#Terminal2Treatable - Twitter Hashtag

about 2 years ago

Powerful interview with Jake Tapper talking about Brian & Sandra's mission to transform 100% fatal #ALS from #Terminal2Treatable. This couple has sacrificed do much to create real change in health policy, exponentially increase research funding, & raise awareness -- all while making us laugh, cry & celebrate along the way! Check out the interview & their documentary n @PrimeVideo ... then join our fight to expedite getting #DrugsinBodies so Brian & the other 30,000 Americans with ALS have a chance today! https://t.co/inMnfJvx5E @bsw5020 @sabrevaya @jaketapper @iamalsorg @CNNPolitics @TheLeadCNN @CNN

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AZ Latina ☮️🌊🟦

@aVoice4ALS

about 4 years ago

@wfneurology Hoping FDA exercises regulatory flexibility & utilizes tools like Accelerated Approval to get drugs on market that help some people w #ALS #MND, a vastly heterogeneous disease. #BrainHealth - let's turn ALS from #Terminal2Treatable #WorldBrainDay2022 #NurOwn #Tofersen #NP001

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AZ Latina ☮️🌊🟦

@aVoice4ALS

over 4 years ago

MAY is #ALSawareness Month But Awareness is not enough We are fighting: ▪️ for #DrugsInBodies ▪️ for quicker FDA approval of Drugs ▪️ to turn ALS from #Terminal2Treatable We PRAY for a cure But we FIGHT for people fighting for their lives today! @DrCaliff_FDA @POTUS @FLOTUS

aVoice4ALS's tweet photo. MAY is #ALSawareness Month
But Awareness is not enough

We are fighting:
▪️ for #DrugsInBodies
▪️ for quicker FDA approval of Drugs
▪️ to turn ALS from #Terminal2Treatable

We PRAY for a cure
But we FIGHT for people fighting for their lives today!

@DrCaliff_FDA @POTUS @FLOTUS https://t.co/2l2uzINn6X

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AZ Latina ☮️🌊🟦

@aVoice4ALS

over 4 years ago

FDA's #RareDiseaseDay TODAY! #ALS is only a #RareDisease bc we can't seem to get drugs approved when they work on some in this heterogeneous disease. New Commissioner @DrCaliff_FDA is giving the opening remarks! #SomeIsEnough #Terminal2Treatable https://t.co/0pcQzO4yR6

aVoice4ALS's tweet photo. FDA's #RareDiseaseDay TODAY!

#ALS is only a #RareDisease bc we can't seem to get drugs approved when they work on some in this heterogeneous disease.

New Commissioner @DrCaliff_FDA is giving the opening remarks!

#SomeIsEnough
#Terminal2Treatable

https://t.co/0pcQzO4yR6 https://t.co/4kwUFSpRVI

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Elizabeth McCormick @emmccormick2005

almost 5 years ago

Yes. Please pass Act for ALS. @HouseGOP @HouseDemocrats Thank you @RepMikeQuigley @repkevinhern @RepMullin @TomColeOK04 @RepFrankLucas @stephaniebice for co-sponsoring. Let’s get this done. #Terminal2Treatable

Mike Quigley

@RepMikeQuigley

almost 5 years ago

There are around 5,000 new ALS cases diagnosed each year. With that diagnosis, comes little hope for treatment or a cure. I introduced Act for ALS to expand opportunities for patients and change their future. Let's pass it.

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