
A story to make your day! My 5 year old tells his story with SJIA and how @sandy_burnham at @ChildrensPhila saved his life. @sjiafoundation #cureSJIA #GP4canitailusomethin https://t.co/cDQ2OddX8A
When your 6 year old considers her research team to be her friends and she asks if she can make them something for Christmas, of course you do it. #SystemicJIA #CureSJIA #pedsrheum #researchpatient #drugtrial
Over 350+ globally registered for the @sjiafoundation conference. Excited to learn today and share our trial experience tomorrow. #CureSJIA #SystemicJIA #RareDisease
Itβs #autoinflammatory awareness month! Our 3yo #systemicjia warrior is doing amazingly and we hope she continues that way! Check out the @AAlliance_SAID to learn more about autoinflammatory diseases. #curesjia #stillsdisease #sjia #autoinflammation #morethanafever
Entering the 5 year old in a new clinical trial β started the 12 week wash out of TNF blocker 2.5 weeks ago. Fingers crossed this is the right move. Flying by the seat of my pants when parenting βthe rare.β #curesjia #stillsdisease #sjia #systemicjia
Giving a face to a horrible disease today. #AdvocateLikeAMother #CureSJIA #AutoinflammatoryDisease #SystemicJIA
Itβs been almost one year since my almost 3yo got sick with mysterious fevers and rash that turned out to be an autoinflammatory disease called SJIA. Learn more about it by visiting the @sjiafoundation! #systemicjia #sjia #stillsdisease #RareDiseaseDay
Families of children with #systemicJIA #sJIA and their doctors urged to watch for signs of rare life-threatening lung disease that may be related to taking #biologics. Read more: https://t.co/zMTkGAIplZ Read the study: https://t.co/V8NKpEFYcQ #CincyKidsScience
Management of sytsemic JIA in adults and children. Dr Bruno Fautrel #stilldisease #systemicjia #summerschool2019
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