Top Tweets for #THEALSCommunity
I want to take a moment to introduce everyone to @Garrett_J_Smith and his beautiful family. Garrett is a veteran now fighting ALS. I hope you’ll take a few minutes to watch and then follow him as he charges in to end ALS. #TheALSCommunity https://t.co/ZCx6MBoQ0a
Incredibly clear. #TheALScommunity
If there was ever a question of the clear leaders of ALS advocacy , it was answered tonight. @iamalsorg
There wasn't a place you could go to see ALS events being hosted on a day-to-day basis. So our advocates who get sh*t done created it. Enter the ALS Calendar.
Check it out - https://t.co/hKFBi0xb2w
I would love to see this kind of coalition to push HR 7071 across the finish line. AS IS! #THEALSCommunity is working their asses off EVERY day to make it happen.
This is an all hands on deck moment! We’re proud to be partnering with @iamalsorg, @LesTurnerALS, @MDAorg, & @TeamGleason to urge @SpeakerPelosi, @LeaderHoyer, @GOPLeader, @WhipClyburn, & @SteveScalise to schedule a vote on #SSDI access. You can join us at https://t.co/TtdLO3pabN
In response to the results of the #AMX0035 phase 2 trial published today, @alsassociation and @iamalsorg launched a petition urging @AmylyxPharma and @US_FDA to get the drug to market as soon as possible. Sign today at https://t.co/1wMfxae3jb
#ALS #ALSAdvocacy #OurALSCommunity
@SenatorDurbin Can you work on why @US_FDA is withholding treatments for #ALS like #NurOwn and ignoring #theALSCommunity?
@SteveFDA Please tell me @SteveFDA , are you ignoring all your other obligations and solely focusing on COVID, or just #TheALSCommunity?
@US_FDA To date, the @US_FDA has still ignored the cries for help from #theALSCommunity. We are dying! #NurOwn @FDACommissioner @SteveFDA @FDACBER
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