Top Tweets for #TSCare
Awareness is only useful when it leads to preparedness. For #TurnerSyndrome, that means #risk assessment, appropriate imaging, informed clinicians, reliable follow-up and #sustainable care beyond knowing that a risk exists.
#AorticDiseaseAwarenessMonth #TSCare #ThinkAorta #TSA
Did you know that Calcium and Vitamin D3 supplementation are useless if baseline estrogen replacement is absent? #Estrogen is the primary vehicle that locks calcium into the bone matrix.
#TurnerSyndrome #Calcium #MedicalFacts #TSCare #Thursday
Insulin resistance is a common, silent companion in #TurnerSyndrome due to unique genetic pathways. Regular #fasting glucose & HbA1c screenings must be a standard regular protocol. Protect your metabolic engine #TSSisters๐
#DiabetesPrevention #TSCare #TurnerSyndrome #TSAwareness
Resilience isn't just about 'toughing it out.' Itโs about building an environment where you are heard and feel safe. If your doctor isn't listening, it's time to find one who does. You are the CEO of your health.
#PatientAdvocacy #TurnerSyndrome #TSCare #Resilience #TSA
Did you know that many women with #TurnerSydrome have a unique executive function profile? This can make organizing big tasks feel like a mountain. Be kind, break it down into micro-steps. Small wins lead to big success!
#Neurodiversity #TSCare #Mindful #MentalHealth #SuccessTips
Professional Tip: If you're experiencing brain fog, it might not just be stress. Check your B12 and Vitamin D levels, which are common deficiencies in #TurnerSyndrome that impact cognitive clarity.
#VitaminD #B12 #Health #CognitiveHealth #MentalHealth #TSCare #Monday #Hack
Listen up: Hearing loss in #TurnerSyndrome can be gradual. We encourage parents to ensure regular audiograms even if everything seems fine. Undetected hearing loss can impact school performance & social confidence. Stay ahead of the curve! #HearingHealth #InclusiveEd #TSCare #TSA
Non-Verbal Learning Disorder (NVLD) in #TurnerSyndrome is about processing NOT intelligence. It can affect math or reading maps, but girls and women with TS often have superior verbal memory. Focus on the strength to overcome the challenge! #Neurodiversity #TSA #Power #TSCare
Did you know that many girls with #TurnerSyndrome have a horseshoe kidney (kidneys fused at the base). While often asymptomatic, it increases the risk of UTIs and stones. Regular renal ultrasounds are a vital part of Turner Syndrome Care #Genetics #KidneyHealth #TSCare #TSA
๐๐ฎ๐ฟ๐ฒ ๐ณ๐ผ๐ฟ ๐๐ถ๐ณ๐ฒ means seeing the girl through her school years, the woman through her career, and the senior through her aging process. #TurnerSyndrome care from paediatric to adult care is a marathon, not a sprint.
#Life #HealthEquity #TSWarriors #TSCare #Bloom #TSA
Transitions are hard. Moving from paediatric to adult care is where many women with #TurnerSyndrome fall through the cracks. We are advocating for lifelong clinical pathways in Africa. No woman should navigate her health alone.
#HealthEquity #TSWarriors #TSSisters #Bloom #TSA
Tuesday Tip: Keep a Health Folder with all your karyotype results, echo reports, and GH history. It makes the transition to adult doctors 10x smoother!
#LifeHacks #TSA #HealthTips #TurnerSyndrome #Advocacy #PatientAdvocacy #TSCare
Education is key. Teachers, if a student with #TurnerSyndrome struggles with non-verbal tasks (like math or maps) but excels in verbal skills, that's a hallmark of the TS learning profile. Support, build capacity, don't judge.
#InclusiveEd #Education #TSCare #TS #TSA #Monday
Transitioning to an adult clinic? Ask your new doctor: "How familiar are you with the cardiac and endocrine nuances of #TurnerSyndrome?" Advocacy starts with you...be a smart advocate.
#PatientRights #UHC #HealthTips #HealthCare #PatientAdvocacy #TSCare #Monday
Shoutout to the caregivers of girls and women with #TurnerSyndrome. Balancing appointments, medications & emotional support is a full-time job of the heart. We see you, we appreciate you, and we are here for you.
#CaregiverSupport #TSFamily #Ubuntu #TSCare #YouAreNotAlone #TSA
Did you know that Hearing health is a key pillar of #TurnerSyndrome care? From chronic ear infections in childhood to progressive loss in adulthood, regular ENT checkups are non-negotiable. Don't wait for symptoms; be proactive!
#HearingHealth #TSA #RareDisease #ENT #TSCare
Growth Hormone (GH) Therapy 101: It's not just about height. GH also plays a role in body composition and bone health for girls and women with #TS. Consistency is key! Join us and help make this possible.
#Endocrinology #TurnerSyndrome #HealthTips #Thursday #Consistency #TSCare
Cardiovascular health is a priority in TS care. Regular echos and MRIs aren't just checks, they are life-saving tools for monitoring the aorta.
#HeartHealth #RareDisease #TurnerSyndrome #TSCare #TSA
Sejumlah 30 keluarga menerima manfaat ini yang terdiri daripada golongan asnaf dan rakyat yang terjejas pendapatan kesan penularan wabak covid 19. Diharap sumbangan bakul makanan TS Care ini mampu meringkankan beban keluarga mereka.
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#semangatmerahkuning
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