Top Tweets for #ThisIsAFM
NIAID: NIH-Sponsored Trial of Enterovirus D68 Therapeutic Begins. Years of work by @VogtVirusLab & others have led to the development of EV-D68 monoclonal Abs, studied in๐, now moving to 1st in human trials. #thisisAFM https://t.co/bIUTJyM05C
Such a great exchange of information and ideas between the European and US Acute Flaccid Myelitis Working Groups @AFMWG. An honor and a privilege to return the favor 4yrs later and host Dr. @JelteHelfferich for a visit to CO @ChildrensCO_Pro to see our programs #EVD68 #thisisAFM
A great visit to UMC Groningen: impressed by all the work being done to better understand enteroviruses #EVD68 and acute flaccid myelitis #afm ...lots of opportunities for continued collaboration. A big thanks to our gracious hosts @bertniesters
New @CDCgov HAN: Pediatric hospitalizations with severe respiratory illness from rhinovirus and/or enterovirus increased in August. Clinicians:
โก๏ธConsider EV-D68 in pediatric patients with acute, severe respiratory illness
โก๏ธBe aware of potential increase in AFM cases
2022 has the unfortunate potential to be another significant AFM year given the current #EVD68 #polio situation. However, this is not 2014. We know more, have more awareness, more tools, & we have an incredible network of scientists, clinicians & families ready to help #thisisAFM
SRNA would like to congratulate the recipient of the Progress Grant for NMOSD, Dr. Sammita Satyanarayan! #WeAreSRNA #StrongerTogether #AFM #AcuteFlaccidMyelitis #ThisIsAFM #ADEM #AcuteDisseminatedEncephalomyelitis #MOG #MOGAD #MogAntibodyDisease #NMOSD #NMO #NeuromyelitisOptica
Big thanks to @TISDCES and @TISDCESPTO for supporting the AFMA! Weโre ready to keep supporting and advocating for families affected by AFM. #thisisAFM #endAFM #acuteflaccidmyelitis #rareandreal
Thank you to Braden and Mrs. Scott for educating us about AFM as we raise money for the Acute Flaccid Myelitis Association! @TISDCES #CESStrongerTogether
Thank you so much @VogtVirusLab! I love seeing Alfredo out in the world. #thisisAFM #endAFM #acuteflaccidmyelitis #rareandreal
I finally got around to buying this. Great work, @GreatScottSeven! This story is meant to help understand #AFM, the polio-like disease we study. I would ๐ฏ give this to any child/family with this diagnosis. https://t.co/TWu1QMtJAv benefits from book sale proceeds, too
Acute Flaccid Myelitis is also a disease caused by a virus that leaves children with permanent paralysis and relying on machines to breathe. There is no vaccine. #thisisAFM #endAFM #acuteflaccidmyelitis #rareandreal
Iโm seeing a lot of misinformation being spread about the polio vaccine. (From an article by Jessica Roy in the Los Angeles Times)
I wrote a book! Check out the book trailer and buy one million copies. As my six year old says: please and thank you. https://t.co/E8tpbNzdDp #thisisAFM #endAFM #acuteflaccidmyelitis #rareandreal @helpAFMA
This logic hurts. People desperately want reassurances of safety. My son has an underlying condition so his negative outcome would be acceptable? It's really not. #destinationexcellence #destinationdelta #acuteflaccidmyelitis #rareandreal #thisisAFM
Be sure to join us on CDC's Instagram Stories beginning at 12:00 pm ET for a Q&A on #AFM. Bring your questions about #AcuteFlaccidMyelitis and invite a friend or family member to bring theirs, too! #ThisIsAFM #AFM2021 #StrongerTogether #EndAFM #RareDisease #AFMAwareness
We have the very best parents and clinicians leading the charge for @acuteflaccidmyelitis! #afm #thisisAFM #endAFM #acuteflaccidmyelitis #rareandreal
Massive thanks to the efforts of @RRobertseHealth, @kmess44 and Dr. Janell Routh in establishing a unique ICD code for #acuteflaccidmyelitis. ๐๐๐ Post about their efforts here: https://t.co/ybZdSvqVEV
#thisisAFM
An amazing collaborative review and consensus on
#acuteflaccidmyeltitis
https://t.co/KmcajuHMbu
This is what teamwork looks like, and together we can use medicine and science to make a difference. Proud to be a part of this collaboration.
Lancet: A global collaborative review and consensus recommendations on the causes, clinical diagnosis & management of acute flaccid myelitis by the #AFM Working Group #thisisAFM #EVD68 #EVA71 https://t.co/WadbGflAHb
Happy Halloween, AFMers! ๐๐๐ Don't forget to tag us in all your Halloween pictures! We love sharing the creativity of our community. Stay safe and have fun! #thisisAFM #endAFM #acuteflaccidmyelitis #rareandreal
So proud to be a part of the #acuteflaccidmyelitis community. Please share! #afm #thisisAFM #endAFM #rareandreal #raredisease
So proud to be a part of the #acuteflaccidmyelitis community. Please share! #afm #thisisAFM #endAFM #rareandreal #raredisease
Know AFM: Sudden onset limb weakness following a cold. Facial droop/weakness, difficulty swallowing/breathing, slurred speech/pain. Breathing muscles often become weak/paralyzed requiring ventilator to breathe. Share!
#acuteflaccidmyelitis #thisisAFM #endAFM My grandson Corbin๐ฅฐ
@elonmusk @neuralink Can my daughter join your team as an intern? We built a brain-controlled exoskeleton for her paralyzed arm, and it WORKED :) but we still have so much to learn and her shoulder is still paralyzed. Plus, she loves pigs :) #neuralink https://t.co/F0ADhld8Q7
@RRobertseHealth This is why awareness about AFM matters. Carter should still be here. #afm #thisisAFM #endAFM #acuteflaccidmyelitis
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