Top Tweets for #ThinkAmmonia
IMD isn’t about making the final diagnosis in ED - it’s about asking “could this be metabolic?” Stop feeds, start dextrose, check ammonia, call for help.
Time = brain.
#thinkammonia
https://t.co/02jBe7N2nL #FOAMed #MedEd #EmergencyMedicine
Excellent #BIMDG2025 pre-meeting this evening with sessions on Fabry Disease and urea cycle disorders.
Heard from @weareMSUK about their #ThinkAmmonia campaign. Think ammonia, measure ammonia, act on the result (urgently!).
We're international ✈️
Our #ThinkAmmonia posters have now been translated into four different languages and are being shared around the world. Here are some images from an IMD event in Peru.
Keep your eyes peeled for more updates: https://t.co/L1J4XgTBQT
#mRNA based therapies present a genuine hope for patients with rare disease.
Exploring RNA therapeutics for urea cycle disorders
Eva Richard, Ainhoa Martinez Pizarro, @lrdesviat
https://t.co/G2Znd8tr1v
#OTC #ureacylcledisorders #thinkammonia #checkammonia #RNA
High ammonia is a risk around the world for people living with IMDs. That’s why we’re working with international partners to translate our materials to ensure timely diagnosis and treatment. Check out our #ThinkAmmonia page for Pakistan: https://t.co/tqY4qJyBbd
This week we shared our work, leaflets, merch, and #ThinkAmmonia materials with attendees at the BIMDG annual conference 🤝
We joined a panel discussion on transition, sharing what our communities have highlighted as important to ensuring a smooth transition.
#BIMDG #IMDs
Next @NathanWPCantley presents on a case of hyperammonaemia as the presenting feature of secondary carnitine deficiency due to dietary deficiency in a 38 year old
#BIMDG24
#thinkammonia
Dr Dawson hi-lights the danger of undiagnosed rare disease, a notable example are the late presenting OTC patients. How do we inform families about risk when there is no phenotype?
#BIMDG24
#thinkammonia
https://t.co/tB0sOScLjg.
We’ll be at the BIMDG annual conference next week!
Here, we’ll have a stand to share details about the work that we do and will be offering leaflets, MSUK merch and our “Think Ammonia!” materials to attendees.
Are you going to be there? Come and say hello!
#ThinkAmmonia
Julia Campbell told us the story of her daughter, Phoebe, who was diagnosed with OTC deficiency which was diagnosed later on in life, after repeated episodes of hyperammonaemia. Watch the full video here: https://t.co/2tcvsM9Uzo
#ThinkAmmonia
Obtaining an ammonia result is critical to the care of people experiencing high ammonia! As soon as this result is back, the clinical team can begin treatment to reduce the potential for severe consequences.
Support the “Think Ammonia!” campaign from @weareMSUK 👏
#ThinkAmmonia
High ammonia is a time-sensitive, medical emergency with the risk of death and serious neurological damage.
Recognise the signs. Test earlier. Save Lives.
Support the “Think Ammonia!” campaign from @weareMSUK which is aiming to improve outcomes for high ammonia!
#ThinkAmmonia
Have you heard of the condition Hyperammonaemia?
Its a time sensitive medical emergency that requires rapid diagnosis and treatment.
Read more about in our monthly health spotlight here
https://t.co/y5709t10O3
#ThinkAmmonia #BecauseWeAllCare
@weareMSUK @HealthwatchE
Obtaining an #ammonia result is critical to the care of people experiencing high ammonia! When this result is back, treatment can begin to reduce the potential for consequences.
Support @weareMSUK's '#ThinkAmmonia!' campaign which is aiming to improve outcomes for high ammonia!
If a pregnant mother developed vomiting, confusion and altered consciousness what would you suspect? Hyperemesis, poor oral intake, steroids for pre-term delivery or even delivery itself could precipitate decompensation in an undiagnosed UCD. #thinkammonia #obgyn @weareMSUK
If a pregnant mother developed vomiting, confusion and altered consciousness what would you suspect? Hyperemesis, poor oral intake, steroids for pre-term delivery or even delivery itself could precipitate decompensation in an undiagnosed UCD. #thinkammonia #obgyn @weareMSUK
Curious about pregnancy outcomes in Urea Cycle Disorders? We've got the podcast for you, with Margreet Wagenmakers and Karolina Stepien.
Apple: https://t.co/0mt6zsC3t4
Soundcloud: https://t.co/8cI8F2WkTE
Spotify: https://t.co/i7aIJAYiaV
@UCDConsortium @ureacyclerm
The #ThinkAmmonia campaign from @weareMSUK is designed to increase ammonia testing and awareness about high ammonia amongst the public and healthcare professionals.
Visit the MSUK site for more information: https://t.co/HFx9HkGfOD
High ammonia kills and people are dying because of overlooked symptoms. This needs to change.
Support the “Think Ammonia!” campaign from @weareMSUK which aims to improve outcomes for high ammonia!
#ThinkAmmonia
https://t.co/taTTE242w5
The #ThinkAmmonia campaign from @weareMSUK is designed to increase ammonia testing and awareness about high ammonia amongst the public and healthcare professionals. Visit the MSUK site for more information: https://t.co/VkC627g31z
On Tuesday 16th of April, we'll be taking over the social media accounts of @RareRevolutionM to talk about our #ThinkAmmonia campaign. Be sure to share the posts to ensure this important message is heard!
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